{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T11:00:02Z","timestamp":1765882802890,"version":"3.48.0"},"reference-count":20,"publisher":"BMJ","issue":"7","content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2014,7,7]]},"published-print":{"date-parts":[[2014,7]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Percutaneous pulmonary valve implantation is an alternative to open heart surgery in selected patients with pulmonary outflow tract disorder. The technique may reduce the number of open-chest surgeries in these patients. This study was conducted to understand how the patients and their next-of-kin experienced this new treatment option.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Qualitative explorative design with individual in-depth interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Oslo University Hospital, the only cardiac centre in Norway offering advanced surgical and interventional treatment to patient with congenital heart defects, serving the whole Norwegian population.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>During a 2-year period a total of 10 patients, median age 17 (7\u201330) and 18 next-of-kin were consecutively selected for individual in-depth interviews 3\u20136\u2005months after the pulmonary valve implantation. The verbatim transcripts were analysed using a phenomenological methodology.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Patients emphasised the importance of regaining independence and taking control of daily life shortly after the new interventional treatment. Renewed hope towards treatment options was described as \u2018a light in the tunnel\u2019. Next-of-kin emphasised the importance both for the patient and their family of resuming normal life quickly after the procedure. The physical burden was experienced as minor after the minimally invasive intervention, compared to their previous experience with surgical procedures.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main outcome measure<\/jats:title>\n                    <jats:p>The importance of maintaining normality in everyday life for a good family function.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The repeated surgeries during infancy and adolescence of patients with congenital heart disease represent a heavy burden both for the patient and their family. All families especially emphasised the importance of resuming normal life quickly after each procedure. The novel technique of pulmonary valve implantation is thus a favourable approach because of minor interference in daily life.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2014-005102","type":"journal-article","created":{"date-parts":[[2014,7,31]],"date-time":"2014-07-31T00:21:16Z","timestamp":1406766076000},"page":"e005102","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":9,"title":["Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin"],"prefix":"10.1136","volume":"4","author":[{"given":"Brith","family":"Andresen","sequence":"first","affiliation":[{"name":"The Intervention Centre, Oslo University Hospital, Oslo, Norway"},{"name":"The Department of Cardiothoracic Surgery, Oslo University Hospital, Rikshospitalet, Oslo, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marit Helen","family":"Andersen","sequence":"additional","affiliation":[{"name":"Division of Cancer Medicine, Surgery and Transplantation, Oslo University Hospital, Rikshospitalet, Oslo, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Harald","family":"Lindberg","sequence":"additional","affiliation":[{"name":"The Department of Cardiothoracic Surgery, Oslo University Hospital, Rikshospitalet, Oslo, Norway"},{"name":"Faculty of Medicine, Institute for Clinical Medicine, University of Oslo, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gaute","family":"D\u00f8hlen","sequence":"additional","affiliation":[{"name":"The Department of Pediatric Cardiology, Oslo University Hospital, Rikshospitalet, Oslo, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erik","family":"Fosse","sequence":"additional","affiliation":[{"name":"The Intervention Centre, Oslo University Hospital, Oslo, Norway"},{"name":"Faculty of Medicine, Institute for Clinical Medicine, University of Oslo, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2014,7,29]]},"reference":[{"key":"2025121602552195000_4.7.e005102.1","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.110.946343"},{"key":"2025121602552195000_4.7.e005102.2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM200001273420407"},{"key":"2025121602552195000_4.7.e005102.3","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2008.01152.x"},{"key":"2025121602552195000_4.7.e005102.4","doi-asserted-by":"publisher","DOI":"10.1586\/erc.09.57"},{"key":"2025121602552195000_4.7.e005102.5","doi-asserted-by":"crossref","first-page":"167","DOI":"10.1093\/pch\/14.3.167","article-title":"Physical