{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T13:56:54Z","timestamp":1791381414142,"version":"4.3.3"},"reference-count":12,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T00:00:00Z","timestamp":1791331200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T00:00:00Z","timestamp":1791331200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Dermatology"],"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>\n                    Genodermatoses impose substantial psychosocial and functional burdens on affected children and their families, yet structured community\u2010based support models remain underrepresented in the literature. We describe\n                    <jats:italic>Casa Santa Teresinha<\/jats:italic>\n                    , a Brazilian non\u2010profit organization providing multidisciplinary care for children with genodermatoses and present a programmatic evaluation using the RE\u2010AIM framework (Reach, Effectiveness, Adoption, Implementation, and Maintenance). In 2025, the program engaged 103 patients and their families, delivering 4419 service encounters across psychology, social work, physiotherapy, genetic nursing, nutrition, and socioeducational activities. The model integrates individualized care planning, a genetic nurse acting as patient navigator, and innovative strategies to address social determinants of health, including rideshare\u2010based transportation as a clinical safety measure. Strong engagement and sustained participation highlight the program's relevance in a socioeconomically vulnerable population. While formal outcome measures are being implemented, this evaluation demonstrates a scalable, community\u2010based model that complements hospital care and may inform similar initiatives globally.\n                  <\/jats:p>","DOI":"10.1111\/pde.70368","type":"journal-article","created":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T13:25:24Z","timestamp":1791379524000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Multidisciplinary Support for Children With Genodermatoses in Brazil: A\n                    <scp>RE<\/scp>\n                    \u2010\n                    <scp>AIM<\/scp>\n                    Evaluation of Casa Santa Teresinha's Community\u2010Based Model"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1972-3922","authenticated-orcid":false,"given":"Izadora","family":"Lapenda","sequence":"first","affiliation":[{"name":"Rao Dermatology  New York New York USA"},{"name":"Harvard Division of Continuing Education  Cambridge Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alreem","family":"Al\u2010Nabti","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalia","family":"Campacci","sequence":"additional","affiliation":[{"name":"University of S\u00e3o Paulo Medical School  S\u00e3o Paulo S\u00e3o Paulo Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zilda Najjar Prado","family":"de Oliveira","sequence":"additional","affiliation":[{"name":"University of S\u00e3o Paulo Medical School  S\u00e3o Paulo S\u00e3o Paulo Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Luciana Paula","family":"Samorano","sequence":"additional","affiliation":[{"name":"University of S\u00e3o Paulo Medical School  S\u00e3o Paulo S\u00e3o Paulo Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5396-4362","authenticated-orcid":false,"given":"Lais Lopes Almeida","family":"Gomes","sequence":"additional","affiliation":[{"name":"Perelman School of Medicine University of Pennsylvania  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1924-4043","authenticated-orcid":false,"given":"Magda","family":"Carneiro\u2010Sampaio","sequence":"additional","affiliation":[{"name":"University of S\u00e3o Paulo Medical School  S\u00e3o Paulo S\u00e3o Paulo Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Regia","family":"Patriota","sequence":"additional","affiliation":[{"name":"University of S\u00e3o Paulo Medical School  S\u00e3o Paulo S\u00e3o Paulo Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,10,7]]},"reference":[{"issue":"6","key":"e_1_2_17_2_1","article-title":"Investigating the Prevalence, Gender Predilection, and Inheritance Patterns of Genodermatoses: A Tertiary Hospital Study","volume":"16","author":"Puttur N.","year":"2024","journal-title":"Cureus"},{"key":"e_1_2_17_3_1","doi-asserted-by":"crossref","first-page":"adv12404","DOI":"10.2340\/actadv.v103.12404","article-title":"Incidence and Prevalence of 73 Different Genodermatoses: A Nationwide Study in Sweden","volume":"103","author":"Zagoras T.","year":"2023","journal-title":"Acta Dermato\u2010Venereologica"},{"issue":"5","key":"e_1_2_17_4_1","doi-asserted-by":"crossref","first-page":"522","DOI":"10.3390\/genes16050522","article-title":"A Series of Patients With Genodermatoses in a Reference Service for Rare Diseases: Results From the Brazilian Rare Genomes Project","volume":"16","author":"Steiner C. 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