{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T09:37:55Z","timestamp":1790761075188,"version":"4.1.0"},"reference-count":36,"publisher":"BMJ","issue":"11","content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2017,8,16]]},"published-print":{"date-parts":[[2017,11]]},"abstract":"<jats:sec>\n                  <jats:title>Objective<\/jats:title>\n                  <jats:p>To inform the development of a core outcome set for eczema by engaging with people with eczema and parents of children with eczema to understand their experiences and understanding of the concept \u2018eczema control\u2019.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Design<\/jats:title>\n                  <jats:p>37 participants took part in a total of six semi-structured online focus groups held in a typed chatroom with 5\u20137 participants per group. Three groups involved adults with eczema and three groups involved parents of children with eczema. Framework analysis was used for data analysis.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Setting<\/jats:title>\n                  <jats:p>A community-based sample was recruited from across the UK via social media and email.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Participants<\/jats:title>\n                  <jats:p>19 adults aged 17\u201361 years (15\/19 female, 16\/19 white) and 18 parents of children with eczema aged 9\u2009months\u201317 years (9\/18 female, 18\/19 white).<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Results<\/jats:title>\n                  <jats:p>Four main themes were identified:(1) \u2018Commonalities and differences in the experiences of control\u2019: a reduction in symptoms such as itch and sleep loss characterised eczema control, but what level was acceptable differed across participants;(2) \u2018Eczema control goes beyond the skin\u2019: psychological factors, social factors, the constant scratching and the impact on everyday activities are a variety of ways an individual can be impacted;(3) \u2018Stepping up and down of treatment\u2019: participants\u2019 stepped-up treatment in response to loss of control, but several factors complicated this behaviour. Control needed to be maintained after stepped-up treatment ended to be acceptable; and (4) \u2018How to measure control\u2019: self-report was generally preferred to allow frequent measurements and to capture unobservable features. Although most thought their eczema needed to be measured frequently, many also felt that this was not always realistic or desirable.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>Conclusions<\/jats:title>\n                  <jats:p>\u2018Eczema control\u2019 is a complex experience for people with eczema and parents of children with the condition. These experiences could have important implications on how long-term control should be measured in eczema clinical trials and clinical practice.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1136\/bmjopen-2017-017731","type":"journal-article","created":{"date-parts":[[2017,11,16]],"date-time":"2017-11-16T00:31:26Z","timestamp":1510792286000},"page":"e017731","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":33,"title":["\u2018When it goes back to my normal I suppose\u2019: a qualitative study using online focus groups to explore perceptions of \u2018control\u2019 among people with eczema and parents of children with eczema in the UK"],"prefix":"10.1136","volume":"7","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4157-7394","authenticated-orcid":false,"given":"Laura M","family":"Howells","sequence":"first","affiliation":[{"name":"Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne R","family":"Chalmers","sequence":"additional","affiliation":[{"name":"Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fiona","family":"Cowdell","sequence":"additional","affiliation":[{"name":"Faculty of Health Education and Life Sciences, Birmingham City University, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sonia","family":"Ratib","sequence":"additional","affiliation":[{"name":"Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7264-5260","authenticated-orcid":false,"given":"Miriam","family":"Santer","sequence":"additional","affiliation":[{"name":"Primary Care and Population Sciences, University of Southampton, Southampton, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7785-7465","authenticated-orcid":false,"given":"Kim S","family":"Thomas","sequence":"additional","affiliation":[{"name":"Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2017,11,15]]},"reference":[{"key":"2025101810261140000_7.11.e017731.1","unstructured":"Schofield J , Grindlay D , Williams H . 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