activity participation in youth with surgically corrected congenital heart disease: devising guidelines so Johnny can participate","volume":"14","author":"Moola","year":"2009","journal-title":"Paediatr Child Health"},{"key":"2025121602552195000_4.7.e005102.6","first-page":"34","article-title":"Elements of psychocardiology in the psychosocial handling of adults with congenital heart disease","volume":"1","author":"Callus","year":"2010","journal-title":"Front Psychol"},{"key":"2025121602552195000_4.7.e005102.7","first-page":"1147","article-title":"Cost-analysis of percutaneous pulmonary valve implantation compared to surgical pulmonary valve replacement","volume":"82","author":"Vergales","year":"2013","journal-title":"Catheter Cardiovasc Interv"},{"key":"2025121602552195000_4.7.e005102.8","doi-asserted-by":"crossref","first-page":"781","DOI":"10.1111\/j.1365-2214.2008.00851.x","article-title":"I am almost like a fish: an investigation of how children with congenital heart disease experience and perform movement in daily life","volume":"34","author":"Bj\u00f8rkmo","year":"2008","journal-title":"Child Care Health Dev"},{"key":"2025121602552195000_4.7.e005102.9","doi-asserted-by":"crossref","first-page":"187","DOI":"10.1097\/JCN.0b013e3182498677","article-title":"Living with half a heart-experiences of young adults with single ventricle physiology: a qualitative study","volume":"28","author":"Overgaard","year":"2013","journal-title":"J Cardiovasc Nurs"},{"key":"2025121602552195000_4.7.e005102.10","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1016\/j.pedn.2012.03.031","article-title":"\u201cIt's No Big Deal\u201d: adolescents with congenital heart disease","volume":"28","author":"Shearer","year":"2013","journal-title":"J Pediatr Nurs"},{"key":"2025121602552195000_4.7.e005102.11","unstructured":"Kvale S Brinkmann S . Interviews: learning the craft of qualitative research interviewing. Los Angeles: Sage Publications, 2009."},{"key":"2025121602552195000_4.7.e005102.12","first-page":"305","article-title":"[Psychosocial difficulties and hospitalisation experiences in adults with congenital heart disease. The utility of psychological interventions]","volume":"32","author":"Callus","year":"2010","journal-title":"Pediatr Med Chir"},{"key":"2025121602552195000_4.7.e005102.13","doi-asserted-by":"crossref","first-page":"161","DOI":"10.1093\/pch\/14.3.161","article-title":"Living with complex congenital heart disease","volume":"14","author":"Human","year":"2009","journal-title":"Paediatr Child Health"},{"key":"2025121602552195000_4.7.e005102.14","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2012.06.019"},{"key":"2025121602552195000_4.7.e005102.15","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejcnurse.2004.12.003"},{"key":"2025121602552195000_4.7.e005102.16","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(00)02844-0"},{"key":"2025121602552195000_4.7.e005102.17","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehi054"},{"key":"2025121602552195000_4.7.e005102.18","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejcts.2009.03.023"},{"key":"2025121602552195000_4.7.e005102.19","doi-asserted-by":"crossref","first-page":"138","DOI":"10.1097\/00149831-200504000-00008","article-title":"Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart diseases","volume":"12","author":"Immer","year":"2005","journal-title":"Eur J Cardiovasc Prev Rehabil"},{"key":"2025121602552195000_4.7.e005102.20","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejcts.2004.01.040"}],"container-title":["BMJ Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/bmjopen-2014-005102","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T10:55:28Z","timestamp":1765882528000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmjopen.bmj.com\/lookup\/doi\/10.1136\/bmjopen-2014-005102"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,7]]},"references-count":20,"journal-issue":{"issue":"7","published-online":{"date-parts":[[2014,7,29]]},"published-print":{"date-parts":[[2014,7]]}},"alternative-id":["10.1136\/bmjopen-2014-005102"],"URL":"https:\/\/doi.org\/10.1136\/bmjopen-2014-005102","relation":{},"ISSN":["2044-6055","2044-6055"],"issn-type":[{"type":"print","value":"2044-6055"},{"type":"electronic","value":"2044-6055"}],"subject":[],"published":{"date-parts":[[2014,7]]}}}