{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,7]],"date-time":"2026-02-07T18:01:53Z","timestamp":1770487313311,"version":"3.49.0"},"reference-count":92,"publisher":"BMJ","issue":"9","funder":[{"DOI":"10.13039\/501100004148","name":"Lowitja Institute","doi-asserted-by":"publisher","award":["017-SF-005"],"award-info":[{"award-number":["017-SF-005"]}],"id":[{"id":"10.13039\/501100004148","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2019,8,2]]},"published-print":{"date-parts":[[2019,9]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Machado-Joseph disease (MJD) is the most common spinocerebellar ataxia worldwide. Prevalence is highest in affected remote Aboriginal communities of the Top End of Australia. Aboriginal families with MJD from Groote Eylandt believe \u2018staying strong on the inside and outside\u2019 works best to keep them walking and moving around, in accordance with six key domains that form the \u2018Staying Strong\u2019 Framework. The aim of this current study was to review the literature to: (1) map the range of interventions\/strategies that have been explored to promote walking and moving around (functional mobility) for individuals with MJD and; (2) align these interventions to the \u2018Staying Strong\u2019 Framework described by Aboriginal families with MJD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Scoping review.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Data sources<\/jats:title>\n                    <jats:p>Searches were conducted in July 2018 in MEDLINE, EMBASE, CINAHL, PsychINFO and Cochrane Databases.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Eligibility criteria for selecting studies<\/jats:title>\n                    <jats:p>Peer-reviewed studies that (1) included adolescents\/adults with MJD, (2) explored the effects of any intervention on mobility and (3) included a measure of mobility, function and\/or ataxia were included in the review.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thirty studies were included. Few studies involved participants with MJD alone (12\/30). Most studies explored interventions that aligned with two \u2018Staying Strong\u2019 Framework domains, \u2018exercising your body\u2019 (n=13) and \u2018searching for good medicine\u2019 (n=17). Few studies aligned with the domains having \u2018something important to do\u2019 (n=2) or \u2018keeping yourself happy\u2019 (n=2). No studies aligned with the domains \u2018going country\u2019 or \u2018families helping each other\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Evidence for interventions to promote mobility that align with the \u2018Staying Strong\u2019 Framework were focused on staying strong on the outside (physically) with little reflection on staying strong on the inside (emotionally, mentally and spiritually). Findings suggest future research is required to investigate the benefits of lifestyle activity programmes that address both physical and psychosocial well-being for families with MJD.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2019-032092","type":"journal-article","created":{"date-parts":[[2019,10,1]],"date-time":"2019-10-01T08:15:20Z","timestamp":1569917720000},"page":"e032092","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":4,"title":["What is the best way to keep walking and moving around for individuals with Machado-Joseph disease? A scoping review through the lens of Aboriginal families with Machado-Joseph disease in the Top End of Australia"],"prefix":"10.1136","volume":"9","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9612-0722","authenticated-orcid":false,"given":"Jennifer J","family":"Carr","sequence":"first","affiliation":[{"name":"James Cook University, College of Healthcare Sciences, Cairns, Queensland, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joyce","family":"Lalara","sequence":"additional","affiliation":[{"name":"Machado-Joseph Disease Foundation, Alyangula, Northern