{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T09:19:49Z","timestamp":1783502389213,"version":"3.55.0"},"reference-count":20,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2024,4,26]],"date-time":"2024-04-26T00:00:00Z","timestamp":1714089600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100009633","name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development","doi-asserted-by":"publisher","award":["DP5\u2010OD033415;R01\u2010HD086742"],"award-info":[{"award-number":["DP5\u2010OD033415;R01\u2010HD086742"]}],"id":[{"id":"10.13039\/100009633","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000052","name":"NIH Office of the Director","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000052","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Paediatric Perinatal Epid"],"published-print":{"date-parts":[[2024,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>On June 24th, 2022, the United States (US) Supreme Court's ruling in <jats:italic>Dobbs v. Jackson<\/jats:italic>, et\u00a0al. (hereafter, the <jats:italic>Dobbs<\/jats:italic> decision) removed federal\u2010level protections for induced abortion, sparking concerns about reproductive rights and health privacy. Although other pregnancy outcomes (e.g. spontaneous abortion, ectopic pregnancy) are not explicit targets of post\u2010<jats:italic>Dobbs<\/jats:italic> abortion bans, study participants may be worried about how their reproductive health data are used by researchers in the post\u2010Dobbs era.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To evaluate the extent to which the <jats:italic>Dobbs<\/jats:italic> decision influenced participant's engagement in a preconception cohort study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We leveraged data spanning 20\u2009weeks before and after the <jats:italic>Dobbs<\/jats:italic> decision (4 February 2022, to 11 November 2022) from US participants in Pregnancy Study Online (PRESTO), an internet\u2010based prospective preconception cohort study of couples attempting conception. We categorised participants' state\u2010level abortion access by residential location: banned or restricted rights; limited access; and protected rights. We evaluated three participant engagement outcomes: follow\u2010up questionnaire completion; report of a pregnancy; and clicking on the invitation link for a fertility\u2010tracking app. We fit separate linear regression models and restricted cubic splines to compare outcome prevalence before and after the <jats:italic>Dobbs<\/jats:italic> decision by state\u2010level abortion category.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 585 newly enrolled participants and 1247 already\u2010enrolled participants received 2802 invitations to complete a follow\u2010up questionnaire. In states with limited or protected abortion rights, we observed little change in participant engagement. In states with banned or restricted abortion rights, however, we observed a 27.12 percentage point reduction (95% confidence interval \u221243.68, \u221210.51) in the prevalence of clicking on the invitation link for the fertility\u2010tracking app comparing the post\u2010 versus pre\u2010<jats:italic>Dobbs<\/jats:italic> periods.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>There was some evidence of reduced participant engagement after the <jats:italic>Dobbs<\/jats:italic> decision in states with banned or restricted abortion rights, indicating potentially deleterious effects on the conduct of reproductive health studies.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ppe.13080","type":"journal-article","created":{"date-parts":[[2024,4,26]],"date-time":"2024-04-26T11:44:52Z","timestamp":1714131892000},"page":"627-634","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Evaluating participant engagement in a preconception cohort study in relation to the <i>Dobbs<\/i> decision"],"prefix":"10.1111","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0247-7983","authenticated-orcid":false,"given":"Mary D.","family":"Willis","sequence":"first","affiliation":[{"name":"Department of Epidemiology Boston University School of Public Health  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Molly N.","family":"Hoffman","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Boston University School of Public Health  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tanran R.","family":"Wang","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Boston University School of Public Health  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erika L.","family":"Sabbath","sequence":"additional","affiliation":[{"name":"Boston College School of Social Work  Chestnut Hill Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea S.","family":"Kuriyama","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Boston University School of Public Health  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3929-4451","authenticated-orcid":false,"given":"Amelia K.","family":"Wesselink","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Boston University School of Public Health  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2138-3752","authenticated-orcid":false,"given":"Lauren