{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,7,30]],"date-time":"2025-07-30T12:32:56Z","timestamp":1753878776928,"version":"3.41.2"},"reference-count":23,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2022,6,21]],"date-time":"2022-06-21T00:00:00Z","timestamp":1655769600000},"content-version":"vor","delay-in-days":171,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatrics International"],"published-print":{"date-parts":[[2022,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Home mechanical ventilation (HMV) prolongs survival in patients with Duchenne muscular dystrophy (DMD) until \u00b135 years of age. This study evaluates the implementation of a HMV pilot project in children with DMD in Ukraine.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Children with DMD were invited to Kirovograd Regional Children\u2019s Clinical Hospital, Kropyvnytskyi, Ukraine, for 5 days\u2019 training with non\u2010invasive ventilation. Donated equipment comprised second\u2010hand Covidien PB560 ventilators from Belgium. Due to the absence of carbon dioxide pressure and pulse oximetry monitoring, indications for HMV included sleep\u2010related symptoms, restrictive lung function test, loss of ambulation for more than 1 year, or age greater than 17 years. Master class lectures on HMV were conducted for Ukrainian doctors in conjunction with patient training.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Twelve Ukrainian physicians took part in face\u2010to\u2010face master classes and 50 Ukrainian physicians participated in online master classes. Simultaneously, eight Duchenne inpatients, mean age 15.4 (SD: 1.8) years and body mass index 25.8 (SD: 4.0), were included in the study. All patients chose nasal masks and volume\u2010pressure\u2010assisted control mode. After 6 weeks, one patient stopped HMV, two others used HMV partially during sleep, and 5\/8 used nocturnal HMV increasingly with few complaints. Follow up via phone call was organized after hospitalization.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Implementation of HMV is feasible in DMD inpatients in Ukraine. In the short term, the Ukrainian parliament should recognize official centers for HMV, and define the funding policy of equipment for HMV, and its maintenance. Local distributors should deliver equipment for HMV and devices for monitoring carbon dioxide pressure and pulse oximetry in specialized centers for HMV.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ped.15225","type":"journal-article","created":{"date-parts":[[2022,4,29]],"date-time":"2022-04-29T08:26:02Z","timestamp":1651220762000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Mechanical ventilation in Duchenne muscular dystrophy: A pilot project in Ukraine"],"prefix":"10.1111","volume":"64","author":[{"given":"Anatolii","family":"Tsarenko","sequence":"first","affiliation":[{"name":"Palliative and Hospice Medicine Department Shupyk National Healthcare University of Ukraine  Kyiv Ukraine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Igor","family":"Trofimov","sequence":"additional","affiliation":[{"name":"Mobile Ambulatory Brigade of Palliative Care for Children  Kyiv Ukraine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andriy","family":"Shatillo","sequence":"additional","affiliation":[{"name":"Laboratory of Inherited Neuro\u2010Muscular Pathology of the State Enterprise \u201cInstitute of Neurology, Psychiatry and Narcology of the National Academy of Medical Sciences of Ukraine\u201d  Kharkiv Ukraine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dariia","family":"Kostiukova","sequence":"additional","affiliation":[{"name":"Department of Neonatology Shupyk National Healthcare University of Ukraine  Kyiv Ukraine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sergii","family":"Kobylinskyi","sequence":"additional","affiliation":[{"name":"Physical Therapy  Kyiv Ukraine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Svitlana","family":"Melnyk","sequence":"additional","affiliation":[{"name":"Educational Centre of Professional Education of Medical Staff Medical Clinics Verde  Kyiv 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