{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T00:33:32Z","timestamp":1790382812377,"version":"4.1.0"},"reference-count":33,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,9,27]],"date-time":"2024-09-27T00:00:00Z","timestamp":1727395200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2024,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The visibility of skin lesions significantly burdens people with psoriasis, leading to social hostility and numerous emotional and psychological problems. These issues adversely affect self\u2010esteem, can result in chronic mental health challenges and cause numerous life problems. This study aimed to explore patients' long\u2010term experiences with severe psoriasis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A qualitative study was conducted with 20 patients with psoriasis (PASI \u226512) recruited from general and specialist dermatology practices in a regional teaching hospital in Taiwan. Interviews lasted 60\u201390\u2009min and data were analysed using content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>A core theme emerged: \u2018Embodied suffering\u2014life worse than death\u2019. This overarching concept comprised three interrelated themes: (i) Experiencing physical suffering, (ii) Experiencing psychological suffering and (iii) Experiencing the stigma of suffering.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This study highlights the holistic nature of suffering among individuals with severe psoriasis. It emphasises the need for healthcare professionals to consider the entirety of a patient's circumstances when addressing their suffering.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.13305","type":"journal-article","created":{"date-parts":[[2024,9,27]],"date-time":"2024-09-27T06:03:45Z","timestamp":1727417025000},"page":"1041-1049","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis"],"prefix":"10.1111","volume":"38","author":[{"given":"Lin\u2010Lin","family":"Lee","sequence":"first","affiliation":[{"name":"Department of Nursing Hungkuang University  Taichung Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"An\u2010Ping","family":"Huo","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine Chung Shan Medical University  Taichung 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