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The aim of this study was to elucidate parents\u2019 experiences of how and why home\u2010based paediatric palliative care impacted the entire family during their child's final phase of life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The study used a qualitative design. Semi\u2010structured interviews were conducted with the bereaved parents of children who had received palliative care at home from a paediatric cancer hospital department programme that was based on collaboration with community nurses and the paediatric palliative care service. The interviews were transcribed verbatim, and qualitative content analysis was applied. The Ecocultural theory was used to explain the findings.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three main themes emerged: (1) involvement enabling a sense of control and coping, (2) sustaining participation in everyday family life routines and (3) making room for presence and comfort during and after the end\u2010of\u2010life trajectory.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>End\u2010of\u2010life palliative care at home can enable parents and other family members to maintain a sense of control, presence and semblance of everyday life. It contributes to managing and alleviating the burden and distress during the last phase of the child's life and during bereavement. We suggest that healthcare professionals support family members in participation and daily life routines and activities during a child's EOL care, as it affects the well\u2010being of the entire family.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.13066","type":"journal-article","created":{"date-parts":[[2022,1,24]],"date-time":"2022-01-24T11:50:33Z","timestamp":1643025033000},"page":"917-926","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":21,"title":["End\u2010of\u2010life palliative home care for children with cancer: A qualitative study on parents\u2019 experiences"],"prefix":"10.1111","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6911-3121","authenticated-orcid":false,"given":"Helena","family":"Hansson","sequence":"first","affiliation":[{"name":"Department of Pediatric and Adolescent Medicine Copenhagen University Hospital Rigshospitalet and Associate Professor at Copenhagen University  Copenhagen Denmark"},{"name":"Department of Health Sciences Lund University  Lund Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria","family":"Bj\u00f6rk","sequence":"additional","affiliation":[{"name":"CHILD Research Group at the Department of Nursing Science School of Health Sciences J\u00f6nk\u00f6ping University  J\u00f6nk\u00f6ping Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheila Judge","family":"Santacroce","sequence":"additional","affiliation":[{"name":"Beerstecher\u2010Blackwell Distinguished Scholar at School of Nursing University of North Carolina at Chapel Hill  Chapel Hill North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1197-5455","authenticated-orcid":false,"given":"Mette","family":"Raunki\u00e6r","sequence":"additional","affiliation":[{"name":"Danish Knowledge Centre for Rehabilitation and Palliative Care (REHPA) Odense University Hospital University of Southern Denmark  Nyborg Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,1,24]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2016.08.007"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904\u2010020\u201000672\u20104"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-019-03393-w"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11912-012-0218-z"},{"issue":"2","key":"e_1_2_10_6_1","first-page":"20","article-title":"Advances and challenges in european paediatric palliative care","volume":"8","author":"Fraser LK","year":"2020","journal-title":"Med Sci (Basel)"},{"key":"e_1_2_10_7_1","unstructured":"WHO.World Health Organization. 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