{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T21:48:26Z","timestamp":1790718506829,"version":"4.1.0"},"reference-count":33,"publisher":"Wiley","issue":"S2","license":[{"start":{"date-parts":[[2015,11,16]],"date-time":"2015-11-16T00:00:00Z","timestamp":1447632000000},"content-version":"vor","delay-in-days":15,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Orthod Craniofacial Res"],"published-print":{"date-parts":[[2015,11]]},"abstract":"<jats:title>Structured Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>\n                      We describe the methodology for a major study investigating the impact of reconfigured cleft care in the United Kingdom (\n                      <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>\n                      ) 15\u00a0years after an initial survey, detailed in the Clinical Standards Advisory Group (\n                      <jats:styled-content style=\"fixed-case\">CSAG<\/jats:styled-content>\n                      ) report in 1998, had informed government recommendations on centralization.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting and Sample Population<\/jats:title>\n                    <jats:p>\n                      This is a\n                      <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>\n                      multicentre cross\u2010sectional study of 5\u2010year\u2010olds born with non\u2010syndromic unilateral cleft lip and palate. Children born between 1 April 2005 and 31 March 2007 were seen in cleft centre audit clinics.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Materials and Methods<\/jats:title>\n                    <jats:p>Consent was obtained for the collection of routine clinical measures (speech recordings, hearing, photographs, models, oral health, psychosocial factors) and anthropometric measures (height, weight, head circumference). The methodology for each clinical measure followed those of the earlier survey as closely as possible.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We identified 359 eligible children and recruited 268 (74.7%) to the study. Eleven separate records for each child were collected at the audit clinics. In total, 2666 (90.4%) were collected from a potential 2948 records. The response rates for the self\u2010reported questionnaires, completed at home, were 52.6% for the Health and Lifestyle Questionnaire and 52.2% for the Satisfaction with Service Questionnaire.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Response rates and measures were similar to those achieved in the previous survey. There are practical, administrative and methodological challenges in repeating cross\u2010sectional surveys 15\u00a0years apart and producing comparable data.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/ocr.12104","type":"journal-article","created":{"date-parts":[[2015,11,16]],"date-time":"2015-11-16T00:57:04Z","timestamp":1447635424000},"page":"1-13","source":"Crossref","is-referenced-by-count":45,"title":["A cross\u2010sectional survey of 5\u2010year\u2010old children with non\u2010syndromic unilateral cleft lip and palate: the Cleft Care\n                    <scp>UK<\/scp>\n                    study. Part 1: background and methodology"],"prefix":"10.1111","volume":"18","author":[{"given":"M.","family":"Persson","sequence":"first","affiliation":[{"name":"Centre for Appearance Research University of the West of England Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J. 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J.","family":"Ireland","sequence":"additional","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A. J.","family":"Hall","sequence":"additional","affiliation":[{"name":"Children's Hearing Centre University Hospitals Bristol NHS Foundation Trust Bristol UK"},{"name":"Centre for Child &amp; Adolescent Health School of Social &amp; Community Medicine University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"W.","family":"Hollingworth","sequence":"additional","affiliation":[{"name":"School of Social &amp; Community Medicine University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"T.","family":"Jones","sequence":"additional","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"},{"name":"Musgrove Park Hospital Taunton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"T. 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R.","family":"Ness","sequence":"additional","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"},{"name":"National Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition, Diet and Lifestyle at the University Hospitals Bristol NHS Foundation Trust University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2015,11,16]]},"reference":[{"key":"e_1_2_8_2_1","unstructured":"HSMO.Clinical Standards Advisory Group Cleft Lip and\/or Palate.London:HSMO;1998 ISBN 0\u201011\u2010322103\u20107."},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569(2001)038<0038:CLAPCI>2.0.CO;2"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569(2001)038<0030:CLAPCI>2.0.CO;2"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569(2001)038<0024:CLAPCI>2.0.CO;2"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(99)03748-4"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-12-148"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1597\/04-198R.1"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1308\/003588410X12699663904790"},{"key":"e_1_2_8_11_1","first-page":"49","article-title":"The dental caries experience of 5\u2010year\u2010old children in Great Britain. 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