{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T16:06:51Z","timestamp":1787501211436,"version":"build-2736575974"},"reference-count":83,"publisher":"BMJ","issue":"4","license":[{"start":{"date-parts":[[2021,3,31]],"date-time":"2021-03-31T00:00:00Z","timestamp":1617148800000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["bmj.com"],"crossmark-restriction":true},"short-container-title":["BMJ Open"],"accepted":{"date-parts":[[2021,3,9]]},"published-print":{"date-parts":[[2021,4]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Participation refers to a person\u2019s involvement in activities and roles that provide interaction with others as well as engagement in family and community activities. Young children with developmental disabilities (DD) such as attention deficit hyperactive disorder, autism spectrum disorder and developmental coordination disorder are limited in their participation compared with their typically developing peers. This study aimed to obtain information regarding parental needs and strategies used to enable their child\u2019s participation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A thematic inductive approach with in-depth interviews was used to explore parental experiences. Eleven women and two men, between 30 and 40 years of age, who had a child (4\u20139 years old) with a DD diagnosis based on Diagnostic and Statistical Manual of Mental Disorders criteria, participated in semistructured interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Two central themes emerged: parental needs and parental strategies used to enable their child\u2019s participation. Parental needs were the following: increasing awareness, ameliorating parental burden, providing tailored interventions and supporting parents in finding suitable leisure activities. Parental strategies aimed at increasing their child\u2019s resiliency, attaining maximal fit between activity requirements and child capacity, and creating inclusive opportunities and awareness.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Understanding what families\u2019 needs are and how families use and integrate strategies within the context of their daily lives provides practitioners with insights needed to support families\u2019 resiliency in promoting their children\u2019s participation. The results have implications for professionals as this information can be used to inform, refine, or tailor participation-based and family-centred services.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1136\/bmjopen-2020-042732","type":"journal-article","created":{"date-parts":[[2021,4,1]],"date-time":"2021-04-01T13:25:02Z","timestamp":1617283502000},"page":"e042732","update-policy":"https:\/\/doi.org\/10.1136\/crossmarkpolicy","source":"Crossref","is-referenced-by-count":11,"title":["Participation of young children with developmental disabilities: parental needs and strategies, a qualitative thematic analysis"],"prefix":"10.1136","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1103-2350","authenticated-orcid":false,"given":"Marieke","family":"Coussens","sequence":"first","affiliation":[{"name":"Faculty of Medicine and Health Sciences, Department of Rehabilitation Science, Ghent University, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Floris","family":"Vitse","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health Sciences, Department of Rehabilitation Science, Ghent University, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annemie","family":"Desoete","sequence":"additional","affiliation":[{"name":"Faculty of Psychology and Educational Sciences, Ghent University, Gent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Guy","family":"Vanderstraeten","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health Sciences, Department of Rehabilitation Science, Ghent University, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hilde","family":"Van Waelvelde","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health Sciences, Department of Rehabilitation Science, Ghent University, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6982-1075","authenticated-orcid":false,"given":"Dominique","family":"Van de Velde","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health Sciences, Department of Rehabilitation Science, Ghent University, Ghent, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"239","published-online":{"date-parts":[[2021,4,1]]},"reference":[{"key":"2025121409341875000_11.4.e042732.1","doi-asserted-by":"crossref","unstructured":"American Psychiatric Association . 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