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This study aims to develop and test electronic versions of two short self\u2010reported questionnaires (for children aged 8\u201312 and adolescents aged 13\u201318).\n <\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n We adapted the paper\u2010and\u2010pencil versions of\n \n Advance\n QoL<\/jats:styled-content>\n <\/jats:italic>\n into electronic versions using the\n REDCap<\/jats:styled-content>\n platform. We tested the electronic versions and evaluated their social validity (acceptability, relevance, and satisfaction) through semi\u2010structured cognitive interviews with 20 children (median age 9) and adolescents (median age 15) with cancer. Recruitment and data collection involved two refinement phases, using cognitive interviews to guide adaptations. To analyse responses from the social validity questionnaire, we used the content validity index (\n CVI<\/jats:styled-content>\n ), median and range.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n From the interviews, we identified 22 codes, organised into five themes: (1) content\u2010related elements, such as lack of information regarding a radar chart displayed in the questionnaire; (2) format\u2010related elements, including the unnoticed 24\u2010h time window; (3) technology\u2010related elements, such as the correct date format; (4) positive features (e.g., length, comprehensiveness, user\u2010friendliness); and (5) children\u2010specific elements such as distractibility and attention spans. These insights guided modifications to optimise\n \n Advance\n QoL<\/jats:styled-content>\n <\/jats:italic>\n 's electronic use.\n CVI<\/jats:styled-content>\n indices showed high social validity among the participants (children: two out of three\n CVI<\/jats:styled-content>\n indices were \u2265\u20090.78; adolescents: all three\n CVI<\/jats:styled-content>\n indices were \u2265\u20090.78).\n <\/jats:p>\n <\/jats:sec>\n \n Conclusion<\/jats:title>\n \n Feedback was largely positive. We addressed minor issues using\n REDCap<\/jats:styled-content>\n 's features. In its present state,\n \n Advance\n QoL<\/jats:styled-content>\n <\/jats:italic>\n is comprehensible, usable, and considered pertinent by patients. It offers a unique opportunity to collect the self\u2010reported data of a very ill population, thereby providing targets for care.\n <\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/scs.70170","type":"journal-article","created":{"date-parts":[[2026,1,5]],"date-time":"2026-01-05T04:17:56Z","timestamp":1767586676000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Developing and Testing Electronic Versions of the Advance\n QoL<\/scp>\n Tools for Collecting Self\u2010Reports of Quality of Life in Children and Adolescents With Advanced Cancer"],"prefix":"10.1111","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5530-0460","authenticated-orcid":false,"given":"Lye\u2010Ann","family":"Robichaud","sequence":"first","affiliation":[{"name":"Department of Psychology Universit\u00e9 de Montr\u00e9al Montr\u00e9al Quebec Canada"},{"name":"Azrieli Research Centre CHU Sainte\u2010Justine Montr\u00e9al Quebec 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