{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,23]],"date-time":"2026-06-23T22:26:22Z","timestamp":1782253582493,"version":"3.54.5"},"reference-count":28,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2021,7,26]],"date-time":"2021-07-26T00:00:00Z","timestamp":1627257600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Special Care in Dentistry"],"published-print":{"date-parts":[[2022,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aims<\/jats:title><jats:p>Motor Neuron Disease (MND) is a progressive neurodegenerative neuromuscular disease, which can progressively impair arm\u2010hand function. Needs and barriers of MND patients and their caregivers in performing oral hygiene were studied.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>An online survey was sent to 706 MND patients. The questions of the survey included self\u2010reliance, self\u2010reported oral health, and oral hygiene. The oral health\u2010related quality of life (GOHAI\u2010NL) and the subjective well\u2010being (ALSAQ\u20105) were also measured.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 259 patients responded (36.7%), of which 71.9% stated not to be informed about the importance of maintaining good oral health by their MND treatment team. Moreover, 40.4% would like to receive help concerning oral hygiene from a dental professional. 19.8% were not satisfied about oral care as conducted by themselves or their caregivers. Patients who do not ask for support with their daily oral care had a significantly worse oral health\u2010related quality of life compared to patients who do ask for support.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The support for daily oral hygiene of MND patients and their barriers to requesting support needs more attention from both MND\u2010treatment teams and general dental professionals.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scd.12636","type":"journal-article","created":{"date-parts":[[2021,7,26]],"date-time":"2021-07-26T18:55:05Z","timestamp":1627325705000},"page":"9-14","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Oral hygiene in patients with motor neuron disease requires attention: A cross\u2010sectional survey study"],"prefix":"10.1111","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8781-6349","authenticated-orcid":false,"given":"Berthe A.M.","family":"Makizodila","sequence":"first","affiliation":[{"name":"Department of Preventive Dentistry Academic Centre for Dentistry Amsterdam (ACTA) University of Amsterdam &amp; Vrije Universiteit Amsterdam  Amsterdam The Netherlands"},{"name":"Center for Special Dental Care (SBT)  Amsterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johanna H.E.","family":"van de Wijdeven","sequence":"additional","affiliation":[{"name":"Department of Preventive Dentistry Academic Centre for Dentistry Amsterdam (ACTA) University of Amsterdam &amp; Vrije Universiteit Amsterdam  Amsterdam The Netherlands"},{"name":"Vogellanden Center for Special Dental Care  Zwolle The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johannes J.","family":"de Soet","sequence":"additional","affiliation":[{"name":"Department of Preventive Dentistry Academic Centre for Dentistry Amsterdam (ACTA) University of Amsterdam &amp; Vrije Universiteit Amsterdam  Amsterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maurits K.A.","family":"van Selms","sequence":"additional","affiliation":[{"name":"Department of Orofacial Pain and Dysfunction Academic Centre for Dentistry Amsterdam (ACTA) University of Amsterdam &amp; Vrije Universiteit Amsterdam  Amsterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4049-2914","authenticated-orcid":false,"given":"Catherine M.C.","family":"Volgenant","sequence":"additional","affiliation":[{"name":"Department of Preventive Dentistry Academic Centre for Dentistry Amsterdam (ACTA) University of Amsterdam &amp; Vrije Universiteit Amsterdam  Amsterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,7,26]]},"reference":[{"key":"e_1_2_6_2_1","first-page":"1","article-title":"Amyotrophic lateral sclerosis: an update for 2018","author":"Oskarsson B","year":"2018","journal-title":"Mayo Clin Proc"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.5177\/ntvt.2010.08.10122"},{"key":"e_1_2_6_4_1","article-title":"ALS Centrum Nederland","author":"Van den Berg L","journal-title":"Retrieved from"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000258551.96893.6f"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/00016357.2016.1276212"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(10)61156-7"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-008-0738-5"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.4103\/2231-0762.175408"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.25058"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.11607\/ofph.1882"},{"key":"e_1_2_6_12_1","volume-title":"Prospectieve ALS studie Nederland (PAN). 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