{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T02:48:15Z","timestamp":1790650095924,"version":"4.1.0"},"reference-count":36,"publisher":"BMJ","issue":"4","license":[{"start":{"date-parts":[[2020,4,29]],"date-time":"2020-04-29T00:00:00Z","timestamp":1588118400000},"content-version":"unspecified","delay-in-days":28,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100015739","name":"Diabetes Action Canada","doi-asserted-by":"crossref","award":["Post-doctoral Fellowship (PI: Ndjaboue)"],"award-info":[{"award-number":["Post-doctoral Fellowship (PI: Ndjaboue)"]}],"id":[{"id":"10.13039\/501100015739","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Society of Medical Decision Making","award":["Post doctoral fellowship (PI: Ndjaboue)"],"award-info":[{"award-number":["Post doctoral fellowship (PI: Ndjaboue)"]}]},{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"crossref","award":["FDN-148426 (PI: Witteman)"],"award-info":[{"award-number":["FDN-148426 (PI: Witteman)"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"crossref","award":["SPOR Network Grant 2016-21 (SCA-145101, PI: Lewis)"],"award-info":[{"award-number":["SPOR Network Grant 2016-21 (SCA-145101, PI: Lewis)"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Fonds de Recherche du Qu\u00e9bec-Sant\u00e9","award":["Research Scholar Junior 2 Award (PI: witteman)"],"award-info":[{"award-number":["Research Scholar Junior 2 Award (PI: witteman)"]}]}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2020,3,4]]},"published-print":{"date-parts":[[2020,4]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>People living with diabetes need and deserve high-quality, individualised care. However, providing such care remains a challenge in many countries, including Canada. Patients\u2019 expertise, if acknowledged and adequately translated, could help foster patient-centred care. This study aimed to describe Expert Patients\u2019 knowledge, wisdom and advice to others with diabetes and to health professionals to improve diabetes self-management and care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design and methods<\/jats:title>\n                    <jats:p>We recruited a convenience sample of 21 men and women. Participants were people of diverse backgrounds who are Patient Partners in a national research network (hereafter Expert Patients). We interviewed and video-recorded their knowledge, wisdom and advice for health professionals and for others with diabetes. Three researchers independently analysed videos using inductive framework analysis, identifying themes through discussion and consensus. Expert Patients were involved in all aspects of study design, conduct, analysis and knowledge translation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Acknowledging and accepting the reality of diabetes, receiving support from family and care teams and not letting diabetes control one\u2019s life are essential to live well with diabetes. To improve diabetes care, health professionals should understand and acknowledge the impact of diabetes on patients and their families, and communicate with patients openly, respectfully, with empathy and cultural competency.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Expert Patients pointed to a number of areas of improvement in diabetes care that may be actionable individually by patients or health professionals, and also collectively through intergroup collaboration. Improving the quality of care in diabetes is crucial for improving health outcomes for people with diabetes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2019-032762","type":"journal-article","created":{"date-parts":[[2020,4,30]],"date-time":"2020-04-30T04:28:04Z","timestamp":1588220884000},"page":"e032762","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":32,"title":["Patients\u2019 perspectives on how to improve diabetes care and self-management: qualitative study"],"prefix":"10.1136","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4716-6505","authenticated-orcid":false,"given":"Ruth","family":"Ndjaboue","sequence":"first","affiliation":[{"name":"Office of Education and Continuing Professional Development, Laval University, Quebec, Quebec, Canada"},{"name":"Department of Family Medicine and Emergency, Laval University, Quebec, Quebec, Canada"},{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Selma","family":"Chipenda Dansokho","sequence":"additional","affiliation":[{"name":"Office of Education and Continuing Professional Development, Laval University, Quebec, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bianca","family":"Boudreault","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Emergency, Laval University, Quebec, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie-Claude","family":"Tremblay","sequence":"additional","affiliation":[{"name":"Office of Education and Continuing Professional Development, Laval University, Quebec, Quebec, Canada"},{"name":"Department of Family Medicine and Emergency, Laval University, Quebec, Quebec, Canada"},{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maman Joyce","family":"Dogba","sequence":"additional","affiliation":[{"name":"Office of Education and Continuing Professional Development, Laval University, Quebec, Quebec, Canada"},{"name":"Department of Family Medicine and Emergency, Laval University, Quebec, Quebec, Canada"},{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Roberta","family":"Price","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pascual","family":"Delgado","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alex M","family":"McComber","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"},{"name":"Department of Family Medicine, McGill University, Montreal, Quebec, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olivia","family":"Drescher","sequence":"additional","affiliation":[{"name":"Office of Education and Continuing Professional Development, Laval University, Quebec, Quebec, Canada"},{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3741-5248","authenticated-orcid":false,"given":"Jonathan","family":"McGavock","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada, Toronto, Ontario, Canada"},{"name":"Department of Pediatrics, University of Manitoba, Winnipeg, Manitoba, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4192-0682","authenticated-orcid":false,"given":"Holly","family":"Witteman","sequence":"additional","affiliation":[{"name":"Office of Education and Continuing Professional Development, Laval University, Quebec, Quebec, 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