{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,6]],"date-time":"2026-02-06T21:41:44Z","timestamp":1770414104523,"version":"3.49.0"},"reference-count":48,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2017,9,4]],"date-time":"2017-09-04T00:00:00Z","timestamp":1504483200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Dise\u00f1o de una v\u00eda cl\u00ednica de patolog\u00edas cr\u00f3nicas como la hipertensi\u00f3n arterial y la enfermedad de Crohn. Orientaci\u00f3n a la gesti\u00f3n de procesos","award":["704753085-53085-45-514"],"award-info":[{"award-number":["704753085-53085-45-514"]}]},{"name":"Ministerio\u00a0de Econom\u00eda y Competittividad orientada a los Retos de la\u00a0Sociedad"},{"name":"ISCIII-Subdirecci\u00f3n General de Evaluaci\u00f3n y Fomento de la investigaci\u00f3n\u00a0el Fondo Europeo de Desarrollo Regional (FEDER)"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2018,3]]},"abstract":"<jats:sec><jats:title>Background and objectives<\/jats:title><jats:p>People affected by Crohn's disease must adapt their lives to their new chronic condition, and therefore, understanding such experience can be helpful in planning effective interventions for the affected ones. The aim of this study was to gain an insight into such experience and how they adapted in different areas of their lives, particularly in a family\u2010centred culture such as the Spanish one.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A descriptive phenomenological study was conducted through in\u2010depth interviews to 19 people diagnosed of Crohn's disease in the province of Alicante (Spain). Once the interviews were transcribed, data were analysed using Colaizzi's seven\u2010step method.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Five emergent themes were identified: self\u2010protection against the unknown cause; self\u2010training; learning to live with Crohn's disease; perceived losses associated to Crohn's disease; and relationship with others. The results portrayed a chronically ill patient who is unconscious about the chronicity and consequently must develop strategies to keep living a similar life like the one lived before.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This study revealed that people affected by Crohn's disease struggle with the fact of being a chronic patient with uncertainty about the illness and need to learn living with a chronic condition that limits their daily lives. Furthermore, the lack of Crohn's disease a professional in charge of these people's Cares such as the specific nursing role existing in other countries support in the Spanish Health System determines the loneliness those diagnosed experience to cope with the new situation.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.12469","type":"journal-article","created":{"date-parts":[[2017,9,4]],"date-time":"2017-09-04T14:56:41Z","timestamp":1504537001000},"page":"354-362","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["Understanding life experiences of people affected by Crohn's disease in Spain. 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