{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,3]],"date-time":"2026-10-03T16:54:12Z","timestamp":1791046452069,"version":"4.1.0"},"reference-count":51,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,12,17]],"date-time":"2021-12-17T00:00:00Z","timestamp":1639699200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2022,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>The preservation of a well\u2010functioning arteriovenous fistula (AVF) is crucial for successful dialysis in patients with end\u2010stage renal disease (ESRD); nonetheless, complications are frequent which leads to lower quality of life, hospitalisations and death. Self\u2010care behaviours help to reduce the risk of complications and family caregivers can play an important role as partners for behaviour change. However, the patient and family caregiver's experiences with such an invasive intervention are largely unknown.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aims<\/jats:title><jats:p>This study aimed to explore the experiences of patients with ESRD and their family caregivers with the AVF through joint interviews.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A qualitative exploratory study was conducted with a purposive sample. Semi\u2010structured joint interviews were conducted with 14 dyads (28 participants) composed of patients on haemodialysis with AVF and their respective family caregivers. Interviews were audiotaped, transcribed verbatim and submitted to thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Four major themes were identified: (i) AVF negative impacts; (ii) (un)presence of self\u2010care behaviours; (iii) AVF self\u2010management facilitators and (iv) AVF self\u2010management barriers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>The findings suggested that more attention needs to be paid to patients\u2019 and their family caregivers\u2019 support needs (e.g. fears, concerns, knowledge, adherence barriers and facilitators) regarding AVF self\u2010management. The dyads seem to be aware of how to take care of the AVF; however, self\u2010care behaviours still need to be improved.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Innovative interventions need to follow an interdisciplinary approach with an educational and support component. The integration of family caregivers should also be considered, since this study evidenced their lack of knowledge and skills, and willingness to participate in these initiatives.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.13055","type":"journal-article","created":{"date-parts":[[2021,12,18]],"date-time":"2021-12-18T07:14:26Z","timestamp":1639811666000},"page":"426-438","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["A family\u2010centred perspective on the arteriovenous fistula in end\u2010stage renal disease: Findings from dyadic interviews"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0832-0004","authenticated-orcid":false,"given":"Helena","family":"Sousa","sequence":"first","affiliation":[{"name":"Center for Health Technology and Services Research (CINTESIS.UA), Department of Education and Psychology University of Aveiro (Campus Universit\u00e1rio de Santiago)  Aveiro 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