{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T15:09:42Z","timestamp":1777648182187,"version":"3.51.4"},"reference-count":40,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2019,12,19]],"date-time":"2019-12-19T00:00:00Z","timestamp":1576713600000},"content-version":"vor","delay-in-days":18,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatrics International"],"published-print":{"date-parts":[[2019,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Spina bifida (<jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>) is the second\u2010most common birth defect in Japan. In recent years, health\u2010related quality of life measurements have been used to assess the psychosocial status of children with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>. The Quality of Life Assessment of Spina Bifida in Teenagers (<jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T) is a self\u2010reported questionnaire for subjects aged 13\u201317\u00a0years with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>. It focuses particularly on factors related to independence, bladder and bowel. The purpose of this study was to develop and validate a Japanese version of <jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T (<jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T\u2010J).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Three urologists specialized in <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>, two nurses, one statistician, and the author of the original version developed the <jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T\u2010J. Subjects with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> completed the <jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T\u2010J and the Japanese version of <jats:styled-content style=\"fixed-case\">KIDSCREEN<\/jats:styled-content>\u201027 (J\u2010<jats:styled-content style=\"fixed-case\">KIDSCREEN<\/jats:styled-content>\u201027) independently from their parents.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A pilot study involving seven adolescents with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> and confirmed face and content validity. Sixty\u2010nine adolescents with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> participated in the main survey. The intraclass correlation coefficient in the retest was 0.77, and Cronbach's alpha in each domain was 0.83 and 0.79. Validity was verified on factor analysis and convergent\/divergent validity. Five items converged in the one domain, Bladder and Bowel. The remaining five items converged in the concept of Family and Independence. The correlation between each domain of the <jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T\u2010J and J\u2010<jats:styled-content style=\"fixed-case\">KIDSCREEN<\/jats:styled-content>\u201027 was low\u2013moderate.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The reliability and validity of the <jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T\u2010J were verified in Japanese adolescents with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content>. The <jats:styled-content style=\"fixed-case\">QUALAS<\/jats:styled-content>\u2010T\u2010J would be a useful tool for communication between adolescents with <jats:styled-content style=\"fixed-case\">SB<\/jats:styled-content> and medical staff.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ped.14003","type":"journal-article","created":{"date-parts":[[2019,9,5]],"date-time":"2019-09-05T14:29:06Z","timestamp":1567693746000},"page":"1232-1238","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Development and validation of the Japanese version of the Quality of Life Assessment of Spina Bifida in Teenagers (<scp>QUALAS<\/scp>\u2010T\u2010J)"],"prefix":"10.1111","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2521-2574","authenticated-orcid":false,"given":"Tae","family":"Kawahara","sequence":"first","affiliation":[{"name":"Division of Health Sciences Department of Pediatric and Family Nursing Graduate School of Medicine Osaka University Suita Osaka Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yoshifumi","family":"Sugita","sequence":"additional","affiliation":[{"name":"Department of Urology Kobe Children's Hospital Kobe Hyogo Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hitoshi","family":"Momose","sequence":"additional","affiliation":[{"name":"Department of Urology Japan Community Health\u2010care Organization Hoshigaoka Medical Center Hirakata Osaka Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Konrad M","family":"Szymanski","sequence":"additional","affiliation":[{"name":"Division of Pediatric Urology Riley Hospital for Children at Indiana University Health Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eisuke","family":"Hida","sequence":"additional","affiliation":[{"name":"Department of Biostatistics and Data Science Graduate School of Medicine Osaka University Suita Osaka Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Akemi","family":"Yamazaki","sequence":"additional","affiliation":[{"name":"Division of Health Sciences Department of Pediatric and Family Nursing Graduate School of Medicine Osaka University Suita Osaka Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2019,12,19]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.2188\/jea.JE20180014"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(04)17445-X"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0012162204000684"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-118-8-199304150-00009"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2009.02.060"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.ju.0000177730.12867.00"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsu098"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/10790268.2007.11754614"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.ajp.0000210929.43192.5d"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-200108000-00006"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291798006667"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017-3730"},{"key":"e_1_2_9_14_1","first-page":"134","article-title":"An instrument to measure the health status in children with hydrocephalus: The Hydrocephalus Outcome Questionnaire","volume":"101","author":"Kulkarni AV","year":"2004","journal-title":"J. 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