{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T13:51:52Z","timestamp":1791899512925,"version":"4.3.4"},"reference-count":47,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T00:00:00Z","timestamp":1791849600000},"content-version":"vor","delay-in-days":12,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T00:00:00Z","timestamp":1790812800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Nursing Inquiry"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>This study explores the meanings of acting as a street\u2010level bureaucrat in facilitating home care for children living with respiratory support and their families. A phenomenological hermeneutic approach was used, based on interviews with professionals involved in assessment, decision\u2010making and care provision across different parts of the welfare system. The findings show that this work is lived in tensions between compassion and regulation, closeness and distance, and enduring needs and finite resources. Acting as a bureaucrat in this context means being confronted by the vulnerability of the child and family while being bound to formal language, legal categories and organisational limits. Home care is made possible through these structures, yet never fully contained by them. Responsibility emerges as exposed, stretching beyond the moment of decision and continuing into a life that unfolds elsewhere. Bureaucratic work thus appears as more than administration. It is lived as an effort to respond to what is pressing and fragile while remaining within frameworks that cannot fully receive it. The study highlights the importance of institutions that not only uphold justice but also make good care possible.<\/jats:p>","DOI":"10.1111\/nin.70175","type":"journal-article","created":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T13:22:30Z","timestamp":1791897750000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["When Children's Needs Do Not Fit the System: Street\u2010Level Bureaucrats Facilitating Home Care for Children Living With Respiratory Support"],"prefix":"10.1111","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9850-1900","authenticated-orcid":false,"given":"Johan","family":"Flor\u00e9n","sequence":"first","affiliation":[{"name":"Department of Caring Science, Faculty of Caring Science, Work Life and Social Welfare University of Bor\u00e5s Bor\u00e5s Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0047-9723","authenticated-orcid":false,"given":"Berit","family":"Lindahl","sequence":"additional","affiliation":[{"name":"Department of Caring Science, Faculty of Caring Science, Work Life and Social Welfare University of Bor\u00e5s Bor\u00e5s Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2246-731X","authenticated-orcid":false,"given":"Sepideh","family":"Olausson","sequence":"additional","affiliation":[{"name":"Institute of Health and Care Sciences, Diagnostics, Acute and Critical Care University of Gothenburg Gothenburg Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Agneta","family":"Markstr\u00f6m","sequence":"additional","affiliation":[{"name":"Department of Medical Sciences, Respiratory, Allergy and Sleep Research Uppsala University Uppsala Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0590-0417","authenticated-orcid":false,"given":"Andreas","family":"Palm","sequence":"additional","affiliation":[{"name":"Department of Medical Sciences, Respiratory, Allergy and Sleep Research Uppsala University Uppsala Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2972-6908","authenticated-orcid":false,"given":"\u00c5sa","family":"Israelsson\u2010Skogsberg","sequence":"additional","affiliation":[{"name":"Department of Caring Science, Faculty of Caring Science, Work Life and Social Welfare University of Bor\u00e5s Bor\u00e5s Sweden"},{"name":"Cardiothoracic Intensive Care Unit (TIVA), Sahlgrenska University Hospital Gothenburg Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,10,13]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2020.12.013"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/scs.13056"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0047279425101232"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2020.544921"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/13691457.2019.1639627"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/nop2.879"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.3390\/laws5020023"},{"key":"e_1_2_12_9_1","volume-title":"InterViews: Learning the Craft of Qualitative Research Interviewing","author":"Brinkmann S.","year":"2015"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/sleepj\/zsx050.885"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/14719037.2022.2065517"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1300\/J031v19n03_05"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.5195\/errs.2017.416"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.18261\/issn.2464-4161-2021-01-03"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1093\/bjsw\/bch106"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2017.06.021"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12939-025-02511-5"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hjdsi.2016.04.002"},{"key":"e_1_2_12_19_1","unstructured":"HFD 2015 ref. 46.2015. 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