{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,11]],"date-time":"2026-10-11T02:57:16Z","timestamp":1791687436462,"version":"4.3.4"},"reference-count":11,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2021,8,22]],"date-time":"2021-08-22T00:00:00Z","timestamp":1629590400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Transfusion"],"published-print":{"date-parts":[[2021,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Many blood collection agencies are generating important data on donor health outcomes using large\u2010scale blood donor cohort studies. Such studies can be very effective when donors provide access to linkage of their data to external health databases, and storage and genomic testing of their blood sample. In this study, we aimed to assess the willingness of Australian blood donors to provide additional data and blood sample for donation\u2010related and other health research.<\/jats:p><\/jats:sec><jats:sec><jats:title>Study design and methods<\/jats:title><jats:p>We invited 2017 donors to complete a survey using four methods (postal letter, postal letter and email, email only, and in\u2010center recruitment). The survey asked for information on demographics, lifestyle behaviors, health, experience and attitude to blood donation, and willingness to give blood sample and additional data for research.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Response rates ranged from 23.8% for email only to 77.2% for in\u2010center recruitment. Of those who responded (<jats:italic>n<\/jats:italic>\u00a0=\u00a0827), 95.5% indicated they would be willing to provide a blood sample for donation and transfusion\u2010related research. Of these, &gt;90.0% were willing for their sample to be used in research involving genetic testing and other health\u2010related topics. Also, &gt;90.0% were willing to consent for linkage of their information to external health databases.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Donors surveyed reported a high willingness to participate in health research by completing surveys, allowing linkage to external datasets, and providing a blood sample. These findings provide strong support for future longitudinal research studies with Australian blood donors.<\/jats:p><\/jats:sec>","DOI":"10.1111\/trf.16629","type":"journal-article","created":{"date-parts":[[2021,8,23]],"date-time":"2021-08-23T02:56:12Z","timestamp":1629687372000},"page":"2855-2861","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Willingness of blood donors in Australia to provide additional data and blood sample for health research"],"prefix":"10.1111","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1561-4171","authenticated-orcid":false,"given":"Surendra","family":"Karki","sequence":"first","affiliation":[{"name":"Research and Development Australian Red Cross Lifeblood  Alexandria New South Wales Australia"},{"name":"School of Population Health UNSW Australia  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3030-5086","authenticated-orcid":false,"given":"Carley N.","family":"Gemelli","sequence":"additional","affiliation":[{"name":"Research and Development Australian Red Cross Lifeblood  Alexandria New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tanya E.","family":"Davison","sequence":"additional","affiliation":[{"name":"Research and Development Australian Red Cross Lifeblood  Alexandria New South Wales Australia"},{"name":"Silver Chain Group  Melbourne Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9385-6497","authenticated-orcid":false,"given":"Barbara M.","family":"Masser","sequence":"additional","affiliation":[{"name":"Research and Development Australian Red Cross Lifeblood  Alexandria New South Wales Australia"},{"name":"School of Psychology The University of Queensland  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3674-6934","authenticated-orcid":false,"given":"Denese C.","family":"Marks","sequence":"additional","affiliation":[{"name":"Research and Development Australian Red Cross Lifeblood  Alexandria New South Wales Australia"},{"name":"Sydney Medical School The University of Sydney  Camperdown New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katy","family":"Bell","sequence":"additional","affiliation":[{"name":"School of Public Health The University of Sydney  Camperdown New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bette","family":"Liu","sequence":"additional","affiliation":[{"name":"School of Population Health UNSW Australia  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Hayen","sequence":"additional","affiliation":[{"name":"School of Public Health University of Technology Sydney  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katja","family":"van den Hurk","sequence":"additional","affiliation":[{"name":"Donor Studies, Department of Donor Medicine Research Sanquin Research  Amsterdam The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David O.","family":"Irving","sequence":"additional","affiliation":[{"name":"Research and Development Australian Red Cross Lifeblood  Alexandria New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,8,22]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/voxs.12119"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1537-2995.2010.03022.x"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/vox.12731"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/vox.12856"},{"key":"e_1_2_7_6_1","unstructured":"Australian Bureau of Statistics.National Health Survey: First results 2017\u20132018 financial year. Available from:https:\/\/www.abs.gov.au\/statistics\/health\/health-conditions-and-risks\/national-health-survey-first-results\/2017-18. Accessed 23 Feb 2021."},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/vox.12856"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41431-019-0434-1"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/trf.14596"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/eurpub\/ckq136"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40504-019-0094-5"},{"key":"e_1_2_7_12_1","unstructured":"NSW Health Statewide Biobank. Available from:https:\/\/biobank.health.nsw.gov.au\/. Accessed 24 Jun 2021."}],"container-title":["Transfusion"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/trf.16629","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/trf.16629","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/trf.16629","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,29]],"date-time":"2023-08-29T20:48:52Z","timestamp":1693342132000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/trf.16629"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,8,22]]},"references-count":11,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2021,10]]}},"alternative-id":["10.1111\/trf.16629"],"URL":"https:\/\/doi.org\/10.1111\/trf.16629","archive":["Portico"],"relation":{},"ISSN":["0041-1132","1537-2995"],"issn-type":[{"value":"0041-1132","type":"print"},{"value":"1537-2995","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,8,22]]},"assertion":[{"value":"2021-05-10","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-07-05","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-08-22","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}