{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T22:58:36Z","timestamp":1774565916490,"version":"3.50.1"},"reference-count":42,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2026,3,8]],"date-time":"2026-03-08T00:00:00Z","timestamp":1772928000000},"content-version":"vor","delay-in-days":7,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>The study aimed to explore and understand the feelings, thoughts, and experiences of parents of children with hydrocephalus.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>This study used a descriptive phenomenological qualitative approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Data were collected through semi\u2010structured individual interviews with 10 parents of children with hydrocephalus between July 2022 and January 2023. Thematic analysis was performed using Colaizzi's seven\u2010step method.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>In the analysis of the data, two main themes emerged as a result of the interviews obtained from the parents. The first main theme was Emotional and Psychological Struggles. Three sub\u2010themes formed this theme. These were Emotional Reactions and Future Concerns, Torn Between Children and Access Barriers, and Psychological Impact. The other theme was Coping and Meaning\u2010Making Process. This theme was divided into four sub\u2010themes. These sub\u2010themes were: Support Systems, Learning and Understanding the Diagnosis, Acceptance and Spiritual Meaning\u2010Making, and Personal Growth and Maturity.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The study focused on the emotional and psychological struggles, as well as the coping and meaning\u2010making processes of parents of children with hydrocephalus. Exploring caregivers' experiences and the emotional, social, and cognitive dimensions of their journey can help inform more comprehensive and compassionate support mechanisms for families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Implications for the Profession and\/or Patient Care<\/jats:title>\n                    <jats:p>The findings show the difficulties parents face and reveal their feelings in depth. The training and counselling that can be prepared according to these results will enable parents and children to receive care under better conditions. In addition, these results may also provide data for interventional studies to be planned in the future.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Impact<\/jats:title>\n                    <jats:p>Empowering parents to care for a child with hydrocephalus is a neglected issue. Understanding parents' feelings and thoughts in depth can help us better assist them in coping with their challenges. Getting support and information makes it easier for parents to cope.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Reporting Method<\/jats:title>\n                    <jats:p>The Consolidated Criteria for Reporting Qualitative Research checklist was used.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>No patient or public contribution.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/scs.70213","type":"journal-article","created":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T04:24:27Z","timestamp":1773030267000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["\u201cWe Learned by Hitting the Wall\u201d Experiences of Parents With A Child With Hydrocephalus: A Qualitative Research"],"prefix":"10.1111","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7461-7319","authenticated-orcid":false,"given":"Mustafa Volkan","family":"D\u00fczg\u00fcn","sequence":"first","affiliation":[{"name":"Department of Pediatric Nursing, Faculty of Nursing Akdeniz University  Antalya Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2745-2897","authenticated-orcid":false,"given":"B\u00fc\u015fra Nur","family":"Tem\u00fcr","sequence":"additional","affiliation":[{"name":"Department of Surgery Nursing, Faculty of Nursing Akdeniz University  Antalya Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8448-0483","authenticated-orcid":false,"given":"Ay\u015feg\u00fcl","family":"I\u015fler","sequence":"additional","affiliation":[{"name":"Department of Pediatric Nursing, Faculty of Nursing Akdeniz University  Antalya Turkey"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2026,3,8]]},"reference":[{"key":"e_1_2_14_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(15)60694-8"},{"key":"e_1_2_14_3_1","doi-asserted-by":"publisher","DOI":"10.3171\/2017.10.JNS17439"},{"key":"e_1_2_14_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2020.04.004"},{"key":"e_1_2_14_5_1","doi-asserted-by":"publisher","DOI":"10.4103\/jpn.JPN_79_19"},{"key":"e_1_2_14_6_1","doi-asserted-by":"publisher","DOI":"10.21608\/ejhc.2024.370390"},{"key":"e_1_2_14_7_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjon.2021.30.7.416"},{"issue":"2","key":"e_1_2_14_8_1","first-page":"E63","article-title":"Ventriculoperitoneal Shunt Infections in Children: Demographical, Clinical Findings and Evaluation of Thrombocyte Parameters","volume":"12","author":"G\u00fcnde\u015flio\u011flu \u00d6. \u00d6.","year":"2018","journal-title":"Jornal de