{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T02:05:49Z","timestamp":1784167549102,"version":"3.55.0"},"reference-count":33,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:00:00Z","timestamp":1767830400000},"content-version":"vor","delay-in-days":7,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Nursing in Critical Care"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>A palliative care unit is a place where intensive treatment and care are provided for both patients and caregivers. In addition, some invasive interventions are needed to reduce the symptoms seen in end\u2010stage patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>In this study, the relationship between the care burden experienced by caregivers of patients hospitalised in a palliative care unit and invasive procedures (intravenous applications were excluded from invasive procedures because they are routinely applied to all patients) was evaluated.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Study Design<\/jats:title>\n                    <jats:p>This cross\u2010sectional study was conducted in Turkey. The following tools were used to collect data: the \u2018Caregiver Information Form\u2019, \u2018Palliative Performance Scale (PPS)\u2019 and the \u2018Zarit Care Burden Scale\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Although data were collected from 123 patients, informal caregivers and those who declined to answer certain questions were excluded from the final sample, ensuring that the target sample size was met. The final sample consisted of 107 caregivers. Results showed that the median care burden score was significantly higher among caregivers with low income (49 (14\u201072);\n                      <jats:italic>p<\/jats:italic>\n                      = 0.034), those caring for patients diagnosed with cerebrovascular events (58.5(19\u201070);\n                      <jats:italic>p<\/jats:italic>\n                      = 0.029), and those who underwent invasive interventions for various reasons (34 (10\u201073);\n                      <jats:italic>p<\/jats:italic>\n                      = 0.006). Additionally, 68.2% (\n                      <jats:italic>n<\/jats:italic>\n                      = 73) of caregivers reported feelings of distress for their patients and 57% (\n                      <jats:italic>n<\/jats:italic>\n                      = 61) experienced insomnia while providing care. The mean PPS score of the patients was 32.0\u2009\u00b1\u200920.0, and the median score of the Zarit Burden of Care Scale was 30 (10\u201373). The combined variables of caregiver age, days spent with the patient, and PPS score accounted for 17% of the variance in the Care Burden Scale (\n                      <jats:italic>R<\/jats:italic>\n                      \u2009=\u20090.444,\n                      <jats:italic>R<\/jats:italic>\n                      <jats:sup>2<\/jats:sup>\n                      \u2009=\u20090.174,\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.05).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Based on these findings, it is recommended that caregivers of patients receiving invasive interventions and those with low PPS scores receive both physiological and psychological support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Relevance to Clinical Practice<\/jats:title>\n                    <jats:p>These findings highlight the need for targeted physiological and psychological support for caregivers of palliative care patients undergoing invasive interventions to reduce care burden and improve overall care quality.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/nicc.70274","type":"journal-article","created":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T13:25:14Z","timestamp":1767878714000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Assessment of the Burden of Care in Palliative Care Patients With Invasive Procedures From the Perspective of the Caregivers: A Cross\u2010Sectional Study"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6748-6701","authenticated-orcid":false,"given":"Ya\u011fmur","family":"Akbal Demirci","sequence":"first","affiliation":[{"name":"Recep Tayyip Erdo\u011fan University Faculty of Health Sciences, Nursing Department  Rize Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2608-8584","authenticated-orcid":false,"given":"Elif","family":"Okur","sequence":"additional","affiliation":[{"name":"Trabzon University Tonya Vocational School of Higher Education, Health Care Services  Tonya\/Trabzon Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,1,8]]},"reference":[{"key":"e_1_2_15_2_1","volume-title":"Global Atlas on Palliative Care at the End of Life","author":"World Health Organization","year":"2014"},{"key":"e_1_2_15_3_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMra1404684"},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/15524256.2021.1888844"},{"issue":"1","key":"e_1_2_15_5_1","first-page":"25","article-title":"Symptom