{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T12:04:27Z","timestamp":1790337867594,"version":"4.1.0"},"reference-count":44,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T00:00:00Z","timestamp":1744761600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T00:00:00Z","timestamp":1744761600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100009457","name":"Region Sj\u00e6lland","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100009457","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aims and Objectives<\/jats:title>\n                    <jats:p>This study explores the lived experiences of patients with chronic illnesses to understand how the meanings attributed to chronic illness, physical activity and well\u2010being intertwine. This understanding is crucial for care practices aiming to support and enhance well\u2010being.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methodological Design<\/jats:title>\n                    <jats:p>We conducted a qualitative interview study grounded in hermeneutic\u2010phenomenology to capture participants' lifeworld experiences in narrative form. COREQ is used as a reporting guideline.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ethical Issues and Approval<\/jats:title>\n                    <jats:p>Ethical considerations followed the ICN's ethical code of conduct, including addressing the sensitivity of researching vulnerable patients. All participants gave informed consent verbally and in writing. The study is registered with the Danish Data Protection Agency (REG\u2010115\u20102021).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We interviewed 22 individuals with multiple sclerosis, Alzheimer's disease or ischemic heart disease in Denmark. Thematic analysis, inspired by Van Manen's phenomenology of practice, was employed and findings were discussed with the theory of well\u2010being by Todres and Galvin.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Our analysis revealed a narrative of dual experiences: significant loss and transformative existential growth. The theme \u2018Losing oneself determined by bodily impact\u2019 captured the profound impact of participants' illnesses, including loss of embodiment, familiar life and a promised future. Conversely, the theme \u2018Physical activity as a pathway to existential growth\u2019 highlighted the empowering role of physical activity in finding relief, claiming control and fostering reconnections with oneself and others.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Study Limitations<\/jats:title>\n                    <jats:p>Limitations of this study include the timing of interviews across different stages of illness and the context\u2010dependent nature of qualitative findings, which may affect their transferability to other settings.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This investigation highlights the value of physical activity beyond traditional health outcomes for those with chronic illnesses. Physical activity emerges as a vital component for existential growth and improved well\u2010being. The study advocates for incorporating meaningful physical activities into care strategies to enrich the quality of life for individuals with chronic and life\u2010threatening diseases.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/scs.70028","type":"journal-article","created":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T03:32:11Z","timestamp":1744774331000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Navigating Loss and Growth in Chronic Illness: An Interview Study on Physical Activity and Well\u2010Being"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5851-7577","authenticated-orcid":false,"given":"Stine G.","family":"Roikjaer","sequence":"first","affiliation":[{"name":"Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy N\u00e6stved, Slagelse and Ringsted Hospitals  Slagelse Denmark"},{"name":"Centre for Neurological Research, Department of Neurology N\u00e6stved, Slagelse and Ringsted Hospitals  Slagelse Denmark"},{"name":"Faculty of Health, Institute for Regional Health Research University of Southern Denmark  Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4163-263X","authenticated-orcid":false,"given":"Malene","family":"Beck","sequence":"additional","affiliation":[{"name":"Faculty of Health, Institute for Regional Health Research University of Southern Denmark  Odense Denmark"},{"name":"Department of Pediatrics Zealand University Hospital  Roskilde Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8551-0947","authenticated-orcid":false,"given":"Nasrin","family":"Asgari","sequence":"additional","affiliation":[{"name":"Centre for Neurological Research, Department of Neurology N\u00e6stved, Slagelse and Ringsted Hospitals  Slagelse Denmark"},{"name":"Faculty of Health, Institute for Regional Health Research University of Southern Denmark  Odense Denmark"},{"name":"Institute of Molecular Medicine University of Southern Denmark  Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4336-7059","authenticated-orcid":false,"given":"S\u00f8ren T.","family":"Skou","sequence":"additional","affiliation":[{"name":"Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy N\u00e6stved, Slagelse and Ringsted Hospitals  Slagelse Denmark"},{"name":"Research Unit for Musculoskeletal Function and Physiotherapy, Department of Sports Science and Clinical Biomechanics University of Southern Denmark  Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6055-8696","authenticated-orcid":false,"given":"Lars H.","family":"Tang","sequence":"additional","affiliation":[{"name":"Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy N\u00e6stved, Slagelse and Ringsted Hospitals  Slagelse Denmark"},{"name":"Faculty of Health, Institute for Regional Health Research University of Southern Denmark  Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1189-2967","authenticated-orcid":false,"given":"Charlotte","family":"Simon\u00ff","sequence":"additional","affiliation":[{"name":"Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy N\u00e6stved, Slagelse and Ringsted Hospitals  Slagelse Denmark"},{"name":"Faculty of Health, Institute for Regional Health Research University of Southern Denmark  Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,4,16]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"United Nations \u201cThe Global Goals\u20143 Ensure Healthy Lives and Promote Well\u2010Being for All at All Ages \u201d2024[cited 2024 Jul 4] https:\/\/sdgs.un.org\/goals\/goal3."