Territory, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gayangwa","family":"Lalara","sequence":"additional","affiliation":[{"name":"Machado-Joseph Disease Foundation, Alyangula, Northern Territory, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Moira","family":"Smith","sequence":"additional","affiliation":[{"name":"James Cook University, College of Healthcare Sciences, Townsville, Queensland, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer","family":"Quaill","sequence":"additional","affiliation":[{"name":"James Cook University, College of Healthcare Sciences, Townsville, Queensland, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alan R","family":"Clough","sequence":"additional","affiliation":[{"name":"School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, Cairns, Queensland, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anne","family":"Lowell","sequence":"additional","affiliation":[{"name":"Northern Institute, Charles Darwin University, Darwin, Northern Territory, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ruth N","family":"Barker","sequence":"additional","affiliation":[{"name":"James Cook University, College of Healthcare Sciences, Cairns, Queensland, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2019,9,30]]},"reference":[{"key":"2025121512381080000_9.9.e032092.1","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2009.08.012"},{"key":"2025121512381080000_9.9.e032092.2","unstructured":"Massey L , Jane A , Lindop N , et al . Disability Audit \u2013 NE Arnhem Land\/NT Gulf \u2013 A Snapshot of Indigenous Australian Disability in the Very Remote Communities of the Groote Eylandt Archipelago (Angurugu, Umbakumba, Milyakburra), Elcho Island (Galiwin\u2019ku), and Ngukurr (including Urapunga). Australian Indigenous Health Bulletin 2013;13."},{"key":"2025121512381080000_9.9.e032092.3","doi-asserted-by":"publisher","DOI":"10.1159\/000358801"},{"key":"2025121512381080000_9.9.e032092.4","unstructured":"MJD Foundation . MJD Foundation \u2013 Disability Service Delivery Model \u2013 A review of the MJD Foundation\u2019s disability service delivery model: contrast and comparison to traditional disability service models. Alyangula, Northern Territory: MJD Foundation, 2018."},{"key":"2025121512381080000_9.9.e032092.5","unstructured":"de Araujo M , Raposo M , Kazachkova N , et al . Trends in the epidemiology of spinocerebellar ataxia type 3\/Machado-Joseph disease in the Azores Islands, Portugal. JSM Brain Sci 2016;1."},{"key":"2025121512381080000_9.9.e032092.6","unstructured":"MacMillan J . Machado Joseph Disease SCA3. [lecture notes on the Internet] Herston. Australia: Genetic Health Queensland, 2011. http:\/\/mjd.org.au\/2-what-is-mjd.html [Accessed 1 Jan 2018]."},{"key":"2025121512381080000_9.9.e032092.7","unstructured":"Australian Bureau of Statistics . 2075.0 - Census of Population and Housing - Counts of Aboriginal and Torres Strait Islander Australians, 2016. Table 11: Census Counts, Indigenous Regions - Northern Territory, 2016: Australian Bureau of Statistics; 2017 [cited 3 Apr 2018]. Available: http:\/\/www.abs.gov.au\/AUSSTATS\/abs@.nsf\/DetailsPage\/2075.02016?OpenDocument [Accessed 3 Apr 2018]."},{"key":"2025121512381080000_9.9.e032092.8","doi-asserted-by":"publisher","DOI":"10.1007\/s12311-013-0531-6"},{"key":"2025121512381080000_9.9.e032092.9","doi-asserted-by":"crossref","first-page":"464","DOI":"10.1212\/WNL.0000000000005055","article-title":"Comprehensive systematic review summary: treatment of cerebellar motor dysfunction and ataxia: report of the Guideline development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology","volume":"90","author":"Zesiewicz","year":"2018","journal-title":"Neurology"},{"key":"2025121512381080000_9.9.e032092.10","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1007\/s00415-013-6910-6","article-title":"The effectiveness of allied health care in patients with ataxia: a systematic