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Despite being eligible for free healthcare services under the Rashtriya Bal Swasthya Karyakram, the child remained unlinked to it. Contributing factors to this delayed intervention included the family\u2019s low socio-economic status, profound lack of awareness of the condition, poor healthcare-seeking behaviour and insufficient engagement from healthcare workers. Moreover, complex psychosocial issues, such as maternal depression, parental substance abuse, limited social support and insufficient family involvement, further intensified the obstacles to the optimal growth and development of the child, highlighting the multifaceted factors that shape health outcomes in vulnerable populations.<\/jats:p>","DOI":"10.1136\/bcr-2024-262779","type":"journal-article","created":{"date-parts":[[2026,3,5]],"date-time":"2026-03-05T14:35:14Z","timestamp":1772721314000},"page":"e262779","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":0,"title":["Navigating challenges: a child with Apert syndrome and global developmental delay from a low-income family"],"prefix":"10.1136","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4599-9343","authenticated-orcid":false,"given":"Payel","family":"Roy","sequence":"first","affiliation":[{"name":"Community & Family Medicine, AIIMS Bhubaneswar, Bhubaneswar, Odisha, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Manish","family":"Taywade","sequence":"additional","affiliation":[{"name":"Community & Family Medicine, AIIMS Bhubaneswar, Bhubaneswar, Odisha, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pankaj Kumar","family":"Mohanty","sequence":"additional","affiliation":[{"name":"Neonatology, AIIMS Bhubaneswar, Bhubaneswar, Odisha, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sonu Hangma","family":"Subba","sequence":"additional","affiliation":[{"name":"Community & Family Medicine, AIIMS Bhubaneswar, Bhubaneswar, Odisha, India"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2026,3,5]]},"reference":[{"key":"2026030506350645000_19.3.e262779.1","doi-asserted-by":"crossref","first-page":"223","DOI":"10.1016\/j.jcms.2016.11.018","article-title":"Apert syndrome: A consensus on the management of Apert hands","volume":"45","author":"Pettitt","year":"2017","journal-title":"J Craniomaxillofac Surg"},{"key":"2026030506350645000_19.3.e262779.2","doi-asserted-by":"publisher","DOI":"10.1007\/s13353-017-0423-4"},{"key":"2026030506350645000_19.3.e262779.3","doi-asserted-by":"publisher","DOI":"10.1038\/ng0295-165"},{"key":"2026030506350645000_19.3.e262779.4","first-page":"194","article-title":"Stress Levels and Adaptability in Parents of Toddlers with and without Autism Spectrum Disorders","volume":"30","author":"Baker-Ericz\u00e9n","year":"2005","journal-title":"Res Pract Persons Severe Disabl"},{"key":"2026030506350645000_19.3.e262779.5","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2006.00904.x"},{"key":"2026030506350645000_19.3.e262779.6","doi-asserted-by":"crossref","DOI":"10.3389\/fpsyt.2023.1198302","article-title":"Parental stress in families of children with special educational needs: a systematic review","volume":"14","author":"Cheng","year":"2023","journal-title":"Front Psychiatry"},{"key":"2026030506350645000_19.3.e262779.7","unstructured":"Rashtriya Bal Swasthya Karyakram (RBSK). 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