{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T01:35:17Z","timestamp":1791941717530,"version":"4.3.4"},"reference-count":26,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,12,15]],"date-time":"2021-12-15T00:00:00Z","timestamp":1639526400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2022,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Working as a personal care assistant (PCA) with children and adults on mechanical ventilation in a home setting may be complex and challenging due to the physical and mental working conditions.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore the lived experience of working as a (PCA) with patients, children and adults on mechanical ventilation in the home setting.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design and methods<\/jats:title><jats:p>A qualitative study using a phenomenological\u2010hermeneutic approach. Data collection involved semi\u2010structured individual interviews with 20 PCAs (<jats:italic>n<\/jats:italic>\u00a0=\u00a015 women and <jats:italic>n<\/jats:italic>\u00a0=\u00a05\u00a0men) in Denmark in 2020. Their work experience with patients on home mechanical ventilation ranged from 8\u00a0months to 25\u00a0years (median 8\u00a0years).\u00a0The Consolidated Criteria for Reporting Qualitative Research checklist was used as a guideline.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Four main themes emerged from the structural analysis: <jats:italic>Being a fly on the wall or part of the family<\/jats:italic>, <jats:italic>Always being in a state of readiness is exhausting<\/jats:italic>, <jats:italic>Being a team player<\/jats:italic> and <jats:italic>Mutual respect is key in the work relationship<\/jats:italic>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>PCAs had to balance on a knife's edge when working with children and adults on mechanical ventilation in the home setting and try to strike a happy medium. Enduring the job required a proper physical and mental work environment, and thorough preparation, achieved not only through technical training, but also through learning how to be part of a professional relationship characterised by mutual respect and matched expectations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>The findings provide clinical practice with important insights into how to inform, prepare and educate PCAs working with patients on mechanical ventilation in the home setting. Further research into home care education and training programmes with a patient\u2010 and family\u2010centred care approach is needed.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.13056","type":"journal-article","created":{"date-parts":[[2021,12,15]],"date-time":"2021-12-15T12:26:37Z","timestamp":1639571197000},"page":"536-544","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Personal care assistants\u2019 lived experience of working in the home setting with children and adults on mechanical ventilation"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9600-5006","authenticated-orcid":false,"given":"Anette Bjerregaard","family":"Alr\u00f8","sequence":"first","affiliation":[{"name":"Department of Intensive Care Aarhus University Hospital  Aarhus N Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charlotte","family":"Klitn\u00e6s","sequence":"additional","affiliation":[{"name":"Department of Intensive Care Aarhus University Hospital  Aarhus N Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3581-7438","authenticated-orcid":false,"given":"Pia","family":"Dreyer","sequence":"additional","affiliation":[{"name":"Department of Intensive Care Aarhus University Hospital  Aarhus N Denmark"},{"name":"Section of Nursing Institute of Public Health Aarhus University  Aarhus C Denmark"},{"name":"Bergen University  Bergen Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,12,15]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/1367493508088552"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.05.00066704"},{"key":"e_1_2_11_4_1","unstructured":"DEFACTUM RM. 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