review","volume":"261","author":"Fonteyn","year":"2014","journal-title":"J Neurol"},{"key":"2025121512381080000_9.9.e032092.11","doi-asserted-by":"crossref","first-page":"609","DOI":"10.1177\/1545968317712469","article-title":"Rehabilitation for individuals with genetic degenerative ataxia: a systematic review","volume":"31","author":"Milne","year":"2017","journal-title":"Neurorehabil Neural Repair"},{"key":"2025121512381080000_9.9.e032092.12","doi-asserted-by":"crossref","first-page":"517","DOI":"10.1517\/21678707.2015.1025747","article-title":"Machado Joseph disease: clinical and genetic aspects, and current treatment","volume":"3","author":"Saute","year":"2015","journal-title":"Expert Opin Orphan Drugs"},{"key":"2025121512381080000_9.9.e032092.13","doi-asserted-by":"publisher","DOI":"10.1177\/1545968311425918"},{"key":"2025121512381080000_9.9.e032092.14","doi-asserted-by":"crossref","DOI":"10.1155\/2014\/583507","article-title":"Motor training in degenerative spinocerebellar disease: ataxia-specific improvements by intensive physiotherapy and exergames","volume":"2014","author":"Synofzik","year":"2014","journal-title":"Biomed Res Int"},{"key":"2025121512381080000_9.9.e032092.15","doi-asserted-by":"publisher","DOI":"10.1002\/mds.23222"},{"key":"2025121512381080000_9.9.e032092.16","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e3182749e67"},{"key":"2025121512381080000_9.9.e032092.17","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e3181c33adf"},{"key":"2025121512381080000_9.9.e032092.18","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0212953","article-title":"'Staying strong on the inside and outside' to keep walking and moving around: perspectives from Aboriginal people with Machado Joseph disease and their families from the Groote Eylandt Archipelago, Australia","volume":"14","author":"Carr","year":"2019","journal-title":"PLoS One"},{"key":"2025121512381080000_9.9.e032092.19","first-page":"1","article-title":"Review of physical activity among Indigenous people","volume":"13","author":"Gray","year":"2013","journal-title":"Australian Indigenous HealthInfoNet"},{"key":"2025121512381080000_9.9.e032092.20","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph15071492","article-title":"Indigenous Australians perceptions\u2019 of physical activity: a qualitative systematic review","volume":"15","author":"Dahlberg","year":"2018","journal-title":"Int J Environ Res Public Health"},{"key":"2025121512381080000_9.9.e032092.21","unstructured":"Machado Joseph Disease Foundation . About us: what we do: MJD Foundation; 2017 [cited 16 Mar 2017]. Available: http:\/\/mjd.org.au\/7-about-us.html [Accessed 12 Mar 2017]."},{"key":"2025121512381080000_9.9.e032092.22","doi-asserted-by":"publisher","DOI":"10.1080\/1364557032000119616"},{"key":"2025121512381080000_9.9.e032092.23","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-5-69"},{"key":"2025121512381080000_9.9.e032092.24","doi-asserted-by":"crossref","DOI":"10.1186\/s12874-018-0611-x","article-title":"Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach","volume":"18","author":"Munn","year":"2018","journal-title":"BMC Med Res Methodol"},{"key":"2025121512381080000_9.9.e032092.25","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"2025121512381080000_9.9.e032092.26","doi-asserted-by":"publisher","DOI":"10.1038\/ng1194-221"},{"key":"2025121512381080000_9.9.e032092.27","doi-asserted-by":"publisher","DOI":"10.1038\/ng0793-300"},{"key":"2025121512381080000_9.9.e032092.28","doi-asserted-by":"publisher","DOI":"10.1002\/mds.22564"},{"key":"2025121512381080000_9.9.e032092.29","doi-asserted-by":"crossref","first-page":"244","DOI":"10.1590\/0004-282X20160038","article-title":"Current concepts in the treatment of hereditary ataxias","volume":"74","author":"Braga Neto","year":"2016","journal-title":"Arq Neuropsiquiatr"},{"key":"2025121512381080000_9.9.e032092.30","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/j.jns.2007.04.019","article-title":"Treatment