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Interview transcripts were thematically analysed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Participants\u2019 homes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>20 individuals in the mild to moderate stages of PCA and 20 family carers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Three major themes were identified: (1) the diagnostic journey: mostly an unsettling and convoluted process, owing to the early age of onset, rarity and atypical symptom profile of PCA. (2) Interactions with the physical environment: profound difficulties with functional and leisure activities were usually compensated for with adaptations maximising familiarity or simplicity. (3) Implications within the psychosocial environment: symptoms impacted individuals\u2019 sense of independence and identity and required reallocations of roles and responsibilities. Ongoing uncertainties and the progressive nature of PCA caused most dyads to take a \u2018one\u2009day at a time\u2019 approach to coping. Relatively well-preserved insight and memory were a benefit and burden, as individuals shared the illness experience with family members and also compared their current situation to pre-diagnosis. The experience was framed by background and contextual factors and understood within an ever-changing temporal context.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The stress process in PCA is characterised by uncertainty and unpredictability from diagnosis through to ongoing management. The provision of tailored information about cortical visual problems and associated functional difficulties, time-sensitive environmental adaptations to help those with PCA to identify what and where things are and psychosocial interventions for the marital\/family unit as a whole would be useful to improve both functional status and psychological well-being. Future research exploring (1) stress and coping in the later stages of PCA and (2) the nature and impact of visual impairment(s) in typical Alzheimer\u2019s disease would be worthwhile.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2017-018663","type":"journal-article","created":{"date-parts":[[2018,2,8]],"date-time":"2018-02-08T09:15:32Z","timestamp":1518081332000},"page":"e018663","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":34,"title":["\u2018Because my brain isn\u2019t as active as it should be, my eyes don\u2019t always see\u2019: a qualitative exploration of the stress process for those living with posterior cortical atrophy"],"prefix":"10.1136","volume":"8","author":[{"given":"Emma","family":"Harding","sequence":"first","affiliation":[{"name":"Dementia Research Centre, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary Pat","family":"Sullivan","sequence":"additional","affiliation":[{"name":"Dementia Research Centre, University College London, London, UK"},{"name":"Faculty of Applied and Professional Studies, Nipissing University, North Bay, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Woodbridge","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Brunel University, Uxbridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keir X X","family":"Yong","sequence":"additional","affiliation":[{"name":"Dementia Research Centre, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne","family":"McIntyre","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Brunel University, Uxbridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary L","family":"Gilhooly","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Brunel University, Uxbridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kenneth J","family":"Gilhooly","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Brunel University, Uxbridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sebastian J","family":"Crutch","sequence":"additional","affiliation":[{"name":"Dementia Research Centre, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2018,2,8]]},"reference":[{"key":"2025121400381576000_8.2.e018663.1","unstructured":"Alzheimer\u2019s Society. 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