{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,26]],"date-time":"2026-08-26T11:22:57Z","timestamp":1787743377691,"version":"build-2784847793"},"reference-count":51,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T00:00:00Z","timestamp":1785715200000},"content-version":"vor","delay-in-days":2,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000738","name":"U.S. Department of Veterans Affairs","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000738","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000862","name":"Doris Duke Charitable Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000862","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Transplantation"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Kidney transplant education promotes early partnership between children, caregivers, and clinicians by sharing information and fostering engagement to maximize outcomes. We evaluated educational materials' accessibility, alignment with shared priorities, and portrayal of life participation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We performed a content analysis of pediatric kidney transplant centers' educational materials to assess how they addressed 4 key priorities: kidney function, infection, survival, and life participation. We assessed printed materials' readability using Simple Measures of Gobbledygook and Flesch\u2013Kincaid tools and audiovisual materials' understandability and actionability using the Patient Education Materials Assessment Tool.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Of 73 centers approached, 23 (32% response) provided educational packets. Only 6 packets (26%) included materials targeted to children. Average reading grade level was high (SMOG 8.9\u2009\u00b1\u20091.7; Flesch\u2013Kincaid 9.5\u2009\u00b1\u20091.8), with only 1 packet written at sixth\u2010grade level. Audiovisual materials were not highly understandable or actionable. Among key priorities shared by children, caregivers, and clinicians, packets most frequently addressed infection, followed by kidney function, life participation, and survival. We identified 3 themes reflecting portrayal of the key priority of life participation: hope and caution\u2014a proactive, optimistic tone about certain aspects of life participation and cautious tempering of expectations for others; maximizing physical transplant benefits\u2014detailed guidance on physical activity, but limited attention to psychosocial well\u2010being; and being \u201cnormal\u201d\u2014a focus on restoring physical health while framing mental and emotional distress as potential threats to normalcy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>There are important opportunities to enhance transplant educational materials by tailoring content to children, increasing accessibility, and more consistently and comprehensively addressing concerns about life participation after transplant.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/petr.70421","type":"journal-article","created":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T07:55:02Z","timestamp":1785743702000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Aligning Words With What Matters: Evaluation of a Nationwide Sample of Pediatric Kidney Transplant Educational Materials"],"prefix":"10.1111","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9370-1890","authenticated-orcid":false,"given":"Taylor R.","family":"House","sequence":"first","affiliation":[{"name":"Department of Pediatrics University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Makayla A.","family":"Thomas","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0167-0420","authenticated-orcid":false,"given":"Aaron","family":"Wightman","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Washington  Seattle Washington USA"},{"name":"Seattle Children's Hospital  Seattle Washington USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly","family":"Helm","sequence":"additional","affiliation":[{"name":"Travere Therapeutics  San Diego California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2657-294X","authenticated-orcid":false,"given":"Ryan J.","family":"Coller","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5850-838X","authenticated-orcid":false,"given":"Ari","family":"Pollack","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Washington  Seattle Washington USA"},{"name":"Seattle Children's Hospital  Seattle Washington USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan P. 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