of spinocerebellar ataxia with buspirone","volume":"260","author":"Assadi","year":"2007","journal-title":"J Neurol Sci"},{"key":"2025121512381080000_9.9.e032092.31","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1590\/S1809-29502013000300015","article-title":"Physical therapy approach to spinocerebellar ataxia: a systematic review","volume":"20","author":"Martins","year":"2013","journal-title":"Fisioter e Pesqui"},{"key":"2025121512381080000_9.9.e032092.32","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2009.06.006"},{"key":"2025121512381080000_9.9.e032092.33","doi-asserted-by":"publisher","DOI":"10.1002\/jrsm.1123"},{"key":"2025121512381080000_9.9.e032092.34","unstructured":"National Collaborating Centre for Methods and Tools . Appraising qualitative, quantitative and mixed method studies included in mixed studies reviews: the MMAT Hamilton, ON: McMaster University, 2015. Available: http:\/\/www.nccmt.ca\/knowledge-repositories\/search\/232%20(accessed%20May%202017 [Accessed 1 Sep 2017]."},{"key":"2025121512381080000_9.9.e032092.35","unstructured":"National Health and Medical Research Council . NHMRC levels of evidence and grades for recommendations for guideline developers. Canberra, ACT: Australia, 2009."},{"key":"2025121512381080000_9.9.e032092.36","unstructured":"Joanna Briggs Institute Levels of Evidence and Grades of Recommendation Working Party . New JBI levels of evidence. Joanna Briggs Institute, 2014."},{"key":"2025121512381080000_9.9.e032092.37","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0180054","article-title":"Cerebellar ataxia and intrathecal baclofen therapy: focus on patients' experiences","volume":"12","author":"Berntsson","year":"2017","journal-title":"PLoS One"},{"key":"2025121512381080000_9.9.e032092.38","unstructured":"NVivo 12 [program]. Australia 2018."},{"key":"2025121512381080000_9.9.e032092.39","doi-asserted-by":"publisher","DOI":"10.1002\/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G"},{"key":"2025121512381080000_9.9.e032092.40","doi-asserted-by":"crossref","DOI":"10.1038\/s41598-018-26109-w","article-title":"A randomized controlled pilot trial of game-based training in individuals with spinocerebellar ataxia type 3","volume":"8","author":"Wang","year":"2018","journal-title":"Sci Rep"},{"key":"2025121512381080000_9.9.e032092.41","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1016\/j.parkreldis.2016.03.005","article-title":"Safety and efficacy of valproic acid treatment in SCA3\/MJD patients","volume":"26","author":"Lei","year":"2016","journal-title":"Parkinsonism Relat Disord"},{"key":"2025121512381080000_9.9.e032092.42","doi-asserted-by":"publisher","DOI":"10.1002\/mds.25803"},{"key":"2025121512381080000_9.9.e032092.43","doi-asserted-by":"publisher","DOI":"10.1001\/archneur.58.9.1451"},{"key":"2025121512381080000_9.9.e032092.44","doi-asserted-by":"publisher","DOI":"10.1001\/archneur.1997.00550160041013"},{"key":"2025121512381080000_9.9.e032092.45","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e318247cc7a"},{"key":"2025121512381080000_9.9.e032092.46","doi-asserted-by":"publisher","DOI":"10.1007\/s12311-013-0532-5"},{"key":"2025121512381080000_9.9.e032092.47","doi-asserted-by":"crossref","first-page":"264","DOI":"10.1007\/s12311-017-0897-y","article-title":"Effect of restraining the base of support on the other biomechanical features in patients with cerebellar ataxia","volume":"17","author":"Conte","year":"2018","journal-title":"Cerebellum"},{"key":"2025121512381080000_9.9.e032092.48","first-page":"136","article-title":"Core stability training with conventional balance training improves dynamic balance in progressive degenerative cerebellar ataxia","volume":"7","author":"Tabbassum","year":"2013","journal-title":"Indian J Physiother Occup Therapy"},{"key":"2025121512381080000_9.9.e032092.49","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.72.1.124"},{"key":"2025121512381080000_9.9.e032092.50","doi-asserted-by":"crossref","first-page":"385","DOI":"10.1111\/j.1600-0404.2005.00405.x","article-title":"Clinical