{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T02:07:47Z","timestamp":1789697267036,"version":"4.0.1"},"reference-count":45,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2018,11,18]],"date-time":"2018-11-18T00:00:00Z","timestamp":1542499200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Nursing Inquiry"],"published-print":{"date-parts":[[2019,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The rapidly increasing number of cases of Zika virus and limited understanding of its congenital sequelae (e.g., microcephaly) led to stories of fear and uncertainty across social media and other mass communication networks. In this study, we used techniques generic to netnography, a form of ethnography, using Internet\u2010based computer\u2010mediated communications as a source of data to understand the experience and perceptions of families with infants diagnosed with Zika\u2010related microcephaly. We screened 27 YouTube\u2122 videos published online between October 2015 and July 2016, during which the Zika epidemic started, peaked, and declined. We identified three themes: (a) experiencing the news of a diagnosis of Zika\u2010associated microcephaly; (b) experiencing feelings and expectations of the \u2018imperfect\u2019 child; and (c) seeking to understand microcephaly to care for the child. We found that families experienced distressing feelings of shock, sadness, hopelessness, and pain, while dealing with emerging and sometimes conflicting information being transmitted by news outlets, uncertainty about the child's health, and healthcare providers\u2019 lack of clarity to guide the family members. The \u2018unknown\u2019 factor of ZIKA was an additional stressful factor in the experience of the families.<\/jats:p>","DOI":"10.1111\/nin.12274","type":"journal-article","created":{"date-parts":[[2018,11,19]],"date-time":"2018-11-19T04:35:22Z","timestamp":1542602122000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Bad news: Families\u2019 experiences and feelings surrounding the diagnosis of Zika\u2010related microcephaly"],"prefix":"10.1111","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1158-5628","authenticated-orcid":false,"given":"Paulo Roberto Lima Falc\u00e3o do","family":"Vale","sequence":"first","affiliation":[{"name":"Department of Health Universidade Estadual de Feira de Santana  Bahia Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3557-7200","authenticated-orcid":false,"given":"Sheila","family":"Cerqueira","sequence":"additional","affiliation":[{"name":"Department of Health Universidade Estadual de Feira de Santana  Bahia Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4040-366X","authenticated-orcid":false,"suffix":"Jr.","given":"Hudson P.","family":"Santos","sequence":"additional","affiliation":[{"name":"School of Nursing University of North Carolina at Chapel Hill  Chapel Hill North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Beth P.","family":"Black","sequence":"additional","affiliation":[{"name":"School of Nursing University of North Carolina at Chapel Hill  Chapel Hill North Carolina"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4564-0768","authenticated-orcid":false,"given":"Evanilda Souza de Santana","family":"Carvalho","sequence":"additional","affiliation":[{"name":"Department of Health Universidade Estadual de Feira de Santana  Bahia Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,11,18]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2016.11.015"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1473-3099(16)30318-8"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1747-0803.2012.00706.x"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1310\/hpj5104-275"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.3109\/14767058.2013.776536"},{"key":"e_1_2_6_7_1","volume-title":"Desafios da imagem: Fotografia, iconografia e v\u00eddeo nas ci\u00eancias sociais. 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