},{"key":"e_1_2_11_3_1","volume-title":"World Health Statistics 2023: Monitoring Health for the SDGs, Sustainable Development Goals","year":"2023"},{"key":"e_1_2_11_4_1","unstructured":"L.Webber \u201cEconomics of Chronic Diseases\u2014Final Report \u201d2015."},{"issue":"2","key":"e_1_2_11_5_1","first-page":"126","article-title":"Physical Activity, Exercise, and Physical Fitness: Definitions and Distinctions for Health\u2010Related Research","volume":"100","author":"Caspersen C. J.","year":"1985","journal-title":"Public Health Reports (Washington, DC: 1974)"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/sms.12581"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1101\/cshperspect.a029694"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2019.01537"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.arr.2020.101166"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1009920011164"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11017-010-9161-x"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1533-8525.1995.tb00459.x"},{"key":"e_1_2_11_13_1","volume-title":"Phenomenology of Perception","author":"Merleau\u2010Ponty M.","year":"2014"},{"key":"e_1_2_11_14_1","first-page":"84","volume-title":"Routledge Handbook of Well\u2010Being. Paperback","author":"Todres L.","year":"2021"},{"key":"e_1_2_11_15_1","first-page":"324","volume-title":"Routledge Handbook of Well\u2010Being. Paperback","author":"Galvin K. T.","year":"2021"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.22518\/jour.ccsh\/2020.1a10"},{"key":"e_1_2_11_17_1","first-page":"49","volume-title":"Patientperspektivet (The Patient Perspective). 2","author":"Brinkmann S.","year":"2013"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(17)30470-2"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(18)30481-1"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(01)00238-6"},{"key":"e_1_2_11_21_1","first-page":"1","article-title":"The Lived Experience of Uncertainty in Everyday Life With Multiple Sclerosis","volume":"44","author":"Nissen N.","year":"2021","journal-title":"Disability and Rehabilitation"},{"key":"e_1_2_11_22_1","unstructured":"Mayo Clinic \u201cAlzheimers Disease \u201d[cited 2021 Sep 8] https:\/\/www.mayoclinic.org\/diseases\u2010conditions\/alzheimers\u2010disease\/symptoms\u2010causes\/syc\u201020350447."},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323211002822"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1038\/jhg.2015.70"},{"issue":"2","key":"e_1_2_11_25_1","first-page":"S137","article-title":"Lived Experiences of Women With Ischemic Heart Disease","volume":"17","author":"Moeini M.","year":"2012","journal-title":"Iranian Journal of Nursing and Midwifery Research"},{"issue":"6","key":"e_1_2_11_26_1","first-page":"12628","article-title":"Lived in Experience of Patients With First Episode of Myocardial Infarction\u2010Qualitative Study","volume":"7","author":"Merlinsuja C. R. N.","year":"2017","journal-title":"International Journal of Engineering Science and Computing"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1186\/1479-5868-9-140"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2010.505992"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1002\/alz.12068"},{"key":"e_1_2_11_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/0022-3956(75)90026-6"},{"key":"e_1_2_11_31_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2023.2244424"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315422657"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.3402\/qhw.v8i0.20634"},{"key":"e_1_2_11_34_1","volume-title":"Researching Lived Experiences\u2014Human Science for an Action Sensitive Pedagogy","author":"Van Manen M.","year":"2016"},{"key":"e_1_2_11_35_1","unstructured":"NVivo [Internet] https:\/\/www.qsrinternational.com\/nvivo\u2010qualitative\u2010data\u2010analysis\u2010software\/home."},{"key":"e_1_2_11_36_1","doi-asserted-by":"publisher","DOI":"10.7748\/nr2012.04.19.3.16.c9054"},{"key":"e_1_2_11_37_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781036234492"},{"key":"e_1_2_11_38_1","unstructured":"ICN\u2010International Council of Nurses \u201cThe ICN Code of Ethics for Nurses \u201d2012."},{"issue":"4","key":"e_1_2_11_39_1","first-page":"373","article-title":"Declaration of Helsinki, Ethical Principles for Scientific Requirements and Research Protocols","volume":"79","author":"World Medical Association","year":"2013","journal-title":"Bulletin of the World Health Organization"},{"key":"e_1_2_11_40_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12910-020-0460-0"},{"key":"e_1_2_11_41_1","doi-asserted-by":"publisher","DOI":"10.1177\/0969733007080206"},{"key":"e_1_2_11_42_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951515000620"},{"key":"e_1_2_11_43_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.13690"},{"key":"e_1_2_11_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hrtlng.2021.08.006"},{"key":"e_1_2_11_45_1","volume-title":"Interview\u2014Learning the Craft of Qualitative Research Interviewing","author":"Kvale S.","year":"2015"}],"container-title":["Scandinavian Journal of Caring Sciences"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70028","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/scs.70028","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70028","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T11:40:19Z","timestamp":1790336419000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/scs.70028"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,4,16]]},"references-count":44,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2025,6]]}},"alternative-id":["10.1111\/scs.70028"],"URL":"https:\/\/doi.org\/10.1111\/scs.70028","archive":["Portico"],"relation":{},"ISSN":["0283-9318","1471-6712"],"issn-type":[{"value":"0283-9318","type":"print"},{"value":"1471-6712","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,4,16]]},"assertion":[{"value":"2024-07-05","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-04-07","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-04-16","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70028"}}