{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T01:51:56Z","timestamp":1747187516018,"version":"3.40.5"},"reference-count":10,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,3,18]],"date-time":"2024-03-18T00:00:00Z","timestamp":1710720000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Dermatology"],"published-print":{"date-parts":[[2024,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.<\/jats:p>","DOI":"10.1111\/pde.15593","type":"journal-article","created":{"date-parts":[[2024,3,19]],"date-time":"2024-03-19T05:29:23Z","timestamp":1710826163000},"page":"671-673","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Dermatology Life Quality Index survey in patients with Down syndrome and caregivers"],"prefix":"10.1111","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9261-7483","authenticated-orcid":false,"given":"Morgan","family":"Dykman","sequence":"first","affiliation":[{"name":"University of Minnesota Medical School  Minneapolis Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8480-6436","authenticated-orcid":false,"given":"Madison","family":"Ernst","sequence":"additional","affiliation":[{"name":"University of Minnesota Medical School  Minneapolis Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tasya","family":"Rakasiwi","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Dartmouth\u2010Hitchcock Medical Center Children's Hospital at Dartmouth  Manchester New Hampshire USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Buros Stein","sequence":"additional","affiliation":[{"name":"Pediatric Dermatology Research Alliance  Portland Oregon USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David J.","family":"Satin","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Community Health, Center for Bioethics University of Minnesota  Minneapolis Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristen E.","family":"Holland","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Children's Hospital of Wisconsin Medical College of Wisconsin  Milwaukee Wisconsin USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephanie L.","family":"Santoro","sequence":"additional","affiliation":[{"name":"Division of Medical Genetics, Department of Pediatrics Massachusetts General Hospital  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5588-8594","authenticated-orcid":false,"given":"Jillian F.","family":"Rork","sequence":"additional","affiliation":[{"name":"Department of Dermatology, Dartmouth\u2010Hitchcock Medical Center Children's Hospital at Dartmouth  Manchester New Hampshire USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,3,18]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.38402"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/pde.14214"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/pde.14731"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0096868"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-021-01878-2"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1093\/pm\/pnw226"},{"issue":"1","key":"e_1_2_8_8_1","first-page":"34","article-title":"Quality\u2010of\u2010life impairment among patients with hidradenitis Suppurativa: a cross\u2010sectional study of 1795 patients","volume":"11","author":"Krajewski PK","year":"2021","journal-title":"Life 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