{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T01:59:55Z","timestamp":1747187995421,"version":"3.40.5"},"reference-count":22,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2020,11,18]],"date-time":"2020-11-18T00:00:00Z","timestamp":1605657600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100008235","name":"School of Medicine","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008235","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100003579","name":"University of Toronto","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003579","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100007074","name":"Fondazione CON IL SUD","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007074","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian J Psychology"],"published-print":{"date-parts":[[2021,2]]},"abstract":"<jats:p>We tested the hypothesis that a narrative approach may enhance a bio\u2010psycho\u2010social model (BPS) in caring for chronically ill children. Forty\u2010eight narratives were collected from 12 children with six different medical conditions, their mothers, physicians, and nurses. By a textual analysis, narratives were classified on their predominant focus as <jats:italic>disease<\/jats:italic> (biological focus), <jats:italic>illness<\/jats:italic> (psychologic focus), or <jats:italic>sickness<\/jats:italic> (social focus).<\/jats:p><jats:p>Sixty\u2010one percent of narrative\u2019 text were classified as <jats:italic>illness<\/jats:italic>, 28% as <jats:italic>disease<\/jats:italic> and 11% as <jats:italic>sickness<\/jats:italic>. All narratives had a degree of illness focus. Narratives by patients and physicians on the one hand, and nurses\u2019 and mothers\u2019 on the other were disease focused. Narratives were also evaluated with respect to the type of medical condition: <jats:italic>Illness<\/jats:italic> was largely prevalent in all but Crohn\u2019s disease and HIV infection, the latter having a predominance of <jats:italic>sickness<\/jats:italic> most probably related to stigma.<\/jats:p><jats:p>Narrative exploration proved a valuable tool for understanding and addressing the needs of children with complex conditions. Narrative approaches allow identification of the major needs of different patients according to health conditions and story tellers. In the narratives, we found a greater illness and disease focus and surprisingly a low sickness focus, except with HIV stories.<\/jats:p><jats:p>Narrative medicine provides a tool to strengthen the BPS model in health care.<\/jats:p>","DOI":"10.1111\/sjop.12690","type":"journal-article","created":{"date-parts":[[2020,11,18]],"date-time":"2020-11-18T21:32:41Z","timestamp":1605735161000},"page":"58-63","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer"],"prefix":"10.1111","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3968-9808","authenticated-orcid":false,"given":"Grazia I.","family":"Continisio","sequence":"first","affiliation":[{"name":"Department of Neurosciences University of Naples Federico II Naples Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Francesco","family":"Nunziata","sequence":"additional","affiliation":[{"name":"Department of Translational Medical Science Section of Pediatrics University of Naples Federico II Naples Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3588-3846","authenticated-orcid":false,"given":"Clara","family":"Coppola","sequence":"additional","affiliation":[{"name":"Department of Translational Medical Science Section of Pediatrics University of Naples Federico II Naples Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dario","family":"Bruzzese","sequence":"additional","affiliation":[{"name":"Department of Public Health University of Naples Federico II Naples Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria I.","family":"Spagnuolo","sequence":"additional","affiliation":[{"name":"Department of Translational Medical Science Section of Pediatrics University of Naples Federico II Naples Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alfredo","family":"Guarino","sequence":"additional","affiliation":[{"name":"Department of Translational Medical Science Section of Pediatrics University of Naples Federico II Naples Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,11,18]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/02667363.2014.949627"},{"key":"e_1_2_8_3_1","unstructured":"Association of Maternal and Child Health Programs(2014).Standards for systems of care for children and youth with special health care needs.Washington DC. 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