{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T12:58:01Z","timestamp":1790773081426,"version":"4.1.0"},"reference-count":25,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T00:00:00Z","timestamp":1790726400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T00:00:00Z","timestamp":1790726400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Pediatric Transplantation"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>There are clear legal and ethical requirements for informed consent in pediatric kidney transplantation. While much is done pre\u2010transplant to educate patients and families on the risks and benefits of transplantation and its associated medical therapies, it can be difficult to truly prepare them for the transformative nature of the transplant\u2010 how it will change their lives, their families' lives, and their view of themselves and their world. Using the lens of \u201ctransformative experiences\u201d as described by philosopher L.A. Paul, we describe the transformative nature of pediatric kidney transplantation. We encourage the health care team to acknowledge this transformative experience, and outline practical strategies including shared decision making and patient and family engagement to help communicate with families undergoing this transformation, both before and after pediatric kidney transplantation.<\/jats:p>","DOI":"10.1111\/petr.70477","type":"journal-article","created":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T12:06:55Z","timestamp":1790770015000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Vampire Problems in Pediatric Kidney Transplantation\u2010Navigating Transformative Experiences and Informed Consent"],"prefix":"10.1111","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7978-4773","authenticated-orcid":false,"given":"Vanessa","family":"Thiel","sequence":"first","affiliation":[{"name":"McGaw Medical Center Northwestern University  Chicago Illinois USA"},{"name":"Ann &amp; Robert H Lurie Children's Hospital of Chicago  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7677-4104","authenticated-orcid":false,"given":"Aviva","family":"Goldberg","sequence":"additional","affiliation":[{"name":"Max Rady College of Medicine University of Manitoba  Winnipeg MB Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,30]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600\u20106143.2007.01780.x"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600\u20106143.2008.02410.x"},{"key":"e_1_2_10_4_1","unstructured":"American Society of Transplantation \u201cPediatric Kidney Transplantation: A Guide for Patients and Families \u201d(2015) 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