{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,12]],"date-time":"2026-08-12T21:53:42Z","timestamp":1786571622517,"version":"build-2736575974"},"reference-count":21,"publisher":"Wiley","issue":"S2","license":[{"start":{"date-parts":[[2015,11,16]],"date-time":"2015-11-16T00:00:00Z","timestamp":1447632000000},"content-version":"vor","delay-in-days":15,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Orthod Craniofacial Res"],"published-print":{"date-parts":[[2015,11]]},"abstract":"<jats:title>Structured Abstract<\/jats:title><jats:sec><jats:title>Objectives<\/jats:title><jats:p>To describe the impact of cleft service centralization on parental perceptions of child outcomes and satisfaction with care from the Cleft Care <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> (<jats:styled-content style=\"fixed-case\">CCUK<\/jats:styled-content>) study and compare them to the Clinical Standards Advisory Group (<jats:styled-content style=\"fixed-case\">CSAG<\/jats:styled-content>) study that took place 15\u00a0years earlier.<\/jats:p><\/jats:sec><jats:sec><jats:title>Setting and Sample Population<\/jats:title><jats:p>A subgroup of respondents from a <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> multicentre cross\u2010sectional study (<jats:styled-content style=\"fixed-case\">CCUK<\/jats:styled-content>) of 5\u2010year\u2010olds born with non\u2010syndromic unilateral cleft lip and palate.<\/jats:p><\/jats:sec><jats:sec><jats:title>Materials and Methods<\/jats:title><jats:p>Data on parents\u2019 perceptions of child self\u2010confidence and their satisfaction with treatment outcomes and service provision were collected via self\u2010report questionnaires. Data were compared with findings from the 1998 <jats:styled-content style=\"fixed-case\">CSAG<\/jats:styled-content> study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Fewer parents in the <jats:styled-content style=\"fixed-case\">CCUK<\/jats:styled-content> study perceived their children as having poor self\u2010confidence than in the 1998 <jats:styled-content style=\"fixed-case\">CSAG<\/jats:styled-content> study (8 and 19%, respectively). At least 81% of parents report satisfaction with the child's facial features after surgery and 98% report being satisfied with the care received. These results are similar to those reported in 1998. There is no evidence of an adverse impact on families\u2019 ability to attend appointments at the cleft clinic following centralization. Levels of reported problems (around 30%) with attendance were similar to those reported by <jats:styled-content style=\"fixed-case\">CSAG<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Centralization of cleft services appears to have improved parental perceptions of some child outcomes but has made little difference to already high levels of parental satisfaction with cleft care services. Centralization is not associated with an increase in the proportion of families who find it difficult to attend appointments.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ocr.12113","type":"journal-article","created":{"date-parts":[[2015,11,16]],"date-time":"2015-11-16T05:57:04Z","timestamp":1447653424000},"page":"47-55","source":"Crossref","is-referenced-by-count":34,"title":["Cleft Care <scp>UK<\/scp> study. Part 5: child psychosocial outcomes and satisfaction with cleft services"],"prefix":"10.1111","volume":"18","author":[{"given":"A.","family":"Waylen","sequence":"first","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A. R.","family":"Ness","sequence":"additional","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"},{"name":"National Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition Diet and Lifestyle at the University Hospitals Bristol NHS Foundation Trust and the University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A. K.","family":"Wills","sequence":"additional","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Persson","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research University of the West of England Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"N.","family":"Rumsey","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research University of the West of England Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J. R.","family":"Sandy","sequence":"additional","affiliation":[{"name":"School of Oral and Dental Sciences University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2015,11,16]]},"reference":[{"key":"e_1_2_8_2_1","volume-title":"Cleft Lip and\/or Palate, Report of a CSAG Committee","author":"Clinical Standards Advisory Group","year":"1998"},{"key":"e_1_2_8_3_1","first-page":"3","article-title":"Facial clefting and its syndromes","volume":"7","author":"Gorlin RJ","year":"1971","journal-title":"Birth Defects Orig Artic Ser"},{"key":"e_1_2_8_4_1","first-page":"22","article-title":"Dental abnormalities associate with cleft lip and\/or palate","volume":"3","author":"Jordan RE","year":"1966","journal-title":"Cleft Palate J"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569(2001)038<0024:CLAPCI>2.0.CO;2"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.3109\/13682829409041477"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569(2001)038<0030:CLAPCI>2.0.CO;2"},{"key":"e_1_2_8_8_1","first-page":"171","article-title":"Cleft palate and otitis media with effusion: a review","volume":"124","author":"Sheahan P","year":"2003","journal-title":"Rev Laryngol Otol Rhinol"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0007-1226(97)91275-3"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1597\/13-110"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1093\/ejo\/cji004"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/ejo\/20.4.407"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1179\/bjo.7.2.75"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0b013e3181be8892"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-7610.2009.02186.x"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.3109\/2000656X.2011.643027"},{"key":"e_1_2_8_17_1","first-page":"114","article-title":"Self\u2010concept of early primary\u2010school age children with visible or invisible defects","volume":"26","author":"Broder H","year":"1989","journal-title":"Cleft Palate J"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1597\/08-190"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta6320"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.328.7436.360"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1601-0825.2012.01969.x"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.2319\/070110-365.1"}],"container-title":["Orthodontics &amp; Craniofacial Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Focr.12113","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ocr.12113","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/ocr.12113","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ocr.12113","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,13]],"date-time":"2023-09-13T07:44:02Z","timestamp":1694591042000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ocr.12113"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,11]]},"references-count":21,"journal-issue":{"issue":"S2","published-print":{"date-parts":[[2015,11]]}},"alternative-id":["10.1111\/ocr.12113"],"URL":"https:\/\/doi.org\/10.1111\/ocr.12113","archive":["Portico"],"relation":{},"ISSN":["1601-6335","1601-6343"],"issn-type":[{"value":"1601-6335","type":"print"},{"value":"1601-6343","type":"electronic"}],"subject":[],"published":{"date-parts":[[2015,11]]}}}