and molecular events in patients with Machado-Joseph disease under lamotrigine therapy","volume":"111","author":"Liu","year":"2005","journal-title":"Acta Neurol Scand"},{"key":"2025121512381080000_9.9.e032092.51","doi-asserted-by":"publisher","DOI":"10.1034\/j.1600-0404.2003.02132.x"},{"key":"2025121512381080000_9.9.e032092.52","doi-asserted-by":"publisher","DOI":"10.1590\/S0100-879X2010005000009"},{"key":"2025121512381080000_9.9.e032092.53","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1097\/00002826-200401000-00005","article-title":"Effects of Tandospirone on \u201c5-HT1A Receptor-Associated Symptoms\u201d in Patients with Machado-Josephe Disease","volume":"27","author":"Takei","year":"2004","journal-title":"Clin Neuropharmacol"},{"key":"2025121512381080000_9.9.e032092.54","doi-asserted-by":"crossref","first-page":"567","DOI":"10.1007\/s12311-010-0199-0","article-title":"Difference in the effects of tandospirone on ataxia in various types of spinocerebellar degeneration: an open-label study","volume":"9","author":"Takei","year":"2010","journal-title":"Cerebellum"},{"key":"2025121512381080000_9.9.e032092.55","doi-asserted-by":"crossref","first-page":"503","DOI":"10.3727\/096368916X694373","article-title":"Treatment of spinocerebellar ataxia with mesenchymal stem cells: a phase I\/IIa clinical study","volume":"26","author":"Tsai","year":"2017","journal-title":"Cell Transplant"},{"key":"2025121512381080000_9.9.e032092.56","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1016\/j.gaitpost.2014.04.190","article-title":"Gait adaptability training improves obstacle avoidance and dynamic stability in patients with cerebellar degeneration","volume":"40","author":"Fonteyn","year":"2014","journal-title":"Gait Posture"},{"key":"2025121512381080000_9.9.e032092.57","doi-asserted-by":"crossref","DOI":"10.1186\/1479-5876-9-65","article-title":"Human umbilical cord blood-derived mononuclear cell transplantation: case series of 30 subjects with hereditary ataxia","volume":"9","author":"Yang","year":"2011","journal-title":"J Transl Med"},{"key":"2025121512381080000_9.9.e032092.58","article-title":"Partial body Weight-Supported treadmill training in spinocerebellar ataxia","volume":"2018","author":"de Oliveira","year":"2018","journal-title":"Rehabil Res Pract"},{"key":"2025121512381080000_9.9.e032092.59","doi-asserted-by":"crossref","first-page":"1002","DOI":"10.1080\/09638288.2016.1177124","article-title":"The effect of a task-specific locomotor training strategy on gait stability in patients with cerebellar disease: a feasibility study","volume":"39","author":"Im","year":"2017","journal-title":"Disabil Rehabil"},{"key":"2025121512381080000_9.9.e032092.60","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1007\/s10072-016-2800-x","article-title":"A wearable proprioceptive stabilizer for rehabilitation of limb and gait ataxia in hereditary cerebellar ataxias: a pilot open-labeled study","volume":"38","author":"Leonardi","year":"2017","journal-title":"Neurol Sci"},{"key":"2025121512381080000_9.9.e032092.61","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1016\/j.parkreldis.2015.11.021","article-title":"Depression and clinical progression in spinocerebellar ataxias","volume":"22","author":"Lo","year":"2016","journal-title":"Parkinsonism Relat Disord"},{"key":"2025121512381080000_9.9.e032092.62","doi-asserted-by":"crossref","first-page":"1223","DOI":"10.1589\/jpts.27.1223","article-title":"Decreasing fall risk in spinocerebellar ataxia","volume":"27","author":"Santos de Oliveira","year":"2015","journal-title":"J Phys Ther Sci"},{"key":"2025121512381080000_9.9.e032092.63","doi-asserted-by":"crossref","first-page":"223","DOI":"10.5958\/0973-5674.2015.00176.8","article-title":"Functional approach in spino-cerebellar Ataxia-Occupational therapy perspective","volume":"9","author":"Sawant","year":"2015","journal-title":"Indian