{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,3]],"date-time":"2026-04-03T21:10:08Z","timestamp":1775250608418,"version":"3.50.1"},"reference-count":31,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2018,10,15]],"date-time":"2018-10-15T00:00:00Z","timestamp":1539561600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Swedish Research Council for Health, Working Life and Welfare, the Thure Carlsson foundation and the Hainska foundations"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2019,3]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>In recent years, survival after lung transplantation has remained largely unchanged despite improvements in short\u2010and intermediate\u2010term survival, indicating the need to identify factors associated with recovery and long\u2010term survival. Very little is known about how lung recipients recover after lung transplantation and whether such factors are related to symptom distress and well\u2010being. This constitutes the rationale of the study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>The aim was to explore symptom prevalence and distress as well as the degree of self\u2010reported perceived recovery and well\u2010being 1\u20135 years after adult lung transplantation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>This multicentre, cross\u2010sectional nationwide study includes 117 lung recipients due for follow\u2010up at 1 year (n = 35), 2 years (n = 28), 3 years (n = 23), 4 years (n = 20) and 5 years (n = 11). Three different self\u2010assessment instruments were utilised; The Postoperative Recovery Profile, the Organ Transplant Symptom and Well\u2010Being Instrument, and the Psychological General Well\u2010Being Instrument. Ethical approval of the study was obtained.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Few (5.7%) lung recipients were recovered 1\u20135 years after lung transplantation and 27.6% were not recovered at all. No relationship was identified between present lung function and self\u2010reported recovery or well\u2010being. There was a strong relationship between recovery and well\u2010being. It is possible to be partly recovered and experience good health. The most prevalent symptoms were tremor 66%, breathlessness 62%, and decreased libido 60%, while the symptoms perceived as most distressing were embarrassment about appearance, decreased libido, and poor appetite.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Limitations<\/jats:title>\n                    <jats:p>The cross\u2010sectional design prevents identification of any causal relationships. Patient loss due to transplant mortality and inclusion difficulties resulted in a fairly small sample.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Our findings suggest the need for changes in follow\u2010up care such as systematic measurement of the degree of self\u2010reported recovery and symptoms. This entails self\u2010management support tailored to the recipients' symptom\u2010management and health\u2010management requirements.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/scs.12618","type":"journal-article","created":{"date-parts":[[2018,10,15]],"date-time":"2018-10-15T06:58:20Z","timestamp":1539586700000},"page":"176-184","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":13,"title":["Recovery, symptoms, and well\u2010being one to five years after lung transplantation \u2013 A multi\u2010centre study"],"prefix":"10.1111","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7232-2434","authenticated-orcid":false,"given":"Martina","family":"Lundmark","sequence":"first","affiliation":[{"name":"Thoracic Intensive Care Unit Sk\u00e5ne University Hospital Lund Sweden"},{"name":"Department of Health Sciences Lund University Lund 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