{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T03:43:59Z","timestamp":1782791039929,"version":"3.54.5"},"reference-count":38,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,4,17]],"date-time":"2026-04-17T00:00:00Z","timestamp":1776384000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,4,17]],"date-time":"2026-04-17T00:00:00Z","timestamp":1776384000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Paediatric palliative care (PPC) is a relatively new field in many countries, including Denmark, where regional home\u2010based PPC teams were established between 2015 and 2016. While research on PPC is growing, the lived experiences of nurses providing care in the family home remain underexplored. Understanding how nurses experience this form of care is essential for developing practices that support both families and professionals in this demanding field.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>This study asks what it is like for nurses to accompany children and families through illness, dying, and bereavement in the context of home\u2010based PPC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>A qualitative phenomenological\u2013hermeneutical approach informed by Max van Manen guided the study. Ten nurses from the Danish regional PPC teams participated in individual phenomenological interviews. Analysis followed van Manen's holistic, selective, and detailed reflection, allowing meaning to emerge through attentive engagement with the lived experiences expressed in the interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The analysis brought forward three ways in which the experience showed itself:\n                      <jats:italic>The experience of coming close by walking alongside families; The experience of letting care arise through presence rather than action; The experience of sensing what is at stake<\/jats:italic>\n                      .\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Nurses' accounts show that home\u2010based PPC unfolds through ways of being that move between doing and being present. Their care is shaped by the ability to come close as relationships develop, to remain with families when no further action is possible, and to sense what is lived but not spoken. These forms of attentiveness draw on professional experience as well as an openness to what the situation calls for, supporting families through illness, dying, and the time that follows.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/scs.70239","type":"journal-article","created":{"date-parts":[[2026,4,17]],"date-time":"2026-04-17T12:40:14Z","timestamp":1776429614000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Being There: Danish Nurses' Lived Experiences of Companionship With Families in Home\u2010Based Paediatric Palliative Care in Regional Settings"],"prefix":"10.1111","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-3135-1304","authenticated-orcid":false,"given":"Anne","family":"Alm","sequence":"first","affiliation":[{"name":"Department of Oncology, Center for Cancer and Organ Diseases The University Hospital of Copenhagen  Copenhagen \u00d8 Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4163-263X","authenticated-orcid":false,"given":"Malene","family":"Beck","sequence":"additional","affiliation":[{"name":"Research Unit, WeDoCare, Children and Adolescent Department Zealand University Hospital  Roskilde Denmark"},{"name":"Faculty of Health, Institute of Regional Health University of Southern Denmark  Odense M Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,4,17]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.3390\/medsci8020020"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2021.12.031"},{"key":"e_1_2_11_4_1","unstructured":"Together for Short Lives \u201cA Guide to Children's Palliative Care. Supporting Babies Children and Young People With Life\u2010Limiting and Life\u2010Threatening Conditions and Their Families \u201d (2023) accessed September 26 2025 https:\/\/www.togetherforshortlives.org.uk\/app\/uploads\/2018\/03\/TfSL\u2010A\u2010Guide\u2010to\u2010Children%E2%80%99s\u2010Palliative\u2010Care\u2010Fourth\u2010Edition\u20105.pdf."},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904\u2010022\u201001078\u20100"},{"key":"e_1_2_11_6_1","volume-title":"EAPC Atlas of Palliative Care in the European Region 2025","author":"Garralda E.","year":"2025"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904\u2010024\u201001447\u2010x"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare\u20102021\u2010003251"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare\u20102019\u2010002005"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221135350"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00431\u2010021\u201004250\u20105"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904\u2010020\u201000672\u20104"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.31878"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2022.12.139"},{"key":"e_1_2_11_15_1","unstructured":"A. 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B.Mikkelsen \u201cD\u00f8dssted og d\u00f8ds\u00e5rsager blandt b\u00f8rn og unge i Danmark \u2013 i perioden 2012\u20132020 \u201d [Place of Death and Cause of Death Among Children and Adolescents in Denmark \u2013 From 2012\u20132020] (2024) REHPA Videncenter for Rehabilitering og Palliation accessed August 23 2025 https:\/\/www.rehpa.dk\/wp\u2010content\/uploads\/2024\/10\/Doedssted\u2010og\u2010doedsaarsager\u2010blandt\u2010boern\u2010og\u2010unge\u2010i\u2010Danmark\u2010%E2%80%93\u2010i\u2010perioden\u20102012\u20102020.pdf."},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1017\/s1478951517001237"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1080\/24694193.2020.1745325"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare12090868"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare12090868"},{"issue":"2","key":"e_1_2_11_20_1","first-page":"875","article-title":"Health Professionals' Views on Pediatric Palliative Care: A Mixed\u2010Methods Systematic Review","volume":"15","author":"Anastasopoulou E.","year":"2022","journal-title":"International Journal of Caring Sciences"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1017\/s1478951519000956"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2021.27457"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/2057158517701664"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.13701"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2018.10.509"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12912\u2010015\u20100114\u20106"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.3390\/medicina57090924"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913\u2010023\u201010495\u20107"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781003228073"},{"key":"e_1_2_11_30_1","doi-asserted-by":"publisher","DOI":"10.3390\/children10040700"},{"key":"e_1_2_11_31_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10728\u2010025\u201000547\u2010w"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.1111\/jonm.12506"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049909115607296"},{"key":"e_1_2_11_34_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319866576"},{"key":"e_1_2_11_35_1","doi-asserted-by":"publisher","DOI":"10.1177\/10499091231201599"},{"key":"e_1_2_11_36_1","doi-asserted-by":"publisher","DOI":"10.1097\/00012272\u2010197810000\u201000004"},{"key":"e_1_2_11_37_1","first-page":"1","volume-title":"Knowledge Development in Nursing. 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