{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T00:24:33Z","timestamp":1791419073779,"version":"4.3.3"},"reference-count":30,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2022,6,15]],"date-time":"2022-06-15T00:00:00Z","timestamp":1655251200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Ophthalmic Physiologic Optic"],"published-print":{"date-parts":[[2022,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Age\u2010related macular degeneration (AMD) is one of the principal causes of irreversible visual impairment in the older adult population. Recent evidence indicates that there are signs of undertreatment and overtreatment, underdiagnosis and insufficient information provision in AMD care. Shared decision\u2010making (SDM) can aid information sharing between patients and health professionals and enhances high\u2010quality care. This research aimed to gain insight into patients' and professionals' views on SDM in AMD care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Semi\u2010structured interviews were conducted with 20 patients with AMD and 19 health professionals in June and July 2020. Participants were recruited through hospitals, professional and patient associations and (social) networks. Sample representativeness was ensured in terms of sociodemographic and disease characteristics for patients, and profession\u2010related characteristics for health professionals. Interviews were analysed according to a predetermined coding framework.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Although SDM is receiving attention in AMD care, health professionals and patients experienced barriers in making shared decisions. The most common barriers reported included limitations in treatment options, time constraints, strict treatment guidelines and patients' comorbidity. Furthermore, most patients indicated that they were not (fully) informed about all aspects of AMD trajectory, such as the possibility to discontinue therapy or the long\u2010term and invasive character of treatment. Some patients expressed the need for a more empathic and person\u2010centred communication style from their health professional.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The concerns raised by patients and health professionals suggest that there is room for improvement in delivery of SDM in AMD care. Findings from this study indicate that information provision and communication can be improved.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/opo.13016","type":"journal-article","created":{"date-parts":[[2022,6,15]],"date-time":"2022-06-15T07:45:43Z","timestamp":1655279143000},"page":"1015-1022","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["Patients' and health professionals' views on shared decision\u2010making in age\u2010related macular degeneration care: A qualitative study"],"prefix":"10.1007","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0117-9471","authenticated-orcid":false,"given":"Mariska","family":"Scheffer","sequence":"first","affiliation":[{"name":"Department of Care and Participation of People with Chronic Conditions Netherlands Institute for Health Services Research (Nivel)  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juliane","family":"Menting","sequence":"additional","affiliation":[{"name":"Department of Care and Participation of People with Chronic Conditions Netherlands Institute for Health Services Research (Nivel)  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7315-4367","authenticated-orcid":false,"given":"Ruud","family":"Roodbeen","sequence":"additional","affiliation":[{"name":"Department of Research Breuer&amp;Intraval Research and Consultancy  Groningen The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1651-7544","authenticated-orcid":false,"given":"Sandra","family":"van Dulmen","sequence":"additional","affiliation":[{"name":"Department of Communication in Healthcare Netherlands Institute for Health Services Research (Nivel)  Utrecht The Netherlands"},{"name":"Department of Primary and Community Care Radboud University Medical Center Radboud Institute for Health Sciences  Nijmegen The Netherlands"},{"name":"Faculty of Caring Science University of Bor\u00e5s  Bor\u00e5s Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3389-5221","authenticated-orcid":false,"given":"Manon","family":"van Hecke","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology Elisabeth\u2010TweeSteden Ziekenhuis  Tilburg The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2300-8289","authenticated-orcid":false,"given":"Reinier","family":"Schlingemann","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology, Amsterdam UMC University of Amsterdam  Amsterdam The Netherlands"},{"name":"Bergman Clinics Ogen  Amsterdam The Netherlands"},{"name":"Department of Ophthalmology, University of Lausanne Jules\u2010Gonin Eye Hospital, Fondation Asile des Aveugles  Lausanne Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruth","family":"van Nispen","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam Public Health Research Institute  Amsterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7540-2114","authenticated-orcid":false,"given":"Hennie","family":"Boeije","sequence":"additional","affiliation":[{"name":"Department of Care and Participation of People with Chronic Conditions Netherlands Institute for Health Services Research (Nivel)  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2022,6,15]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.neuron.2012.06.018"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(13)70145-1"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41433-019-0445-8"},{"key":"e_1_2_10_5_1","first-page":"353","article-title":"Age\u2010related macular degeneration (AMD): pathogenesis and therapy","volume":"58","author":"Nowak JZ","year":"2006","journal-title":"Pharmacol Rep"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/opo.12675"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1080\/13543784.2020.1763953"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1155\/2012\/786870"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40266-015-0300-y"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0228858"},{"key":"e_1_2_10_11_1","first-page":"1828","article-title":"Toename in de vraag naar oogzorg in Nederland 2010\u20132020","volume":"155","author":"Keunen JEE","year":"2011","journal-title":"Ned Tijdschr Geneeskd"},{"key":"e_1_2_10_12_1","first-page":"1502","article-title":"Verwijzing naar revalidatie bij blijvende visuele beperkingen; 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