{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T10:38:19Z","timestamp":1785580699941,"version":"3.56.0"},"reference-count":27,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2014,12,12]],"date-time":"2014-12-12T00:00:00Z","timestamp":1418342400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100004324","name":"Astellas Pharma US","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004324","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatric Transplantation"],"published-print":{"date-parts":[[2015,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Adolescents with SOT demonstrate high rates of medication non\u2010adherence and higher rates of graft loss compared to all other age groups. Self\u2010management interventions encompass information\u2010based material designed to achieve disease\u2010related learning and changes in the participant's knowledge and skill acquisition, while providing social support. These interventions have had some success in chronic disease populations by reducing symptoms and promoting self\u2010efficacy and empowerment. Using findings from a needs assessment, an Internet\u2010based self\u2010management program, Teens Taking Charge: Managing My Transplant Online, for youth with SOT was developed. This program contains information on transplant, self\u2010management and transition skills, and opportunities for peer support. The purpose of this study was to determine the usability and acceptability of the initial three modules (Medication and Vaccines; Diet after Transplant; and Living with a Transplant Organ) of the online program from the perspectives of youth with SOT. Participants were recruited from SOT clinics at a large pediatric tertiary care center in Canada. Three iterative cycles (seven patients per iteration) of usability testing took place to refine the Web site prototype. Study procedures involved participants finding items from a standardized list of features and talking aloud about issues they encountered, followed by a semi\u2010structured interview to generate feedback about what they liked and disliked about the program. All 21 patients (mean age\u00a0=\u00a014.9\u00a0yr) found the Web site content to be trustworthy, they liked the picture content, and they found the videos of peer experiences to be particularly helpful. Participants had some difficulties finding information within submodules and suggested a more simplistic design with easier navigation. This web\u2010based intervention is appealing to teenagers and may foster improved self\u2010management with their SOT. Nine additional teen and two parent modules are being developed, and the completed Web site will undergo usability testing. In the future, a randomized control trial will determine the feasibility and effectiveness of this online self\u2010management program on adherence, self\u2010efficacy, and transition skills.<\/jats:p>","DOI":"10.1111\/petr.12396","type":"journal-article","created":{"date-parts":[[2014,12,12]],"date-time":"2014-12-12T07:13:18Z","timestamp":1418368398000},"page":"107-117","source":"Crossref","is-referenced-by-count":29,"title":["Usability testing of the Internet program: \u201cTeens Taking Charge: Managing My Transplant Online\u201d"],"prefix":"10.1111","volume":"19","author":[{"given":"M.","family":"Korus","sequence":"first","affiliation":[{"name":"Transplant and Regenerative Medicine Centre The Hospital for Sick Children Toronto ON Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"E.","family":"Cruchley","sequence":"additional","affiliation":[{"name":"Division of Nephrology The Hospital for Sick Children Toronto ON Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J. N.","family":"Stinson","sequence":"additional","affiliation":[{"name":"Child Heath Evaluative Sciences The Hospital for Sick Children Toronto ON Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Gold","sequence":"additional","affiliation":[{"name":"Transplant and Regenerative Medicine Centre The Hospital for Sick Children Toronto ON Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S. 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