{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T01:52:00Z","timestamp":1747187520299,"version":"3.40.5"},"reference-count":11,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,9,5]],"date-time":"2024-09-05T00:00:00Z","timestamp":1725494400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Dermatology"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The characteristics of epidermolysis bullosa (EB) demand higher than average provider support for transition from pediatric to adult care. We administered an online Qualtrics survey to members of the Epidermolysis Bullosa Clinical Research Consortium (EBCRC), a group of providers who care for patients with EB, in order to examine their practices and perspectives on transition of care (TOC) and identify barriers to successful implementation. Sixteen of eighteen medical centers completed the survey. Eighty\u2010eight percent of center representatives expressed concerns about their patients transitioning\/transferring from the pediatric to adult\u2010centered care. Thirty\u2010eight percent of providers reported having a formal TOC program in place. Our findings support the desire for formal TOC programs, the need for a team\u2010based approach and, in particular, identification of adult providers to participate in the transition to improve this often challenging time.<\/jats:p>","DOI":"10.1111\/pde.15650","type":"journal-article","created":{"date-parts":[[2024,9,5]],"date-time":"2024-09-05T11:50:10Z","timestamp":1725537010000},"page":"1117-1120","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Transition of care in adolescents with epidermolysis bullosa: <scp>The<\/scp> provider perspective"],"prefix":"10.1111","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6023-113X","authenticated-orcid":false,"given":"Victoria A.","family":"Perez","sequence":"first","affiliation":[{"name":"Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"},{"name":"Department of Dermatology Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2233-4258","authenticated-orcid":false,"given":"Carly","family":"Mulinda","sequence":"additional","affiliation":[{"name":"Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna L.","family":"Bruckner","sequence":"additional","affiliation":[{"name":"Department of Dermatology University of Colorado School of Medicine  Aurora Colorado USA"},{"name":"Department of Pediatrics University of Colorado School of Medicine  Aurora Colorado USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lucia Z.","family":"Diaz","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Dell Medical School University of Texas at Austin  Austin Texas USA"},{"name":"Department of Medicine (Dermatology), Dell Medical School University of Texas at Austin  Austin Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristen P.","family":"Hook","sequence":"additional","affiliation":[{"name":"Department of Dermatology University of Minnesota  Minneapolis Minnesota USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3210-3413","authenticated-orcid":false,"given":"Irene","family":"Lara\u2010Corrales","sequence":"additional","affiliation":[{"name":"Division of Dermatology, Department of Pediatrics Hospital for Sick Children Dermatology  Toronto Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8605-0935","authenticated-orcid":false,"given":"Moise L.","family":"Levy","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Dell Medical School University of Texas at Austin  Austin Texas USA"},{"name":"Department of Medicine (Dermatology), Dell Medical School University of Texas at Austin  Austin Texas USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Harper N.","family":"Price","sequence":"additional","affiliation":[{"name":"Department of Dermatology Phoenix Children's Hospital  Phoenix Arizona USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kimberly D.","family":"Morel","sequence":"additional","affiliation":[{"name":"Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"},{"name":"Department of Dermatology Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"},{"name":"Department of Pediatrics Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9393-6585","authenticated-orcid":false,"given":"Laura E.","family":"Levin","sequence":"additional","affiliation":[{"name":"Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"},{"name":"Department of Dermatology Columbia University Vagelos College of Physicians and Surgeons  New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,9,5]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2020.06.083"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamadermatol.2018.4673"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018\u20102587"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/1054\u2010139x(93)90143\u2010d"},{"key":"e_1_2_9_6_1","unstructured":"Six Core Elements of Health Care Transition\u2122.Got Transition\u00ae. 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