J Physiother Occup Therapy"},{"key":"2025121512381080000_9.9.e032092.64","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-013-7029-5"},{"key":"2025121512381080000_9.9.e032092.65","doi-asserted-by":"crossref","first-page":"358","DOI":"10.1002\/mds.23423","article-title":"Subcutaneous insulin-like growth factor-1 treatment in spinocerebellar ataxias: an open label clinical trial","volume":"26","author":"Arpa","year":"2011","journal-title":"Mov Disord"},{"key":"2025121512381080000_9.9.e032092.66","doi-asserted-by":"crossref","unstructured":"Sanz-Gallego I , Rodriguez-de-Rivera FJ , Pulido I , et al . IGF-1 in autosomal dominant cerebellar ataxia - open-label trial. Cerebellum Ataxias 2014;1.doi:10.1186\/s40673-014-0013-8","DOI":"10.1186\/s40673-014-0013-8"},{"key":"2025121512381080000_9.9.e032092.67","doi-asserted-by":"publisher","DOI":"10.1080\/09638280500493860"},{"key":"2025121512381080000_9.9.e032092.68","unstructured":"World Health Organisation . WHO traditional medicine strategy: 2014-2023. Hong Kong, China: World Health Organisation, 2013."},{"key":"2025121512381080000_9.9.e032092.69","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1016\/j.physio.2013.02.001","article-title":"\"Six sessions is a drop in the ocean\": an exploratory study of neurological physiotherapy in idiopathic and inherited ataxias","volume":"99","author":"Daker-White","year":"2013","journal-title":"Physiotherapy"},{"key":"2025121512381080000_9.9.e032092.70","doi-asserted-by":"crossref","first-page":"894","DOI":"10.1080\/09638288.2016.1277400","article-title":"The meanings of physiotherapy and exercise for people living with progressive cerebellar ataxia: an interpretative phenomenological analysis","volume":"40","author":"Cassidy","year":"2018","journal-title":"Disabil Rehabil"},{"key":"2025121512381080000_9.9.e032092.71","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1097\/NPT.0000000000000119","article-title":"Development and delivery of a physical activity intervention for people with Huntington disease: facilitating translation to clinical practice","volume":"40","author":"Quinn","year":"2016","journal-title":"J Neurol Phys Ther"},{"key":"2025121512381080000_9.9.e032092.72","doi-asserted-by":"publisher","DOI":"10.1519\/JPT.0b013e31820aa921"},{"key":"2025121512381080000_9.9.e032092.73","doi-asserted-by":"crossref","first-page":"S46","DOI":"10.1097\/NPT.0000000000000166","article-title":"From disease to health: physical therapy health promotion practices for secondary prevention in adult and pediatric neurologic populations","volume":"41","author":"Quinn","year":"2017","journal-title":"J Neurol Phys Ther"},{"key":"2025121512381080000_9.9.e032092.74","doi-asserted-by":"publisher","DOI":"10.1177\/1352458514525873"},{"key":"2025121512381080000_9.9.e032092.75","doi-asserted-by":"crossref","first-page":"453","DOI":"10.1002\/mds.22447","article-title":"Traditional Chinese medicine on four patients with Huntington's disease","volume":"24","author":"Satoh","year":"2009","journal-title":"Mov Disord"},{"key":"2025121512381080000_9.9.e032092.76","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0035695","article-title":"Herbal medicines for Parkinson's disease: a systematic review of randomized controlled trials","volume":"7","author":"Kim","year":"2012","journal-title":"PLoS One"},{"key":"2025121512381080000_9.9.e032092.77","doi-asserted-by":"publisher","DOI":"10.1080\/11745398.2008.9686789"},{"key":"2025121512381080000_9.9.e032092.78","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1016\/j.ijge.2016.02.002","article-title":"Therapeutic dancing for Parkinson's disease","volume":"10","author":"Aguiar","year":"2016","journal-title":"Int J Gerontol"},{"key":"2025121512381080000_9.9.e032092.79","doi-asserted-by":"crossref","first-page":"274","DOI":"10.1249\/JSR.0000000000000374","article-title":"The practice of sport in multiple sclerosis: update","volume":"16","author":"Donze","year":"2017","journal-title":"Curr