{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,21]],"date-time":"2025-11-21T17:54:51Z","timestamp":1763747691537,"version":"3.37.3"},"reference-count":24,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2017,12,27]],"date-time":"2017-12-27T00:00:00Z","timestamp":1514332800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100004319","name":"Pfizer","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004319","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatrics International"],"published-print":{"date-parts":[[2018,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Health\u2010related quality of life (<jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content>) is an important outcome in solid organ transplantation. This study evaluated and explored the factors of generic and transplant\u2010specific <jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content> in Japanese pediatric and adolescent patients with biliary atresia (<jats:styled-content style=\"fixed-case\">BA<\/jats:styled-content>) after living donor liver transplant (<jats:styled-content style=\"fixed-case\">LDLT<\/jats:styled-content>).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A cross\u2010sectional survey using anonymous questionnaires was completed between April and July 2015. Patient medical records were accessed. The Japanese version of Pediatric Quality of Life Inventory<jats:sup>TM<\/jats:sup> Generic Core Scales and Transplant Modules (child self\u2010report and parent proxy\u2010report) was administered.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Participants consisted of 75 patients (mean age at survey, 9.6 years) and 74 parents. Japanese patients reported higher generic and transplant\u2010specific <jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content> (total score) than that reported by <jats:styled-content style=\"fixed-case\">US<\/jats:styled-content> patients with <jats:styled-content style=\"fixed-case\">BA<\/jats:styled-content> after <jats:styled-content style=\"fixed-case\">LT<\/jats:styled-content> (<jats:styled-content style=\"fixed-case\">US<\/jats:styled-content> I; age at survey, 7.2 years) and by <jats:styled-content style=\"fixed-case\">US<\/jats:styled-content> patients after solid organ transplant (<jats:styled-content style=\"fixed-case\">US II<\/jats:styled-content>; age at survey, 11.3 years; <jats:styled-content style=\"fixed-case\">LT<\/jats:styled-content>, 53.8%; effect size, 0.55\u20130.96). Japanese parents, however, rated their children's generic <jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content> (total score) similar to that rated by the <jats:styled-content style=\"fixed-case\">US<\/jats:styled-content> I and <jats:styled-content style=\"fixed-case\">II<\/jats:styled-content> parents (0.13 and 0.30, respectively) and reported lower transplant\u2010specific <jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content> (total score) than that reported by <jats:styled-content style=\"fixed-case\">US II<\/jats:styled-content> (0.26). Although the number of types of prescribed drugs was a common factor in <jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content>, most demographic and medical factors (e.g. child's age at survey and consultation frequency) varied with reporter (i.e. patients and parents).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The levels and factors of generic and transplant\u2010specific <jats:styled-content style=\"fixed-case\">HRQOL<\/jats:styled-content> of Japanese pediatric and adolescent patients with <jats:styled-content style=\"fixed-case\">BA<\/jats:styled-content> after <jats:styled-content style=\"fixed-case\">LDLT<\/jats:styled-content> varied with reporter (i.e. patients or parents).<\/jats:p><\/jats:sec>","DOI":"10.1111\/ped.13442","type":"journal-article","created":{"date-parts":[[2017,10,25]],"date-time":"2017-10-25T07:36:34Z","timestamp":1508916994000},"page":"183-190","source":"Crossref","is-referenced-by-count":11,"title":["Quality of life after living donor liver transplant for biliary atresia in Japan"],"prefix":"10.1111","volume":"60","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1272-608X","authenticated-orcid":false,"given":"Ryota","family":"Kikuchi","sequence":"first","affiliation":[{"name":"Department of Family Nursing Division of Health Sciences and Nursing Graduate School of Medicine The University of Tokyo Tokyo Japan"},{"name":"Department of Transplant Surgery Jichi Medical University Shimotsuke City Tochigi Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Koichi","family":"Mizuta","sequence":"additional","affiliation":[{"name":"Department of Transplant Surgery Jichi Medical University Shimotsuke City Tochigi Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Taizen","family":"Urahashi","sequence":"additional","affiliation":[{"name":"Department of Transplant Surgery Jichi Medical University Shimotsuke City Tochigi Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yukihiro","family":"Sanada","sequence":"additional","affiliation":[{"name":"Department of Transplant Surgery Jichi Medical University Shimotsuke City Tochigi Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Naoya","family":"Yamada","sequence":"additional","affiliation":[{"name":"Department of Transplant Surgery Jichi Medical University Shimotsuke City Tochigi Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erika","family":"Onuma","sequence":"additional","affiliation":[{"name":"Center for Department of Transplantation and Regeneration Jichi Medical University Hospital Shimotsuke City Tochigi Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Iori","family":"Sato","sequence":"additional","affiliation":[{"name":"Department of Family Nursing Division of Health Sciences and Nursing Graduate School of Medicine The University of Tokyo Tokyo Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kiyoko","family":"Kamibeppu","sequence":"additional","affiliation":[{"name":"Department of Family Nursing Division of Health Sciences and Nursing Graduate School of Medicine The University of Tokyo Tokyo Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2017,12,27]]},"reference":[{"key":"e_1_2_8_2_1","first-page":"261","article-title":"Liver transplantation in Japan: Registry by the Japanese Liver Transplantation Society","volume":"49","author":"The Japanese Liver Transplantation Society","year":"2014","journal-title":"Jpn. 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