{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,15]],"date-time":"2025-08-15T01:55:29Z","timestamp":1755222929502,"version":"3.43.0"},"reference-count":26,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,3,8]],"date-time":"2025-03-08T00:00:00Z","timestamp":1741392000000},"content-version":"vor","delay-in-days":7,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2025,3]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Alcohol\u2010related liver cirrhosis (ALC) is a life\u2010threatening disease and both physically and mentally challenging. At diagnosis, ALC is often at an advanced stage, and symptoms of liver decompensation may be present. Life may be challenged by substance abuse, social problems, limited networks and stigma by the public and the healthcare system. Research on living with ALC is sparse.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore people's stories about life before and after diagnosis with ALC.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The study is empirical and inspired by a phenomenological approach. Six explorative narrative interviews about everyday life were conducted. The participants told their individual stories guided by one main question: \u2018What matters to you \u2010 tell me about yourself and your life\u2019. Interviews were analysed using an inductive approach, identifying and describing main themes of the six stories.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Six informants participated; four men and two women aged 46\u201376\u2009years. Four participants were alcohol abstinent and for two, status was unknown. Number of years living with ALC varied from 1.5 to 16. One main theme, \u2018social life \u2013 social loss\u2019, and five sub themes \u2018alcohol stories\u2019, \u2018guilt and shame\u2019, \u2018the cirrhosis sequelae\u2019, \u2018moving on\u2019 and \u2018care and security\u2019 were identified. Themes were interrelated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Stories about life with ALC mainly concern social losses and managing daily life and the physical consequences of the disease. In general, the participants seemed to live in the present and did not bring up the future. Though living with a life\u2010threatening disease, they did not talk about death or dying.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.70013","type":"journal-article","created":{"date-parts":[[2025,3,11]],"date-time":"2025-03-11T17:38:02Z","timestamp":1741714682000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["\u2018You Have to Start All Over Again\u2026\u2019 Stories About Life With Alcohol\u2010Related Liver Cirrhosis\u2014A Narrative Interview Study"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8719-3540","authenticated-orcid":false,"given":"Dorthe Wiinholdt","family":"Christensen","sequence":"first","affiliation":[{"name":"Digestive Disease Center Bispebjerg Hospital  Copenhagen Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mette Kildev\u00e6ld","family":"Simonsen","sequence":"additional","affiliation":[{"name":"Department of Neurology Bispebjerg Hospital  Copenhagen Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Frank Vinholt","family":"Schi\u00f8dt","sequence":"additional","affiliation":[{"name":"Digestive Disease Center Bispebjerg Hospital  Copenhagen Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Berit Lilienthal","family":"Heitmann","sequence":"additional","affiliation":[{"name":"Research Unit for Dietary Studies at the Parker Institute Bispebjerg and Frederiksberg Hospital  Copenhagen Denmark"},{"name":"Section for General Medicine, the Department of Public Health University of Copenhagen  Copenhagen Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helle","family":"Timm","sequence":"additional","affiliation":[{"name":"Center for Health Research (UCSF)  Copenhagen Denmark"},{"name":"National Institute of Public Health University of Southern Denmark  Copenhagen Denmark"},{"name":"Faculty of Health Science University of the Faroe Island  T\u00f3rshavn Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,3,8]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s41193\u2010021\u20100182\u20109"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhep.2005.10.013"},{"key":"e_1_2_11_4_1","first-page":"1","article-title":"Ambulant opf\u00f8lgning Og Rehabilitering Af Dekompenseret Levercirrose b\u00f8r v\u00e6re et tv\u00e6rfagligt Samarbejde [Outpatient Follow Up and Rehabilitation of Decompensated Liver Cirrgosis Should Be a Interdiciplinary Cooperation]","volume":"182","author":"O'Connell M. 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Notes on the Management of Spoiled Identity]","year":"2001","author":"Goffman E.","key":"e_1_2_11_19_1"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10620-013-2942-0"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1159\/000526200"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.alcohol.2015.05.001"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jsat.2018.05.003"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/jpm.12677"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12876\u2010023\u201002656\u2010z"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13011\u2010015\u20100028\u2010z"},{"volume-title":"Qualitative Research Methods in Medicine and Health Professions","year":"2017","author":"Malterud K.","key":"e_1_2_11_27_1"}],"container-title":["Scandinavian Journal of Caring Sciences"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70013","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,8,11]],"date-time":"2025-08-11T09:20:30Z","timestamp":1754904030000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/scs.70013"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,3]]},"references-count":26,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2025,3]]}},"alternative-id":["10.1111\/scs.70013"],"URL":"https:\/\/doi.org\/10.1111\/scs.70013","archive":["Portico"],"relation":{},"ISSN":["0283-9318","1471-6712"],"issn-type":[{"type":"print","value":"0283-9318"},{"type":"electronic","value":"1471-6712"}],"subject":[],"published":{"date-parts":[[2025,3]]},"assertion":[{"value":"2024-07-18","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-02-24","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-03-08","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70013"}}