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The course of the disease and all the life readjustments needed may generate a multitude of fears in patients and families.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>This study aimed to explore the main fears and concerns of patients with ESRD undergoing HD and their family members.<\/jats:p><jats:p>Study design.<\/jats:p><jats:p>A qualitative study was performed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Individual semi\u2010structured interviews were conducted with three groups: 20 patients, 14 family caregivers and 15 patient\u2013family dyads. Interviews were audiotaped, transcribed verbatim and submitted to thematic analysis.<\/jats:p><jats:p>Findings.<\/jats:p><jats:p>Five major themes emerged: (i) fear of death (fear of earlier death, fear of a sudden death and fear of dying); (ii) fear of problems during HD (fears related to the vascular access, and fear of complications during HD); (iii) concerns related to the disease (fear of loss of autonomy, fears of getting worse, fears related to renal transplantation and concerns about dietary restrictions); (iv) fear about the future; and (v) absence of fears and concerns.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>Patients with ESRD undergoing HD and their family members expressed different fears related to the disease and the treatments required. Renal care staff must acknowledge and understand such concerns and help patients and families to cope. This is important to improving people's quality of life (QoL), the dialogue between health professionals, patients, and family members, and the care offered by the dialysis care settings. Moreover, this study highlights the impact this disease has at a familial level. Future family\u2010based interventions should acknowledge possible fears and concerns of this population and integrate them into their programs.<\/jats:p><\/jats:sec>","DOI":"10.1111\/scs.12940","type":"journal-article","created":{"date-parts":[[2020,12,8]],"date-time":"2020-12-08T07:04:01Z","timestamp":1607411041000},"page":"1216-1225","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["\u201cWhat do we fear the most?\u201d: Exploring fears and concerns of patients, family members and dyads in end\u2010stage renal disease"],"prefix":"10.1111","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1253-7660","authenticated-orcid":false,"given":"Roberta","family":"Frontini","sequence":"first","affiliation":[{"name":"Center for Health Technology and Services Research (CINTESIS.UA) School of Health Sciences University of Aveiro (Campus Universit\u00e1rio de Santiago) Aveiro Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0832-0004","authenticated-orcid":false,"given":"Helena","family":"Sousa","sequence":"additional","affiliation":[{"name":"Center for Health Technology and Services Research (CINTESIS.UA) School of Health Sciences University of Aveiro (Campus Universit\u00e1rio de Santiago) Aveiro Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4740-7951","authenticated-orcid":false,"given":"\u00d3scar","family":"Ribeiro","sequence":"additional","affiliation":[{"name":"Center for Health Technology and Services Research (CINTESIS.UA) Department of Education and Psychology University of Aveiro (Campus Universit\u00e1rio de Santiago) Aveiro Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3160-7871","authenticated-orcid":false,"given":"Daniela","family":"Figueiredo","sequence":"additional","affiliation":[{"name":"Center for Health Technology and Services Research (CINTESIS.UA) School of Health Sciences University of Aveiro (Campus Universit\u00e1rio de Santiago) Aveiro Portugal"}]}],"member":"311","published-online":{"date-parts":[[2020,12,7]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2012.703670"},{"key":"e_1_2_10_3_1","first-page":"85","article-title":"Nephrology and intervention in the community \u2013 On the need for improving the interplay between nephrology centers and primary care in Portugal","volume":"33","author":"Beir\u00e3o I","year":"2019","journal-title":"Port J Nephrol Hypertens"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.xkme.2019.10.011"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1590\/S0103-21002010000400016"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/B978-0-12-815876-0.00070-X"},{"key":"e_1_2_10_7_1","first-page":"1","article-title":"The effects of supported shared\u2010care and hemodialysis self\u2010care on patient psychological well\u2010being, interdialytic weight gain, and blood pressure control","volume":"24","author":"Maharjan SRS","year":"2019","journal-title":"Hemodial Int"},{"key":"e_1_2_10_8_1","first-page":"190","article-title":"Immersing in problems: Challenges of women living with the husband on hemodialysis","volume":"6","author":"Baghcheghi N","year":"2019","journal-title":"Nurs Pract Today"},{"key":"e_1_2_10_9_1","first-page":"377","article-title":"The End\u2010Stage Renal Disease Adherence Questionnaire (ESRD\u2010AQ): testing the psychometric properties in patients receiving in\u2010center hemodialysis","volume":"37","author":"Kim Y","year":"2010","journal-title":"Nephrol Nurs J"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12235"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/sdi.12065"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.21037\/apm.2019.03.04"},{"key":"e_1_2_10_13_1","unstructured":"American Kidney Fund.Barriers to Treatment Adherence for Dialysis Patients. 2018."},{"key":"e_1_2_10_14_1","doi-asserted-by":"crossref","unstructured":"CabralAL deOliveiraJGR JardimMHA MeloAK daSilvaJunior G.Impact of Chronic Kidney Disease on Patients Work Activities. 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