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However, attrition is a major challenge in long\u2010term outcome studies. Examining the techniques used by existing cohorts may help to reveal practices that enhance willingness to continue participation over time.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objectives<\/jats:title><jats:p>To evaluate the effect of data collection methods and retention strategies on overall retention in European birth cohorts of individuals born very preterm and very low birthweight.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A survey of European cohorts integrated in the RECAP\u2010preterm Consortium provided data on study characteristics, retention at the most recent follow\u2010up, data collection methods and retention strategies. Cohorts were classified according to participants\u2019 age at most recent follow\u2010up as child (&lt;18) or adult cohorts (\u226518\u00a0years old).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Data were obtained for 17 (81%) cohorts (7 adult and 10 child) in 12 countries. Considering the baseline, at the most recent follow\u2010up, overall retention ranged from 10% to 99%. Child cohorts presented higher median retention (68% versus 38% or 52% for adult cohorts with \u22645 or &gt;5 follow\u2010ups) and used relatively more retention strategies. For contact and invitation, cohorts mostly resorted to invitation letters, and to face\u2010to\u2010face interviews for assessments. Study duration was negatively correlated with retention and positively associated with the number of follow\u2010up evaluation. We identified 109 retention strategies, with a median of 6 per cohort; bond\u2010building (<jats:italic>n<\/jats:italic>\u00a0=\u00a041; 38%) was the most utilised, followed by barrier\u2010reduction (<jats:italic>n<\/jats:italic>\u00a0=\u00a036; 33%) and reminders (<jats:italic>n<\/jats:italic>\u00a0=\u00a032; 29%). Retention was not influenced by category or number of strategies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Regular contact with cohort participants favour retention whilst neither the number nor the categories of retention strategies used seemed to have an influence, suggesting that tailored strategies focussed on participants at higher risk of dropout might be a more effective approach.<\/jats:p><\/jats:sec>","DOI":"10.1111\/ppe.12845","type":"journal-article","created":{"date-parts":[[2021,12,27]],"date-time":"2021-12-27T15:51:54Z","timestamp":1640620314000},"page":"706-714","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Survey of data collection methods and retention strategies in European birth cohorts of children and adults born very preterm"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1942-8317","authenticated-orcid":false,"given":"Raquel","family":"Teixeira","sequence":"first","affiliation":[{"name":"EPIUnit \u2010 Instituto de Sa\u00fade P\u00fablica Universidade do Porto  Porto Portugal"},{"name":"Laborat\u00f3rio para a Investiga\u00e7\u00e3o Integrativa e Translacional em Sa\u00fade Populacional (ITR)  Porto Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1388-9542","authenticated-orcid":false,"given":"Julia","family":"Doetsch","sequence":"additional","affiliation":[{"name":"EPIUnit \u2010 Instituto de Sa\u00fade P\u00fablica Universidade do Porto  Porto Portugal"},{"name":"Laborat\u00f3rio para a Investiga\u00e7\u00e3o Integrativa e Translacional em Sa\u00fade Populacional (ITR)  Porto Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4276-356X","authenticated-orcid":false,"given":"Ana Isabel","family":"Freitas","sequence":"additional","affiliation":[{"name":"EPIUnit \u2010 Instituto de Sa\u00fade P\u00fablica Universidade do Porto  Porto Portugal"},{"name":"Laborat\u00f3rio para a Investiga\u00e7\u00e3o Integrativa e Translacional em Sa\u00fade Populacional (ITR)  Porto Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9654-8104","authenticated-orcid":false,"given":"Elsa","family":"Lorthe","sequence":"additional","affiliation":[{"name":"EPIUnit \u2010 Instituto de Sa\u00fade P\u00fablica Universidade do Porto  Porto Portugal"},{"name":"Laborat\u00f3rio para a Investiga\u00e7\u00e3o Integrativa e Translacional em Sa\u00fade Populacional (ITR)  Porto Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2992-5299","authenticated-orcid":false,"given":"Ana Cristina","family":"Santos","sequence":"additional","affiliation":[{"name":"EPIUnit \u2010 Instituto de Sa\u00fade P\u00fablica Universidade do Porto  Porto Portugal"},{"name":"Laborat\u00f3rio para a Investiga\u00e7\u00e3o Integrativa e Translacional em Sa\u00fade Populacional (ITR)  Porto Portugal"},{"name":"Departamento de Ci\u00eancias da Sa\u00fade P\u00fablica e Forenses e Educa\u00e7\u00e3o M\u00e9dica Faculdade de Medicina Universidade do Porto  Porto Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4699-6571","authenticated-orcid":false,"given":"Henrique","family":"Barros","sequence":"additional","affiliation":[{"name":"EPIUnit \u2010 Instituto de Sa\u00fade P\u00fablica Universidade do Porto  Porto Portugal"},{"name":"Laborat\u00f3rio para a Investiga\u00e7\u00e3o Integrativa e Translacional em Sa\u00fade Populacional (ITR)  Porto Portugal"},{"name":"Departamento de Ci\u00eancias da Sa\u00fade P\u00fablica e Forenses e Educa\u00e7\u00e3o M\u00e9dica Faculdade de Medicina Universidade do Porto  Porto Portugal"}]},{"name":"the RECAP\u2010preterm consortium","sequence":"additional","affiliation":[]}],"member":"311","published-online":{"date-parts":[[2021,12,27]]},"reference":[{"key":"e_1_2_9_2_1","unstructured":"Euro\u2010Peristat Project.European Perinatal Health Report. 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