{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T06:49:08Z","timestamp":1791614948509,"version":"4.3.4"},"reference-count":58,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T00:00:00Z","timestamp":1791504000000},"content-version":"vor","delay-in-days":38,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Special Care in Dentistry"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Epidermolysis Bullosa (EB) is a rare skin disorder with significant phenotypic variations according to the primary type and subtype of the condition. As a rare disease with uncommon oral features and high phenotypic variability, identifying all characteristics is important to define a patient\u2010specific treatment strategy and monitor the impact of different strategies on the oral outcomes. This project aims to develop and validate an EB\u2010specific oral health assessment tool that helps clinicians to identify every specific oral feature that can be presented in patients with different types of EB, and aids in monitoring these features in time.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Materials and Methods<\/jats:title>\n                    <jats:p>Literature review and instrument development were conducted using the World Health Organization Oral Health Assessment Form as a reference. A first advisory panel provided preliminary feedback, and a second panel was used to validate content through an online form. Content Validity Index (CVI), Item CVI (I\u2010CVI), Scale\u2010CVI (S\u2010CVI), Universal Agreement (UA), and a modified Kappa value (K*) were calculated.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The instrument: Epidermolysis Bullosa\u2014Oral Health Assessment Form (EB\u2010OHAF) and its Appendix 1: Orthodontic Assessment were developed. The first draft considered assessing 30 domains. The validation process revealed that 28 domains had an I\u2010CVI = 1, while domain #XIX (Emergency intervention) had an I\u2010CVI of 0.875, and domain #XXIII (History of oral ulcers) an I\u2010CVI of 0.5; S\u2010CVI\/Ave = 0.979 and S\u2010CVI\/UA = 0.93. Universal Agreement was reached in 28 domains (K* = 1), while domain #XIX presented a K* = 0.87, and domain #XXIII showed a K* = 0.312. Therefore, domain #XXIII (History of oral ulcers) was removed from the instrument. The final version of the EB\u2010OHAF includes a total of 29 domains. The final assessment form and a clinical example are provided.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The new Epidermolysis Bullosa\u2014Oral Health Assessment Form and the Orthodontic Assessment appendix showed strong content validity and can be applied to patients with all types of EB.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/scd.70275","type":"journal-article","created":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T06:13:26Z","timestamp":1791612806000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Development and Content Validation of the Epidermolysis Bullosa Oral Health Assessment Form (EB\u2010OHAF)"],"prefix":"10.1111","volume":"46","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1893-3007","authenticated-orcid":false,"given":"Sebasti\u00e1n","family":"V\u00e9liz","sequence":"first","affiliation":[{"name":"Department of Periodontology Dental Clinic Sigmund Freud University  Vienna Austria"},{"name":"Special Care Dentistry Unit Facultad de Odontolog\u00eda Universidad de Chile Santiago Chile"},{"name":"Medical\u2010Surgical Dentistry Research Group Health Research Institute of Santiago de Compostela School of Medicine and Dentistry Santiago de Compostela University Santiago de Compostela Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-7966-2707","authenticated-orcid":false,"given":"Colomba","family":"Besa\u2010Witto","sequence":"additional","affiliation":[{"name":"Special Care Dentistry Unit Facultad de Odontolog\u00eda Universidad de Chile Santiago Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susanne","family":"Kr\u00e4mer","sequence":"additional","affiliation":[{"name":"Special Care Dentistry Unit Facultad de Odontolog\u00eda Universidad de Chile Santiago Chile"},{"name":"Department of Dermatology Medical Faculty and Medical Centre University of Freiburg  Freiburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,10,9]]},"reference":[{"key":"e_1_2_12_2_1","volume-title":"Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry","author":"National Epidermolysis Bullosa Registry (U.S.)","year":"1999"},{"key":"e_1_2_12_3_1","doi-asserted-by":"crossref","unstructured":"C.Has J. W.Bauer C.Bodemer et\u00a0al. \u201cConsensus Reclassification of Inherited Epidermolysis Bullosa and Other Disorders with Skin Fragility \u201dBritish Journal of Dermatology183 no.4(2020): bjd.18921 https:\/\/doi.org\/10.1111\/bjd.18921.","DOI":"10.1111\/bjd.18921"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/scd.12511"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/0030\u20104220(77)90078\u20100"},{"issue":"3","key":"e_1_2_12_6_1","doi-asserted-by":"crossref","first-page":"111","DOI":"10.1111\/j.1754-4505.2006.tb01433.x","article-title":"Dystrophic Epidermolysis Bullosa: Oral Findings and Problems","volume":"26","author":"Azrak B.","year":"2006","journal-title":"Special Care in Dentistry\u00a0: Official Publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped and the American Society for Geriatric Dentistry"},{"issue":"4","key":"e_1_2_12_7_1","doi-asserted-by":"crossref","first-page":"490","DOI":"10.1016\/0030-4220(76)90296-6","article-title":"Hereditary Epidermolysis Bullosa: Oral Manifestations and Dental Therapy","volume":"42","author":"Crawford E. 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