{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,22]],"date-time":"2026-10-22T15:30:24Z","timestamp":1792683024598,"version":"4.5.0"},"reference-count":18,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,7,6]],"date-time":"2026-07-06T00:00:00Z","timestamp":1783296000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,7,6]],"date-time":"2026-07-06T00:00:00Z","timestamp":1783296000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100009708","name":"Novo Nordisk Fonden","doi-asserted-by":"publisher","award":["0059016"],"award-info":[{"award-number":["0059016"]}],"id":[{"id":"10.13039\/501100009708","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Caregivers of stroke survivors often face challenges due to the complex nature of caregiving responsibilities and the lack of adequate support systems. Understanding their burden of care and experiences with healthcare professionals is crucial for improving caregiver well\u2010being and patient outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>Was to identify unmet needs for support among caregivers of stroke survivors by exploring their burden of care and experiences of collaboration and support provided by health professionals.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Qualitative semi\u2010structured interviews were conducted with informal caregivers of stroke survivors. Participants were recruited from a university hospital, among caregivers of patients discharged after a moderate to severe stroke (modified Rankin Scale score 3\u20135). Thematic analysis was conducted to identify recurring patterns and themes within the data.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Fifteen participants were interviewed, and three interconnected themes were constructed from the data: \u201cNew roles and a new life,\u201d \u201cconflicting expectations,\u201d and \u201cunmet needs for information and advice.\u201d Caregivers described the burden of assuming multiple responsibilities, navigating expectations, and adapting their home and life to accommodate the needs of the stroke survivor. Further, they expressed dissatisfaction with the support and information provided by healthcare professionals, highlighting unmet needs for clearer communication, follow\u2010up and guidance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Caregivers of stroke survivors experience a significant burden. The findings show poor communication, care continuity, and information to support caregivers. Meeting those needs may reduce caregiver burden and enhance their experience with the healthcare system. This highlights the need for more stroke\u2010specific education and targeted research on effective interventions.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/scs.70294","type":"journal-article","created":{"date-parts":[[2026,7,6]],"date-time":"2026-07-06T07:42:58Z","timestamp":1783323778000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["The Neglected Care Burden and Unmet Needs of Informal Caregivers of Stroke Survivors. A Qualitative Study"],"prefix":"10.1111","volume":"40","author":[{"given":"Linn Wagner","family":"S\u00f8nderby","sequence":"first","affiliation":[{"name":"Department of Nursing and Nutrition University College Copenhagen  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria S\u00f8e","family":"Mattson","sequence":"additional","affiliation":[{"name":"Department of Nursing and Nutrition University College Copenhagen  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacob","family":"Liljehult","sequence":"additional","affiliation":[{"name":"Department of Neurology Nordsj\u00e6llands Hospital  Hiller\u00f8d Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique Mesot","family":"Liljehult","sequence":"additional","affiliation":[{"name":"Department of Neurology Nordsj\u00e6llands Hospital  Hiller\u00f8d Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorthe","family":"Overgaard","sequence":"additional","affiliation":[{"name":"Department of Nursing and Nutrition University College Copenhagen  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Signe Stelling","family":"Risom","sequence":"additional","affiliation":[{"name":"Department of Nursing and Nutrition University College Copenhagen  Copenhagen Denmark"},{"name":"Faculty of Health and Medical Sciences University of Copenhagen  Copenhagen Denmark"},{"name":"Department of Cardiology Herlev and Gentofte University Hospital  Herlev Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,6]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/17474930211065917"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/1747493019858776"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2016.1140836"},{"key":"e_1_2_11_5_1","volume-title":"Cochrane Database of Systematic Reviews","author":"Legg L. A.","year":"2011"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD008179.PUB2"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.3389\/FPUBH.2021.758808"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/JNN.0000000000000552"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2016.08.014"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2020.1756470"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2011.650307"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.35680\/2372\u20100247.1338"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2013.783630"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jstrokecerebrovasdis.2022.106607"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.3390\/HEALTHCARE12050565"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1186\/S12913\u2010022\u201007804\u2010X\/TABLES\/5"},{"key":"e_1_2_11_17_1","volume-title":"Doing Qualitative Research","author":"Crabtree B.","year":"2000"},{"key":"e_1_2_11_18_1","volume-title":"Interview \u2010 Det kvalitative forskningsinterview som h\u00e5ndv\u00e6rk","author":"Kvale S.","year":"2015"},{"key":"e_1_2_11_19_1","unstructured":"National Institute for Health and Care Excellence \u201cStroke rehabilitation in adults \u201d 2023."}],"container-title":["Scandinavian Journal of Caring Sciences"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70294","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/scs.70294","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/scs.70294","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T23:51:04Z","timestamp":1790380264000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/scs.70294"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,6]]},"references-count":18,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/scs.70294"],"URL":"https:\/\/doi.org\/10.1111\/scs.70294","archive":["Portico"],"relation":{},"ISSN":["0283-9318","1471-6712"],"issn-type":[{"value":"0283-9318","type":"print"},{"value":"1471-6712","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,6]]},"assertion":[{"value":"2024-10-10","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-15","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-07-06","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70294"}}