{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,2]],"date-time":"2025-08-02T16:19:27Z","timestamp":1754151567323,"version":"3.41.2"},"reference-count":13,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,2,18]],"date-time":"2025-02-18T00:00:00Z","timestamp":1739836800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Paediatric Perinatal Epid"],"published-print":{"date-parts":[[2025,5]]},"abstract":"ABSTRACT<\/jats:title>Background<\/jats:title>The New South Wales (NSW) and Australian Capital Territory (ACT) Cerebral Palsy (CP) Register is a database of clinical and demographic information from children with CP. A child with CP resulting from an insult to the developing brain sustained between 29\u2009days and 2\u2009years of age is classified as having post\u2010neonatally acquired CP (PNN\u2010CP). In clinical services, children may meet the criteria and timing for PNN\u2010CP but have a singular diagnosis of acquired\/traumatic brain injury.<\/jats:p><\/jats:sec>Objectives<\/jats:title>To implement and evaluate a new CP register ascertainment strategy focused on identifying children with PNN\u2010CP attending acquired brain injury rehabilitation services.<\/jats:p><\/jats:sec>Methods<\/jats:title>Electronic medical records of children with an acquired brain injury attending the Sydney Children's Hospitals Network and John Hunter Hospital rehabilitation departments 2019\u20132024 were reviewed by researchers and rehabilitation paediatricians to identify children with PNN\u2010CP. Children who fulfilled the criteria for CP were invited to participate in the CP Register. To evaluate this ascertainment strategy, we (i) ran descriptive statistics to analyse proportional changes of children with PNN\u2010CP on the register and (ii) calculated temporal trends in prevalence per 10,000 live births for birth years 2003\u20132016, before and after the record ascertainment period.<\/jats:p><\/jats:sec>Results<\/jats:title>Of 1051 children with an acquired brain injury, 46 had PNN\u2010CP (2003\u20132019) and had not previously been included on the register. This ascertainment strategy resulted in increased prevalence of PNN\u2010CP in all 2\u2010year time points between 2003 and 2016 and equated to a 31% improvement in ascertainment of children with PNN\u2010CP on the register.<\/jats:p><\/jats:sec>Conclusions<\/jats:title>Ascertainment of children with PNN\u2010CP for the NSW\/ACT CP Register has been improved by systematically reviewing children with an acquired brain injury. This is now part of standard practice, and other registers should consider whether this strategy may improve ascertainment of PNN\u2010CP in their regions.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ppe.70002","type":"journal-article","created":{"date-parts":[[2025,2,18]],"date-time":"2025-02-18T23:18:07Z","timestamp":1739920687000},"page":"350-355","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Improving Register Ascertainment of Children With Post\u2010Neonatally Acquired Cerebral Palsy Through Health Service Partnerships"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8027-6183","authenticated-orcid":false,"given":"Emma","family":"Waight","sequence":"first","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adrienne","family":"Epps","sequence":"additional","affiliation":[{"name":"Rehab2Kids, Sydney Children's Hospital Sydney Children's Hospital Network Randwick New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hayley","family":"Smithers\u2010Sheedy","sequence":"additional","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shona","family":"Goldsmith","sequence":"additional","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sue","family":"Woolfenden","sequence":"additional","affiliation":[{"name":"Central Clinical School, Sydney Medical School University of Sydney Sydney New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Simon","family":"Paget","sequence":"additional","affiliation":[{"name":"The Children's Hospital at Westmead Sydney Children's Hospitals Network Westmead New South Wales Australia"},{"name":"Faculty of Medicine and Health, the Children's Hospital at Westmead Clinical School University of Sydney Sydney New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kerry","family":"Hanns","sequence":"additional","affiliation":[{"name":"Rehab2Kids, Sydney Children's Hospital Sydney Children's Hospital Network Randwick New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kylie","family":"French","sequence":"additional","affiliation":[{"name":"Rehab2Kids, Sydney Children's Hospital Sydney Children's Hospital Network Randwick New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Heather","family":"Burnett","sequence":"additional","affiliation":[{"name":"HNEkidsRehab John Hunter Children's Hospital New Lambton Heights New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna","family":"Ward","sequence":"additional","affiliation":[{"name":"Rehab2Kids, Sydney Children's Hospital Sydney Children's Hospital Network Randwick New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Shaw","sequence":"additional","affiliation":[{"name":"HNEkidsRehab John Hunter Children's Hospital New Lambton Heights New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karen","family":"Bau","sequence":"additional","affiliation":[{"name":"The Children's Hospital at Westmead Sydney Children's Hospitals Network Westmead New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Leanne","family":"Diviney","sequence":"additional","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Georgina","family":"Henry","sequence":"additional","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nadia","family":"Badawi","sequence":"additional","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"},{"name":"Grace Centre for Newborn Care, the Children's Hospital at Westmead, Specialty of Child & Adolescent Health The University of Sydney Westmead New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria","family":"Kyriagis","sequence":"additional","affiliation":[{"name":"Rehab2Kids, Sydney Children's Hospital Sydney Children's Hospital Network Randwick New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0234-1541","authenticated-orcid":false,"given":"Sarah","family":"McIntyre","sequence":"additional","affiliation":[{"name":"Cerebral Palsy Alliance\/Research Institute, Specialty of Child & Adolescent Health, the University of Sydney Camperdown New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,2,18]]},"reference":[{"doi-asserted-by":"publisher","key":"e_1_2_10_2_1","DOI":"10.1111\/j.1469-8749.2007.tb12610.x"},{"volume-title":"Australian Cerebral Palsy Register Report 2023 \u2013 Birth Years 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(2024) https:\/\/cpregister.com\/.","key":"e_1_2_10_4_1"},{"doi-asserted-by":"publisher","key":"e_1_2_10_5_1","DOI":"10.1016\/j.jnn.2017.11.017"},{"volume-title":"Encyclopedia of Infant and Early Childhood Development","year":"2020","author":"Spittle A. 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