{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T20:59:30Z","timestamp":1787691570798,"version":"build-2784847793"},"reference-count":32,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2023,3,22]],"date-time":"2023-03-22T00:00:00Z","timestamp":1679443200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100003478","name":"Ministry of Health, Labour and Welfare","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003478","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Respirology"],"published-print":{"date-parts":[[2023,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background and Objective<\/jats:title><jats:p>Interstitial lung disease (ILD) is progressive with high symptom burdens and poor prognosis. Patients with ILD need optimal palliative care to maintain their quality of life, however, few nationwide surveys have addressed palliative care for ILD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A nationwide, self\u2010administered questionnaire was conducted. Questionnaires were sent by mail to pulmonary specialists certified by the Japanese Respiratory Society (<jats:italic>n<\/jats:italic>\u00a0=\u00a03423). The current practices of PC for ILD, end\u2010of\u2010life communication, referral to a PC team, barriers to PC for ILD, and comparison of PC between ILD and lung cancer (LC).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>1332 (38.9%) participants completed the questionnaire, and the data of 1023 participants who had cared for ILD patients in the last year were analysed. Most participants reported that ILD patients often or always complained of dyspnoea and cough, but only 25% had referred them to a PC team. The timing of end\u2010of\u2010life communication tended to be later than the physician\u2010perceived ideal timing. The participants experienced significantly greater difficulty in symptomatic relief and decision\u2010making in PC for ILD compared to LC. Prescription of opioids for dyspnoea was less frequent for ILD than for LC. ILD\u2010specific barriers in PC included an \u2018inability to predict prognosis\u2019, \u2018lack of established treatments for dyspnoea\u2019, \u2018shortage of psychological and social support\u2019, and \u2018difficulty for patients\/families to accept the disease's poor prognosis\u2019.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Pulmonary specialists experienced more difficulty in providing PC for ILD compared to LC and reported considerable ILD\u2010specific barriers in PC. Multifaceted clinical studies are needed to develop optimal PC for ILD.<\/jats:p><\/jats:sec>","DOI":"10.1111\/resp.14493","type":"journal-article","created":{"date-parts":[[2023,3,23]],"date-time":"2023-03-23T03:11:10Z","timestamp":1679541070000},"page":"659-668","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Palliative care for interstitial lung disease: A nationwide survey of pulmonary specialists"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8809-1781","authenticated-orcid":false,"given":"Tomoyuki","family":"Fujisawa","sequence":"first","affiliation":[{"name":"Second Division, Department of Internal Medicine Hamamatsu University School of Medicine  1\u201020\u20101 Handayama Higashi\u2010ku Hamamatsu 431\u20103192 Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Norimichi","family":"Akiyama","sequence":"additional","affiliation":[{"name":"Department of Pulmonary Medicine Fujieda Municipal General Hospital  4\u20101\u201011 Surugadai Fujieda 426\u20108677 Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tatsuya","family":"Morita","sequence":"additional","affiliation":[{"name":"Palliative and Supportive Care Division Seirei Mikahahara General Hospital  3453 Mikatahara, Kita\u2010ku Hamamatsu 433\u20108558 Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6098-0918","authenticated-orcid":false,"given":"Takafumi","family":"Koyauchi","sequence":"additional","affiliation":[{"name":"Second Division, Department of Internal Medicine Hamamatsu University School of Medicine  1\u201020\u20101 Handayama Higashi\u2010ku Hamamatsu 431\u20103192 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