{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T20:19:21Z","timestamp":1782505161694,"version":"3.54.5"},"reference-count":38,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2023,3,14]],"date-time":"2023-03-14T00:00:00Z","timestamp":1678752000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2023,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The dominant story of HIV in Denmark portrays HIV as compatible with a nearly normal life. International research on the experiences of elderly people diagnosed with human immunodeficiency virus (HIV) in the 1980s to mid\u20101990s challenges this narrative.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aims<\/jats:title><jats:p>To gain knowledge on the experiences of elderly long\u2010term survivors of HIV in Denmark and to evaluate if a narrative intervention \u2018giving voice\u2019 to this specific group was experienced as improving their quality of life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>In collaboration with relevant stakeholders, we developed a narrative intervention at REHPA, the Danish Knowledge Centre for Rehabilitation and Palliative Care focusing on the experiences and stories of people having lived a long life with HIV. Nineteen women and men living with HIV were included in the study. The intervention's evaluation design was based on ethnographic fieldwork that included participant observation and focus group interviews. The qualitative data were analysed using thematic content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The findings show that the dominant story on HIV does not adequately cover the experiences of elderly Danes who have lived a long life with HIV. The participants continue to suffer from late complications and physical, existential, emotional and social challenges. The narrative intervention helped improve how participants experienced their quality of life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Long\u2010term elderly Danish survivors diagnosed with HIV in the 1980s to mid\u20101990s suffer from complex symptoms and problems related to living their lives with HIV and treatment. They found that telling and sharing their life stories with other people with HIV gave them a sense of coherence, meaning and direction in life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance<\/jats:title><jats:p>The study documents the experiences of a group of long\u2010term survivors of HIV in Denmark, making it relevant for organisations supporting people with HIV and for health care professionals working with this group. Furthermore, the study adds to the knowledge base on the use of narrative methods in rehabilitation.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.13161","type":"journal-article","created":{"date-parts":[[2023,3,15]],"date-time":"2023-03-15T05:19:01Z","timestamp":1678857541000},"page":"777-787","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Stories of a long life with <scp>HIV<\/scp>: A qualitative study of a narrative intervention"],"prefix":"10.1111","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2090-1661","authenticated-orcid":false,"given":"Mia","family":"Jess","sequence":"first","affiliation":[{"name":"UCSF \u2013 Center for Health Research Copenhagen University Hospital \u2013 Rigshospitalet  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steen Peter","family":"Nielsen","sequence":"additional","affiliation":[{"name":"Danish Cancer Society  Copenhagen Denmark"},{"name":"Sankt Lukas Hospice  Hellerup Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annette","family":"Rasmussen","sequence":"additional","affiliation":[{"name":"REHPA, Danish Knowledge Centre for Rehabilitation and Palliative Care  Nyborg Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jytte","family":"Skov\u2010Pedersen","sequence":"additional","affiliation":[{"name":"Department of Oncology Herlev University Hospital  Herlev Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helle","family":"Timm","sequence":"additional","affiliation":[{"name":"UCSF \u2013 Center for Health Research Copenhagen University Hospital \u2013 Rigshospitalet  Copenhagen Denmark"},{"name":"Statens Institut for Folkesundhed, National Institute of Public Health University of Southern Denmark  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,3,14]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"World Health Organization.HIV [Internet]. 2022 Jul [cited 2022 Aug 8]. 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