{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,12]],"date-time":"2026-02-12T14:07:58Z","timestamp":1770905278245,"version":"3.50.1"},"reference-count":45,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2019,12,25]],"date-time":"2019-12-25T00:00:00Z","timestamp":1577232000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:sec><jats:title>Introduction<\/jats:title><jats:p>Endometriosis is a chronic disease affecting 5\u201310% of women in the reproductive age. Despite surgical and medical treatment, many women struggle with pain, infertility, sexual dysfunction, depression, distress and reduced workability, affecting their overall quality of life. The usual follow\u2010up procedures may not support the women\u2019s self\u2010management of this condition. Therefore, person\u2010centred empowerment\u2010based approaches are needed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>To assess if the implementation of the Guided Self\u2010Determination method targeted women with complex endometriosis appeared feasible and supported self\u2010management.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Guided Self\u2010Determination was offered to 10 out\u2010patients with complex endometriosis. Each of the women had five conversations based on prefilled disease\u2010specific reflection sheets. A qualitative evaluation was conducted in 2016\u20132017 covering semi\u2010structured, telephone interviews and focus group interviews, which were analysed using thematic analysis. Additionally, we assessed if the women changed the self\u2010reported questionnaires, Endometriosis Health Profile 30 and the Patient Activation Measure from before and after the conversations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We identified four themes: feeling alone with the disease; establishing a meaningful relationship with healthcare professionals in a traditional hospital setting; person\u2010specific knowledge facilitated new behaviours and; accepting a chronic condition \u2013 the beginning of a process. All dimensions of the Endometriosis Health Profile 30 and the Patient Activation Measure appeared to improve at two weeks and so did almost all the dimensions of Endometriosis Health Profile 30 after 1\u00a0year.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The implementation of the Guided Self\u2010Determination method appeared feasible and the women developed self\u2010management skills in relation to endometriosis and its symptoms. This was achieved by increasing insight into their needs and behaviours and gaining new knowledge about the disease itself. The before\u2010and\u2010after assessment suggested benefit of the intervention, but this should be further tested in a randomised trial.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.12810","type":"journal-article","created":{"date-parts":[[2019,12,26]],"date-time":"2019-12-26T00:18:10Z","timestamp":1577319490000},"page":"1017-1027","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["About me as a person not only the disease \u2013 piloting Guided Self\u2010Determination in an outpatient endometriosis setting"],"prefix":"10.1111","volume":"34","author":[{"given":"Susan Munch","family":"Simonsen","sequence":"first","affiliation":[{"name":"Department of Gynecology Copenhagen University Hospital Rigshospitalet Copenhagen Denmark"},{"name":"Centre for Human Resources and Education The Capital Region of Denmark 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