{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T00:29:28Z","timestamp":1792024168767,"version":"4.4.0"},"reference-count":31,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2017,8,29]],"date-time":"2017-08-29T00:00:00Z","timestamp":1503964800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010090","name":"Women and Children's Health Research Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010090","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatric Transplantation"],"published-print":{"date-parts":[[2017,11]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>\n                    A\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    is a mechanical pump used to support the functioning of a failing heart. As a pediatric therapy, a\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    is used as a temporary solution for poor heart function, a bridge to transplantation or recovery, or a destination therapy. The goal of this qualitative study was to explore the perspectives of family and professional caregivers of children who are supported by\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    s in outpatient settings. Semi\u2010structured interviews were conducted with 22 caregivers of school\u2010aged children discharged home on\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    support. Interviews were transcribed, and data were analyzed using qualitative content analysis. Caregivers identified issues facing children on\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    support in the contexts of home, school, and other childhood places including being physically connected to a device; experiencing changes; living a medical life; negotiating restrictions; cost of care; family, kinship, and community; and, present and future living. While a child with a\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    may have much in common with other medically complex children, the technological complications and risks of living with a\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    are uniquely identified by caregivers as an issue, especially when considering the way that children with a\n                    <jats:styled-content style=\"fixed-case\">VAD<\/jats:styled-content>\n                    are connected to their device\u2014implanted yet exterior, mobile yet restricted, and autonomous yet dependent.\n                  <\/jats:p>","DOI":"10.1111\/petr.13049","type":"journal-article","created":{"date-parts":[[2017,8,31]],"date-time":"2017-08-31T04:05:21Z","timestamp":1504152321000},"source":"Crossref","is-referenced-by-count":18,"title":["Talking with caregivers of children living in the community with ventricular assist devices"],"prefix":"10.1111","volume":"21","author":[{"given":"Courtney","family":"Petruik","sequence":"first","affiliation":[{"name":"University of Alberta Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cheryl","family":"Mack","sequence":"additional","affiliation":[{"name":"University of Alberta Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Conway","sequence":"additional","affiliation":[{"name":"University of Alberta Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Holger","family":"Buchholz","sequence":"additional","affiliation":[{"name":"University of Alberta Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6070-0314","authenticated-orcid":false,"given":"Michael","family":"van Manen","sequence":"additional","affiliation":[{"name":"University of 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