Sports Med Rep"},{"key":"2025121512381080000_9.9.e032092.80","doi-asserted-by":"publisher","DOI":"10.1021\/es102947t"},{"key":"2025121512381080000_9.9.e032092.81","doi-asserted-by":"publisher","DOI":"10.1044\/1092-4388(2008\/018)"},{"key":"2025121512381080000_9.9.e032092.82","doi-asserted-by":"crossref","first-page":"1137","DOI":"10.1007\/s40273-015-0295-6","article-title":"Can the EQ-5D detect meaningful change? A systematic review","volume":"33","author":"Payakachat","year":"2015","journal-title":"Pharmacoeconomics"},{"key":"2025121512381080000_9.9.e032092.83","doi-asserted-by":"publisher","DOI":"10.1016\/j.outlook.2009.10.004"},{"key":"2025121512381080000_9.9.e032092.84","doi-asserted-by":"crossref","DOI":"10.1186\/1471-2377-10-70","article-title":"Design and baseline characteristics of the ParkFit study, a randomized controlled trial evaluating the effectiveness of a multifaceted behavioral program to increase physical activity in Parkinson patients","volume":"10","author":"van Nimwegen","year":"2010","journal-title":"BMC Neurol"},{"key":"2025121512381080000_9.9.e032092.85","doi-asserted-by":"publisher","DOI":"10.1016\/j.physio.2013.05.003"},{"key":"2025121512381080000_9.9.e032092.86","doi-asserted-by":"publisher","DOI":"10.1176\/appi.psy.48.5.400"},{"key":"2025121512381080000_9.9.e032092.87","doi-asserted-by":"crossref","first-page":"339","DOI":"10.1007\/s10897-013-9666-3","article-title":"An exploration of the experience of Huntington's disease in family dyads: an interpretative phenomenological analysis","volume":"23","author":"Maxted","year":"2014","journal-title":"J Genet Couns"},{"key":"2025121512381080000_9.9.e032092.88","doi-asserted-by":"crossref","first-page":"169","DOI":"10.3233\/JHD-170250","article-title":"Families affected by Huntington's disease report difficulties in communication, emotional involvement, and problem solving","volume":"6","author":"Jona","year":"2017","journal-title":"J Huntingtons Dis"},{"key":"2025121512381080000_9.9.e032092.89","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3109\/09638288.2014.996676","article-title":"Understanding factors that influence participation in physical activity among people with a neuromusculoskeletal condition: a review of qualitative studies","volume":"38","author":"Newitt","year":"2016","journal-title":"Disabil Rehabil"},{"key":"2025121512381080000_9.9.e032092.90","article-title":"The importance of psychological and social factors in influencing the uptake and maintenance of physical activity after stroke: a structured review of the empirical literature","volume":"2012","author":"Morris","year":"2012","journal-title":"Stroke Res Treat"},{"key":"2025121512381080000_9.9.e032092.91","unstructured":"Bonney H , de Silva R , Giunti P . Management of the ataxias towards best clinical practice. 3rd edn. Ataxia UK, 2016."},{"key":"2025121512381080000_9.9.e032092.92","doi-asserted-by":"crossref","DOI":"10.1186\/s13023-014-0184-7","article-title":"Consensus clinical management guidelines for Friedreich ataxia","volume":"9","author":"Corben","year":"2014","journal-title":"Orphanet J Rare Dis"}],"container-title":["BMJ Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1136\/bmjopen-2019-032092","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,15]],"date-time":"2025-12-15T20:38:24Z","timestamp":1765831104000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmjopen.bmj.com\/lookup\/doi\/10.1136\/bmjopen-2019-032092"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,9]]},"references-count":92,"journal-issue":{"issue":"9","published-online":{"date-parts":[[2019,9,30]]},"published-print":{"date-parts":[[2019,9]]}},"alternative-id":["10.1136\/bmjopen-2019-032092"],"URL":"https:\/\/doi.org\/10.1136\/bmjopen-2019-032092","relation":{},"ISSN":["2044-6055","2044-6055"],"issn-type":[{"value":"2044-6055","type":"print"},{"value":"2044-6055","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,9]]}}}