{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T20:24:06Z","timestamp":1772223846703,"version":"3.50.1"},"reference-count":21,"publisher":"BMJ","issue":"1","license":[{"start":{"date-parts":[[2021,1,29]],"date-time":"2021-01-29T00:00:00Z","timestamp":1611878400000},"content-version":"unspecified","delay-in-days":28,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2020,8,4]]},"published-print":{"date-parts":[[2021,1]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Internationally recognised specialist breast cancer scientists, clinicians and healthcare professionals have published breast cancer research gaps that are informing research funding priorities in the UK and worldwide. We aimed to determine the breast cancer research priorities of the public to compare with those identified by clinicians and scientists.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>We conducted a qualitative study and thematic analysis using \u2018listening events\u2019 where patients with breast cancer and public representatives used a patient\u2019s breast cancer journey to identify research themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants and setting<\/jats:title>\n                    <jats:p>Female participants were recruited from attendees at participating hospitals and support groups in the northwest of England, including patients, their family and friends as well as staff at a local retail centre.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Intervention<\/jats:title>\n                    <jats:p>A framework approach was used to analyse transcribed discussions until thematic saturation was reached.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main outcome measures<\/jats:title>\n                    <jats:p>Breast cancer research priorities were identified from participant discussions and compared with the published gaps identified by scientists and healthcare professionals.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thematic saturation was reached after 27 female participants participated in listening events. Our participants consistently focused on improved methods of dissemination of information and improving education on the signs and symptoms of breast cancer. This was not highlighted by scientists or healthcare professionals. There was strong emphasis on quality of life-related issues such as side effects of treatment. There was some agreement between the priorities deduced by our study and those of the professionals in the areas of screening, prevention and breast reconstruction.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Our study identified some research themes that were not identified by scientists and healthcare professionals in two earlier landmark studies. This highlights the importance of including patients and public representatives when setting research priorities. The results should be used to guide investigators when planning future studies and for funding bodies in allocating resources for future projects.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2019-036072","type":"journal-article","created":{"date-parts":[[2021,1,29]],"date-time":"2021-01-29T11:16:27Z","timestamp":1611918987000},"page":"e036072","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":13,"title":["Patient and public priorities for breast cancer research: a qualitative study in the UK"],"prefix":"10.1136","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1020-5029","authenticated-orcid":false,"given":"George","family":"Boundouki","sequence":"first","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Wilson","sequence":"additional","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paula","family":"Duxbury","sequence":"additional","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia","family":"Henderson","sequence":"additional","affiliation":[{"name":"Royal Liverpool University Hospital, Liverpool, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Ballance","sequence":"additional","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Wray","sequence":"additional","affiliation":[{"name":"Independent Patient Representative, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vivienne","family":"Appanah","sequence":"additional","affiliation":[{"name":"Independent Patient Representative, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ibrahim","family":"Ibrahim","sequence":"additional","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"James","family":"Harvey","sequence":"additional","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1725-4790","authenticated-orcid":false,"given":"Cliona Clare","family":"Kirwan","sequence":"additional","affiliation":[{"name":"The Nightingale Breast Cancer Unit, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK"},{"name":"Division of Cancer Sciences, The University of Manchester, Manchester, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"239","published-online":{"date-parts":[[2021,1,29]]},"reference":[{"key":"2025121220182971000_11.1.e036072.1","unstructured":"Cancer registration statistics, England . Office for national statistics, 2016."},{"key":"2025121220182971000_11.1.e036072.2","unstructured":"Cancer Incidence in Scotland . Information services division, NHS Scotland, 2016."},{"key":"2025121220182971000_11.1.e036072.3","doi-asserted-by":"publisher","DOI":"10.3322\/caac.21492"},{"key":"2025121220182971000_11.1.e036072.4","doi-asserted-by":"crossref","first-page":"89","DOI":"10.1016\/j.breast.2017.06.003","article-title":"Trends and predictions to 2020 in breast cancer mortality in Europe","volume":"36","author":"Carioli","year":"2017","journal-title":"Breast"},{"key":"2025121220182971000_11.1.e036072.5","unstructured":"NCRI . Breast cancer clinical studies group annual report, 2017: 2016\u20137."},{"key":"2025121220182971000_11.1.e036072.6","unstructured":"Staley K , Hanley B . 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