Management in Palliative Care (Dyspnea, Fatigue, Nausea\u2010Vomiting, Pain)","volume":"10","author":"Bulut G.","year":"2017","journal-title":"Turkiye Klinikleri Journal of Anesthesiology & Reanimation \u2013 Special Topics"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.5505\/agri.2015.07752"},{"issue":"1","key":"e_1_2_15_7_1","first-page":"15","article-title":"Surgical Applications Including Palliative Care","volume":"9","author":"Akbulut G.","year":"2016","journal-title":"Turkiye Klinikleri Journal of General Surgery \u2013 Special Topics"},{"issue":"2","key":"e_1_2_15_8_1","first-page":"13","article-title":"Evaluation of Behavioral and Physiological Pain Indicators During Invasive Procedures on the Intensive Care Patients","volume":"18","author":"Kahraman B. B.","year":"2016","journal-title":"Journal of Research and Development in Nursing"},{"key":"e_1_2_15_9_1","doi-asserted-by":"publisher","DOI":"10.5005\/jp\u2010journals\u201010071\u201024151"},{"key":"e_1_2_15_10_1","doi-asserted-by":"publisher","DOI":"10.17049\/ataunihem.748923"},{"issue":"2","key":"e_1_2_15_11_1","first-page":"38","article-title":"Care Burden and Unmet Care Needs of Caregivers of Cancer Patients Receiving Palliative Care","volume":"5","author":"Polat \u00dc.","year":"2020","journal-title":"Gazi Journal of Health Sciences"},{"key":"e_1_2_15_12_1","doi-asserted-by":"publisher","DOI":"10.30934\/kusbed.945640"},{"key":"e_1_2_15_13_1","volume-title":"\u201cExamination of Care Burden and Quality of Life of Caregivers for PEG (Percutaneous Endoscopic Gastrostomy) and NG (Nasogastric) Patients Receiving Palliative Care\u201d","author":"Budak S.","year":"2019"},{"key":"e_1_2_15_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.16872"},{"key":"e_1_2_15_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/082585979601200102"},{"key":"e_1_2_15_16_1","doi-asserted-by":"publisher","DOI":"10.4103\/apjon.apjon\u20102111"},{"key":"e_1_2_15_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/20.6.649"},{"issue":"4","key":"e_1_2_15_18_1","first-page":"85","article-title":"Validity and Reliability of the Burden Interview and Its Adaptation to Turkish","volume":"11","author":"\u0130nci F.","year":"2010","journal-title":"Journal of Anatolia Nursing and Health Sciences"},{"key":"e_1_2_15_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2024.102509"},{"key":"e_1_2_15_20_1","doi-asserted-by":"publisher","DOI":"10.7197\/cmj.1353837"},{"issue":"2","key":"e_1_2_15_21_1","first-page":"19","article-title":"Life Satisfaction, Care Burden and Burnout of the Individuals Who Have a Caregiver Service to the Elderly at Home","volume":"10","author":"Kal\u0131nkara V.","year":"2018","journal-title":"Elderly Issues Research Journal"},{"key":"e_1_2_15_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2022.102152"},{"key":"e_1_2_15_23_1","doi-asserted-by":"publisher","DOI":"10.31557\/APJCC.2019.4.3.87"},{"key":"e_1_2_15_24_1","doi-asserted-by":"publisher","DOI":"10.29228\/pphcjournal.73627"},{"key":"e_1_2_15_25_1","doi-asserted-by":"publisher","DOI":"10.5505\/ktd.2021.04764"},{"key":"e_1_2_15_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jstrokecerebrovasdis.2024.107854"},{"key":"e_1_2_15_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamcollsurg.2020.03.036"},{"key":"e_1_2_15_28_1","doi-asserted-by":"publisher","DOI":"10.4103\/ijnmr.IJNMR_173_20"},{"key":"e_1_2_15_29_1","doi-asserted-by":"publisher","DOI":"10.4103\/ijnmr.IJNMR_173_20"},{"key":"e_1_2_15_30_1","doi-asserted-by":"publisher","DOI":"10.1080\/0284186X.2023.2185541"},{"key":"e_1_2_15_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/nuf.12328"},{"key":"e_1_2_15_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnss.2020.07.012"},{"key":"e_1_2_15_33_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2016.16840"},{"key":"e_1_2_15_34_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520\u2010015\u20102797\u20103"}],"container-title":["Nursing in Critical Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/nicc.70274","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/nicc.70274","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/nicc.70274","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T01:50:03Z","timestamp":1784166603000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/nicc.70274"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1]]},"references-count":33,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,1]]}},"alternative-id":["10.1111\/nicc.70274"],"URL":"https:\/\/doi.org\/10.1111\/nicc.70274","archive":["Portico"],"relation":{},"ISSN":["1362-1017","1478-5153"],"issn-type":[{"value":"1362-1017","type":"print"},{"value":"1478-5153","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1]]},"assertion":[{"value":"2025-08-08","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-10-30","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-08","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70274"}}