A.","family":"Wise","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Boston University School of Public Health  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,4,26]]},"reference":[{"key":"e_1_2_13_2_1","unstructured":"ThomasE.Dobbs State Health Officer of the Mississippi Department of Health et\u00a0al. v. Jackson Women's Health Organization et\u00a0al. U.S. Supreme Court; 2022. Accesed June 8 2023.https:\/\/www.supremecourt.gov\/opinions\/21pdf\/19\u20101392_6j37.pdf"},{"key":"e_1_2_13_3_1","unstructured":"Guttmacher Institute.100\u2009Days post\u2010roe: at least 66 clinics across 15 US states have stopped offering abortion care. 2022. Accessed January 23 2024.https:\/\/www.guttmacher.org\/2022\/10\/100\u2010days\u2010post\u2010roe\u2010least\u201066\u2010clinics\u2010across\u201015\u2010us\u2010states\u2010have\u2010stopped\u2010offering\u2010abortion\u2010care"},{"key":"e_1_2_13_4_1","unstructured":"GersteinJ WardA.Exclusive: Supreme Court has voted to overturn abortion rights draft opinion shows. POLITICO. 2022. Accessed October 13 2023.https:\/\/www.politico.com\/news\/2022\/05\/02\/supreme\u2010court\u2010abortion\u2010draft\u2010opinion\u201000029473"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2022.19172"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.o1206"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1126\/sciadv.ade5327"},{"issue":"6","key":"e_1_2_13_8_1","first-page":"1233","article-title":"Femtechnodystopia","volume":"75","author":"Fowler L","year":"2023","journal-title":"Stanford Law Rev"},{"key":"e_1_2_13_9_1","unstructured":"MorrisonS.Should I delete my period app? And other post\u2010Roe privacy questions vox. 2022. Accessed June 7 2023.https:\/\/www.vox.com\/recode\/2022\/7\/6\/23196809\/period\u2010apps\u2010roe\u2010dobbs\u2010data\u2010privacy\u2010abortion"},{"key":"e_1_2_13_10_1","unstructured":"TorchinskyR.How period tracking apps and data privacy fit into a post\u2010Roe v. Wade climate.NPR. Accessed June 7 2023.https:\/\/www.npr.org\/2022\/05\/10\/1097482967\/roe\u2010v\u2010wade\u2010supreme\u2010court\u2010abortion\u2010period\u2010apps"},{"key":"e_1_2_13_11_1","unstructured":"WrightJ VazquezM.White house says Americans should be \u201creally careful\u201d about using period tracker apps.CNN. Accessed June 7 2023.https:\/\/www.cnn.com\/2022\/07\/08\/politics\/white\u2010house\u2010period\u2010tracker\u2010apps\/index.html"},{"key":"e_1_2_13_12_1","unstructured":"Human rights crisis: abortion in the United States after Dobbs.Human Rights Watch. Accessed June 9 2023.https:\/\/www.hrw.org\/news\/2023\/04\/18\/human\u2010rights\u2010crisis\u2010abortion\u2010united\u2010states\u2010after\u2010dobbs"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2023.52109"},{"key":"e_1_2_13_14_1","unstructured":"GrossmanD JoffeC KallerS et\u00a0al.Care post\u2010Roe: documenting cases of poor\u2010quality care since the Dobbs decision. University of California San Francisco; 2023. Accessed February 26 2024.https:\/\/www.ansirh.org\/sites\/default\/files\/2023\u201005\/Care%20Post\u2010Roe%20Preliminary%20Findings.pdf"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/13698575.2015.1127333"},{"key":"e_1_2_13_16_1","doi-asserted-by":"crossref","unstructured":"CaoJ LaabadliH MathisC SternR Emami\u2010NaeiniP.\u201cI deleted it after the overturn of Roe v. Wade\u201d: understanding women's privacy concerns toward period\u2010tracking apps in the post Roe v. Wade era.CHI Conference on Human Factors in Computing Systems(CHI '24). 2024. doi:10.1145\/3613904.3642042","DOI":"10.1145\/3613904.3642042"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1126\/science.adh3104"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/ppe.12201"},{"key":"e_1_2_13_19_1","unstructured":"Tracking abortion bans across the country.The New York Times. Accessed August 9 2023.https:\/\/www.nytimes.com\/interactive\/2022\/us\/abortion\u2010laws\u2010roe\u2010v\u2010wade.html"},{"key":"e_1_2_13_20_1","unstructured":"American College of Obstetrics and Gynecologists.Early pregnancy loss. 2021. Accessed September 5 2023.https:\/\/www.acog.org\/clinical\/clinical\u2010guidance\/practice\u2010bulletin\/articles\/2018\/11\/early\u2010pregnancy\u2010loss"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1080\/26410397.2022.2135574"}],"container-title":["Paediatric and Perinatal Epidemiology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/ppe.13080","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,26]],"date-time":"2024-09-26T13:51:34Z","timestamp":1727358694000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/ppe.13080"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,4,26]]},"references-count":20,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2024,9]]}},"alternative-id":["10.1111\/ppe.13080"],"URL":"https:\/\/doi.org\/10.1111\/ppe.13080","archive":["Portico"],"relation":{},"ISSN":["0269-5022","1365-3016"],"issn-type":[{"value":"0269-5022","type":"print"},{"value":"1365-3016","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,4,26]]},"assertion":[{"value":"2023-10-16","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-04-12","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-04-26","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}