Pediatria"},{"key":"e_1_2_14_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2018.03.082"},{"key":"e_1_2_14_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-49319-0_2"},{"issue":"5","key":"e_1_2_14_11_1","first-page":"61","article-title":"A Protocol for Diagnosis and Management of Cerebrospinal Shunt Infections and Other Infectious Conditions in Neurosurgical Practice","volume":"3","author":"Alnimr A.","year":"2012","journal-title":"Basic and Clinical Neuroscience"},{"key":"e_1_2_14_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2022.12.026"},{"issue":"4","key":"e_1_2_14_13_1","first-page":"464","article-title":"Management of Childhood Hydrocephalus in Our Centre. Parents' Knowledge, Experiences and Expectations","volume":"7","author":"Ogunleye Olabisi O.","year":"2018","journal-title":"Global Journal for Research Analysis"},{"key":"e_1_2_14_14_1","doi-asserted-by":"crossref","unstructured":"R.Kyarimpa D.Muramuzi andT.Muhwezi \u201cCare Giver's Experiences of Having a Child With Hydrocephalus: A Phenomenological Study at Ruharo Mission Hospital \u201dmedRxiv. 2020: 2020.06.25.20139683.","DOI":"10.1101\/2020.06.25.20139683"},{"key":"e_1_2_14_15_1","doi-asserted-by":"publisher","DOI":"10.3171\/2022.12.PEDS22425"},{"key":"e_1_2_14_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/13814788.2017.1375093"},{"key":"e_1_2_14_17_1","volume-title":"Qualitative Study","author":"Tenny S.","year":"2023"},{"key":"e_1_2_14_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/9781118715598.ch21"},{"key":"e_1_2_14_19_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpain.2023.1224139"},{"key":"e_1_2_14_20_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12912-024-01780-9"},{"key":"e_1_2_14_21_1","first-page":"6","volume-title":"Existential\u2010Phenomenological Alternatives for Psychology","author":"Colaizzi P. F.","year":"1978"},{"key":"e_1_2_14_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2017.06.002"},{"key":"e_1_2_14_23_1","doi-asserted-by":"publisher","DOI":"10.3171\/2020.4.PEDS19660"},{"key":"e_1_2_14_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2021.01.014"},{"key":"e_1_2_14_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2021.12.028"},{"key":"e_1_2_14_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13760-020-01280-y"},{"key":"e_1_2_14_27_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph18073724"},{"key":"e_1_2_14_28_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12164"},{"key":"e_1_2_14_29_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-023-05935-y"},{"key":"e_1_2_14_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.inat.2020.101074"},{"key":"e_1_2_14_31_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-022-08502-4"},{"key":"e_1_2_14_32_1","doi-asserted-by":"publisher","DOI":"10.4103\/ENJ.ENJ_21_17"},{"key":"e_1_2_14_33_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-020-04682-8"},{"key":"e_1_2_14_34_1","volume-title":"Questions and Answers on Death and Dying: A Companion Volume to on Death and Dying","author":"K\u00fcbler\u2010Ross E.","year":"2011"},{"key":"e_1_2_14_35_1","doi-asserted-by":"publisher","DOI":"10.1177\/0011000012460836"},{"key":"e_1_2_14_36_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105311405872"},{"issue":"2","key":"e_1_2_14_37_1","first-page":"1382","article-title":"Factors Affecting the Anxiety Level and Quality of Life of Parents of Children With Hydrocephalus","volume":"13","author":"D\u00fczg\u00fcn M. V.","year":"2020","journal-title":"International Journal of Caring Sciences"},{"issue":"2","key":"e_1_2_14_38_1","first-page":"9","article-title":"The Experienced Problems of Families Having Children With Cerebrospinal Fluid Shunt","volume":"2","author":"Erba\u015f A.","year":"2017","journal-title":"Gazi Journal of Health Science"},{"key":"e_1_2_14_39_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-020-04822-0"},{"key":"e_1_2_14_40_1","doi-asserted-by":"publisher","DOI":"10.1177\/08943184241226683"},{"key":"e_1_2_14_41_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-018-0294-9"},{"key":"e_1_2_14_42_1","doi-asserted-by":"publisher","DOI":"10.4103\/IJPC.IJPC_195_17"},{"key":"e_1_2_14_43_1","doi-asserted-by":"publisher","DOI":"10.33546\/bnj.3081"}],"container-title":["Scandinavian Journal of Caring Sciences"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70213","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/scs.70213","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70213","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T22:40:54Z","timestamp":1774564854000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/scs.70213"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3]]},"references-count":42,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,3]]}},"alternative-id":["10.1111\/scs.70213"],"URL":"https:\/\/doi.org\/10.1111\/scs.70213","archive":["Portico"],"relation":{},"ISSN":["0283-9318","1471-6712"],"issn-type":[{"value":"0283-9318","type":"print"},{"value":"1471-6712","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,3]]},"assertion":[{"value":"2024-09-24","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-02-16","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-03-08","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70213"}}