{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T16:19:59Z","timestamp":1787501999206,"version":"build-2736575974"},"reference-count":16,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2022,6,24]],"date-time":"2022-06-24T00:00:00Z","timestamp":1656028800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Transfusion Medicine"],"published-print":{"date-parts":[[2023,2]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>In 2005, the blood service in England notified 101 donors by letter that they may be at risk of variant Creutzfeldt\u2013Jakob disease (vCJD) because a recipient of their blood later developed vCJD. Donor experience of the notification was studied in a 2009 survey.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Fifteen questions focused on satisfaction, emotional response and understanding of the notification letter. An average Likert score was calculated: 1 and 2\u00a0=\u2009dissatisfied, 3\u00a0=\u2009equivocal and 4 and 5\u00a0=\u2009satisfied; the per cent satisfied and dissatisfied were calculated and characteristics compared using the Fisher and Chi\u2010squared tests.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The questionnaire was completed by 56 of 90 notified donors, mostly repeat, U.K.\u2010born donors over 45\u2009years of age. Four years after notification, many individuals still felt surprise (44%), upset (44%) or worry (50%) about the letter, with 10 feeling depressed. Thirty per cent were uncertain if they had vCJD or not. For future notifications, 57% would still favour a detailed letter and 36% would prefer a discussion in person.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>It was notable how many individuals, 4\u2009years later, still felt continuing anxiety about the vCJD notification letter, not noted in earlier interviews. This highlights a need for on\u2010going support required in donor notifications where outcome for the individual is highly uncertain.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/tme.12891","type":"journal-article","created":{"date-parts":[[2022,6,25]],"date-time":"2022-06-25T00:29:42Z","timestamp":1656116982000},"page":"75-80","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Blood donor notification of variant Creutzfeldt\u2013Jakob disease risk: Lessons in communicating donor deferral and risk"],"prefix":"10.1111","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3452-0832","authenticated-orcid":false,"given":"Claire A.","family":"Reynolds","sequence":"first","affiliation":[{"name":"NHS Blood and Transplant\/ United Kingdom Health Security Agency Epidemiology Unit  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tali","family":"Yawitch","sequence":"additional","affiliation":[{"name":"NHS Blood and Transplant\/ United Kingdom Health Security Agency Epidemiology Unit  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia E.","family":"Hewitt","sequence":"additional","affiliation":[{"name":"(Retired) Microbiology Services, NHS Blood and Transplant  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9154-4190","authenticated-orcid":false,"given":"Heli","family":"Harvala","sequence":"additional","affiliation":[{"name":"Microbiology Services NHS Blood and Transplant  London UK"},{"name":"Infection and Immunity University College of London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,6,24]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/s0140\u20106736(96)91412\u20109"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1423\u20100410.2006.00833.x"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.2807\/esw.10.29.02755\u2010en"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1258\/147775006778246478"},{"key":"e_1_2_9_6_1","unstructured":"Creutzfeldt\u2013Jakob disease (CJD): guidance data and analysis \u2010 GOV.UK(www.gov.uk)https:\/\/www.gov.uk\/government\/collections\/creutzfeldt-jakob-disease-cjd-guidance-data-and-analysis"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1159\/000328646"},{"key":"e_1_2_9_8_1","unstructured":"Expert Report to the Infected Blood Inquiry: Psychosocial Issues.2020.https:\/\/www.infectedbloodinquiry.org.uk\/sites\/default\/files\/documents\/Psychosocial%20Group%20Report.pdf. Accessed November 10 2021"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.cd007578.pub2"},{"key":"e_1_2_9_10_1","volume-title":"Internet, Mail, and Mixed\u2010Mode Surveys: the Tailored Design Method, Ed 3","author":"Dillman DA","year":"2008"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1093\/acprof:oso\/9780199231881.001.0001"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/poq\/nfj012"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.316.7125.130"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1634\/theoncologist.5\u20104\u2010302"},{"issue":"7","key":"e_1_2_9_15_1","first-page":"771","article-title":"Notifying patients exposed to blood products associated with Creutzfeldt\u2013Jakob disease: theoretical risk for real people","volume":"159","author":"King SM","year":"1998","journal-title":"CMAJ"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/vox.12143"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/voxs.12463"}],"container-title":["Transfusion Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/tme.12891","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/tme.12891","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/tme.12891","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,17]],"date-time":"2023-08-17T14:53:12Z","timestamp":1692283992000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/tme.12891"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,6,24]]},"references-count":16,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,2]]}},"alternative-id":["10.1111\/tme.12891"],"URL":"https:\/\/doi.org\/10.1111\/tme.12891","archive":["Portico"],"relation":{},"ISSN":["0958-7578","1365-3148"],"issn-type":[{"value":"0958-7578","type":"print"},{"value":"1365-3148","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,6,24]]},"assertion":[{"value":"2021-11-29","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-06-08","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-06-24","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}