{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,6,21]],"date-time":"2025-06-21T18:22:36Z","timestamp":1750530156685,"version":"3.40.5"},"reference-count":6,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2022,2,21]],"date-time":"2022-02-21T00:00:00Z","timestamp":1645401600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Dermatology"],"published-print":{"date-parts":[[2022,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>This study used the crowdsourcing platform GoFundMe to analyze the financial hardships associated with treatment of juvenile dermatomyositis. Uncovered medical expenses, travel costs, and loss of income were all commonly cited reasons for fundraising, demonstrating high out\u2010of\u2010pocket costs and significant economic hardship associated with this disease, even among families with health insurance.<\/jats:p>","DOI":"10.1111\/pde.14943","type":"journal-article","created":{"date-parts":[[2022,2,21]],"date-time":"2022-02-21T08:14:26Z","timestamp":1645431266000},"page":"379-381","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Crowdsourcing as a means of fundraising for juvenile dermatomyositis"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6874-0748","authenticated-orcid":false,"given":"Nathaniel","family":"Goldman","sequence":"first","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"},{"name":"New York Medical College School of Medicine  Valhalla New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bina","family":"Kassamali","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Neda","family":"Shahriari","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Lonowski","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christy","family":"Nwankwo","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"},{"name":"University of Missouri Kansas City School of Medicine  Kansas City Missouri USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amity","family":"Tran","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"},{"name":"University of Hawai\u2019i at Manoa John A Burns School of Medicine  Honolulu Hawaii USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ruth Ann","family":"Vleugels","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Avery","family":"LaChance","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women\u2019s Hospital Harvard Medical School  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2022,2,21]]},"reference":[{"key":"e_1_2_7_2_1","unstructured":"Shire.\u00a0Rare Disease Impact Report: Insights from patients and the medical community. April 2013. Available at:https:\/\/globalgenes.org\/wp\u2010content\/uploads\/2013\/04\/ShireReport\u20101.pdfAccessed November 23 2021"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ymgme.2013.05.003"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2020.09.008"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/ced.14955"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/brb3.923"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2021.03.103"}],"container-title":["Pediatric Dermatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/pde.14943","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/pde.14943","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/pde.14943","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,24]],"date-time":"2023-08-24T00:52:15Z","timestamp":1692838335000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/pde.14943"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,2,21]]},"references-count":6,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2022,5]]}},"alternative-id":["10.1111\/pde.14943"],"URL":"https:\/\/doi.org\/10.1111\/pde.14943","archive":["Portico"],"relation":{},"ISSN":["0736-8046","1525-1470"],"issn-type":[{"type":"print","value":"0736-8046"},{"type":"electronic","value":"1525-1470"}],"subject":[],"published":{"date-parts":[[2022,2,21]]},"assertion":[{"value":"2021-10-19","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-01-22","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-02-21","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}