{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T16:03:19Z","timestamp":1783008199838,"version":"3.54.5"},"reference-count":39,"publisher":"BMJ","issue":"12","funder":[{"DOI":"10.13039\/501100000664","name":"Health Technology Assessment Programme","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000664","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2017,10,4]]},"published-print":{"date-parts":[[2017,12]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To systematically review the qualitative literature of the lived experience of people with a chronic headache disorder.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Chronic headaches affect 3%\u20134% of the population. The most common chronic headache disorders are chronic migraine, chronic tension-type headache and medication overuse headache. We present a systematic review and meta-ethnographic synthesis of the lived experience of people with chronic headache.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We searched seven electronic databases, hand-searched nine journals and used a modified Critical Appraisal Skills Programme checklist to appraise study quality. Following thematic analysis we synthesised the data using a meta-ethnographic approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We identified 3586 unique citations; full texts were examined for 86 studies and 4 were included in the review. Included studies differed in their foci: exploring, patient-centred outcomes, chronic headache as a socially invisible disease, psychological processes mediating impaired quality of life, and the process of medication overuse. Initial thematic analysis and subsequent synthesis gave three overarching themes: \u2018headache as a driver of behaviour\u2019 (directly and indirectly), \u2018the spectre of headache\u2019 and \u2018strained relationships\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This meta-synthesis of published qualitative evidence demonstrates that chronic headaches have a profound effect on people\u2019s lives, showing similarities with other pain conditions. There were insufficient data to explore the similarities and differences between different chronic headache disorders.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2017-019929","type":"journal-article","created":{"date-parts":[[2017,12,16]],"date-time":"2017-12-16T00:35:37Z","timestamp":1513384537000},"page":"e019929","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":56,"title":["The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature"],"prefix":"10.1136","volume":"7","author":[{"given":"Vivien P","family":"Nichols","sequence":"first","affiliation":[{"name":"Warwick Clinical Trials Unit, Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David R","family":"Ellard","sequence":"additional","affiliation":[{"name":"Warwick Clinical Trials Unit, Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Frances E","family":"Griffiths","sequence":"additional","affiliation":[{"name":"Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Atiya","family":"Kamal","sequence":"additional","affiliation":[{"name":"Warwick Clinical Trials Unit, Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin","family":"Underwood","sequence":"additional","affiliation":[{"name":"Warwick Clinical Trials Unit, Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie J C","family":"Taylor","sequence":"additional","affiliation":[{"name":"Complex Intervention and Social Practice in Health Care Unit, Centre for Primary Care and Public Health, Blizard Institute, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, Coventry, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2017,12,15]]},"reference":[{"key":"2025121512364314000_7.12.e019929.1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-2982.2007.01288.x"},{"key":"2025121512364314000_7.12.e019929.2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-2982.2006.01210.x"},{"key":"2025121512364314000_7.12.e019929.3","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-2982.2003.00824.x"},{"key":"2025121512364314000_7.12.e019929.4","doi-asserted-by":"publisher","DOI":"10.1186\/1129-2377-15-31"},{"key":"2025121512364314000_7.12.e019929.5","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2011.03612.x"},{"key":"2025121512364314000_7.12.e019929.6","doi-asserted-by":"publisher","DOI":"10.1212\/01.WNL.0000113747.18760.D2"},{"key":"2025121512364314000_7.12.e019929.7","doi-asserted-by":"publisher","DOI":"10.1046\/j.1526-4610.2001.041006573.x"},{"key":"2025121512364314000_7.12.e019929.8","doi-asserted-by":"publisher","DOI":"10.1177\/0333102411398400"},{"key":"2025121512364314000_7.12.e019929.9","doi-asserted-by":"publisher","DOI":"10.1007\/s10194-005-0147-4"},{"key":"2025121512364314000_7.12.e019929.10","unstructured":"World Health Organisation. 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